May 22 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 22 Lupus Fact

Those who have lupus are more likely to suffer a stroke than people without lupus. In fact, some people with lupus suffer from recurrent strokes, especially if they also have high blood pressure. Stroke can be caused by Antiphospholipid Syndrome or APS. APS is a protein that can form with lupus which can make the blood thick and sticky. Other causes of stroke could be vasculitis, inflamed blood vessels or if you have CNS lupus.

This is your twenty-second butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

Butterfly Flight Analilia Carabay

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Analilia Carabay

I’d like to tell you the up’s and down’s that I have endured since that day that would forever change my life.

Back then I didn’t realize all that was going on with my body. I had had 4 beautiful babies. My last was our only son, Emilio, I was 37 years old when I had him. I had some complications during labor and after 3 days I had to get an emergency C-section. When he was 6 months I began to experience pain in my hands and wrists. I didn’t think anything of it. I drove a bus so I just associated the pain with that. I did decide to go to the Dr just to see if I could get some answers. I just thought I might just have arthritis and really that was my only thought. My oldest daughter came with me to get my lab results and when the Dr told me that my ANA came back positive but the other tests for arthritis had come back negative so she said I could possibly have Lupus. Literally my mind went somewhere else and just remember getting out of there and going home. Just silence in the car. Next day I went about my life, I had babies to take care of and I had to go to work. The following year, around the same time, I started to have pain again and it did get worse. I went back to the doctor and this time I actually listened and asked questions. I ended being referred to a Rheumatologist. My first trip was unsuccessful the only thing coming back was the positive ANA and Dr. told me that there was nothing he could do for me just basically prescribe pain meds. Two years later I woke up to the most unbearable pain down my legs, up and down my arms. I couldn’t get out of bed, shower, or dress myself. Eventually after a few months I was back at the same Rheumatologist. This time though after tests results coming back I finally had my answer…Lupus. I was devastated!! So many questions, why, how, and what am I going to do now, how will I do this. I cried and cried in that office. I began my treatment that day, July 22, 2012. Once again I found myself going back to that mindset of I have things to do and though I was taking meds every night I still pushed it way back in my mind. I had to work, be a mom, a wife, sister, and friend. I was always there for everyone. My life was perfect. I had just purchased our first home. I don’t have time to think of Lupus.

In May of 2014 I was having extreme pain in my back and hips where it was hard to sit down and lay down. My husband had seen some blister things in an area on my body and we thought hmmm maybe I should go to the ER. I was told I had a boil and so I was pumped with antibiotics and told if it didn’t go away that I would have to have it removed. I knew something wasn’t right I thought it might be Shingles and sure enough after going to another doctor that’s what it was. At this point I was really depressed but never expressed it I just kept it hidden, I wore a mask. So I knew everything was starting to come up to the surface. I could no longer hide it. I can say now I kind of thank God I did end up with Shingles because I was given Lyrica and it did give me that balance I was needing. I don’t know why it just helped me I am just grateful it did. From that moment I thought I need to live. I can’t let this beat me.

I’m at a point in my life where I may not be able to do the things I used to do but I’m alive and I have a wonderful and beautiful family who support and love me unconditionally. I owe that to them but also to myself to fight as much as I can. I may have set backs with medications and physical limitations but its ok. I also have some awesome online support groups, Lupus in Color along with a few others.

At this present time 3 of my daughters have had their ANAs tested and my two youngest,12 and 14, have tested positive. I’m scared for them but I’m trying to keep it positive for them. They will go to Valley Children’s in Madera, CA at the end of the month to have more tests ran so I’m just hoping they just carry the gene but both have had pain in their legs and arms. This is my biggest worry I am so scared for them. We need a cure!!! Thank you for all that Lupus In Color!!

