Flight of the Butterfly ToyDeann

LUPUS IN COLOR PRESENTS
THE 4TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Flight of the Butterfly ToyDeann

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Hello my name is ToyDeann. I was diagnosed with Systemic Lupus Erythematosus in 1995 at the age of 9, and then I moved to California. When I first moved to California my diagnosis was changed to MCTD (mixed connective tissue disease). Since my first diagnosis, I have discovered that I have the factor V Leiden mutation, pulmonary embolism, ITP (idiopathic thrombocytopenia purpura), anemia, arthritis, membranous lupus nephritis and fibromyalgia.

My life has been extremely challenging since my time as a young girl. It’s difficult trying to do just about anything. My biggest challenge is the pain and the fatigue. I hate them both. Lupus has made it very difficult and uncomfortable to work. But I’ve managed to make the best of it. I choose to express my hurt, pain and experiences with lupus through poetry. I wrote a poetry book called, “A Piece of Me”. For more information check out my website: http://www.toydeann.com

My goal is to provide a better understanding of what I experience of a daily basis through poetry. My words reveal my struggles with this chronic illness.

We definitely don’t get the recognition that we need. I’m hoping that you are able to share this with others in hopes that they will better understand our experiences. Lupus awareness is so important. This is a very tough life to live and every day I have to fight a MONSTER. People need to know how rough it is so that we can get help. Please share and like my page:  https://www.facebook.com/ToyDeann/?fref=tsBefore

Lupus In Color is excited to present ToyDeann’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you ToyDeann. YOU ARE BRAVE, COURAGEOUS AND AMAZING TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE TOYDEANN’S FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

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