Lupus In Color is excited to present Analilia’s story to the world. As a Lupus Warrior he is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Analilia Carabay.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Analilia’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬

Butterfly Flight Melissa Evans

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Melissa Evans

I reflect back to the day I was diagnosed early 20’s young mom just had my second child who was clinging onto his life in NICU 29 weeks old due to my cardiomyopathy taken early I was young body failing doctors searching for answers. I can’t believe almost twenty years ago the lupus diagnosis was so grim. I was actually told my life expectancy was just 40 years old. Through the years I struggled diagnosed with overlapping diseases, anti phospholipid syndrome which causes blood clots, IVC filter placed in my chest that same filter that was suppose to save almost killed me fracturing breaking into pieces a strut (leg of filter) migrated to my lung. I’m a walking miracle! Diagnosed with RA referred in those with lupus as “Rupus”. Struggled to raise my two boys fought every step of the way. Went back to college got a degree at 28. Divorced by the time I was in my 30’s, I never gave up on hope! FAST FORWARD! I am now 39 will be 40 in July yes 40! I have defied the odds looking back to a time I once walked with a cane had a port in my chest daily injections that is no longer. Cane is retired port is out, I take a drug Xererlto not available my early years for my blood condition freeing me from painful shots I had to take. No more admissions on heparin drips which can scary your blood can’t be too thin but can’t be too thick a fine science hematology is. Trial will be soon the fractured IVC filter that almost took my life holding manufacturer responsible for the flaws of a device they clearly knew existed and turned a blind eye too. I’m on a infusion Benlysta which just came out 5+ or so years ago which for many helps Lupus, Benlysta gave me my life back has basically put my lupus in a calm sleep in a remission of sorts. I require monthly infusions to many this drug is a wonder drug! Last but not least save the best for last my eldest son graduating this year my youngest will be 16. I’m a proud mom of two amazing young men, I also found love again a best friend who supports me through my lupus journey’s always by my side.

Moral of the story NEVER give up HOPE!

#lupus #lupuswarrior #lupusawareness #lupusawarenessmonth #hope #fighter

Lupus In Color is excited to present Melissa’s story to the world. As a Lupus Warrior he is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Melissa Evans.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Mellisa’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬

May 21 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 21 Lupus Fact

DEALING WITH LUPUS ITSELF IS STRESSFUL. MANY PEOPLE WITH LUPUS CAN SUFFER FROM PERIODS OF DEPRESSION. LUPUS CAN CAUSE STRESS THAT SIGNALS YOUR IMMUNE SYSTEM TO ACTIVATE AND CAUSES INFLAMMATION. IN PEOPLE WITH LUPUS, EVERY DAY STRESSORS AND STRESS FROM HAVING LUPUS HAS DIRECT CONSEQUENCES, NOT ONLY ON THEIR OVERALL HEALTH, BUT ALSO ON THEIR DISEASE.

This is your twenty-first butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

May 20 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 20 Lupus Fact

There is NO known cause for lupus, although it is believed genetics definitely play a role. There is also NO known cure for lupus, only treatment to help manage symptoms.

This is your twentieth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

May 19 Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 19 Lupus Fact

People with Lupus are often overlooked because “They don’t look sick!” Many lupus warriors suffer in silence because they are not believed to have a major, chronic, sometimes FATAL disease because of Lupus characteristics of invisibility. Many warriors feel like no one will ever know how they are really feeling or ever fully understand that they look fine and feel like death itself.

This is your nineteenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

Put On Purple

LET PUT ON PURPLE BEGIN! You all are looking fabulous for Lupus Awareness! Making Lupus Awareness POP today! Share.Tag.Post

#LUPUSINCOLOR #POPLUPUSINCOLOR #PUTONPURPLEFORLUPUS

May 18 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 18 Lupus Fact

Public awareness of lupus remains low. Nearly two-thirds of the public knows little or nothing about the disease beyond the name. We need your help to change that. Join the growing number of individuals, communities, media and celebrities that pump up the purple for lupus awareness month and tell people how they can donate or get involved. Put On Purple is a dedicated day to RAISE LUPUS AWARENESS!

This is your eighteenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness