Butterfly Flight Lori Heller

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Lori Heller

My name is Lori Heller, I was diagnosed with Lupus at the age of 39 in the year 1999. It took almost 10 years for me to get a diagnosis. I have been managing my illness now for 20 years. I was also diagnosed with Antiphospholipid syndrome, anticardiolipin syndrome, vasculitis , Sjogrens, and Hashimotos thyroiditis. My lupus affects my brain mostly . I have had 4 strokes since my diagnosis. Lupus pneumonitis, and many episodes of where I cannot move my arms and legs and this will resolve in a couple of weeks. Now that I am 59 years old it is affecting my cognitive and memory . I am pretty much home bound at this point and need assistance getting out . I have to use a cane or a walker to walk long distances. I have tried all the immunosupressants and failed . I am currently on a long term dose of Prednisone which is helping. But will start weaning soon due the long term affects.

I am a single mom with 3 adult children, and 3 grandsons. I worked as a Nurse since 1981 caring for chronic ill seniors. I then worked in the insurance industry assisting patients with chronic illness get the appropriate medical care. I stopped working last year due to advancement of my Lupus. My Rheumatologist tells me that I have severe lupus at this time. I am fortunate that it does not involve my kidneys and heart at this time.

I recently started a facebook page Lori’s Lupus Journey to start with education and awareness of Lupus. Many people know the name of Lupus but do not know what it is.

Lupus In Color is excited to present Lori Heller’s story to the world. As a Lupus Warrior he/she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Lori Heller . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Lori Heller’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

May 31 Lupus Fact

Butterflies of Hope Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a time

Let this butterfly flutter all over cyberspace!

May 31 Lupus Fact

Lupus Awareness Month Recap!

Lupus is one of the cruelest, most mysterious diseases on earth—an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. Research shows lupus is more pervasive and more severe than people think, and has an impact that the public doesn’t realize. You have changed that! By helping Lupus In Color raise awareness of lupus and showing support for those who battle its brutal impact.

Some facts we have shared about lupus through Butterflies of Hope Flight of the Butterflies…

• Lupus is a chronic and complex autoimmune disease, lupus can affect the joints, skin, brain, lungs, kidneys, and blood vessels, causing widespread inflammation and tissue damage in the affected organ.
• Anyone can get lupus, but it most often affects women. Lupus is also more common in women of African American, Hispanic, Asian, and Native American descent than in Caucasian women.
• An estimated 16,000 people develop lupus each year but Lupus awareness is lacking.
• Lupus is more prevalent than AIDS, sickle-cell anemia, cerebral palsy, multiple sclerosis and cystic fibrosis combined. Lupus affects 1 out of every 185 Americans.
• THE MOST COMMON SYMPTOMS OF LUPUS ARE: EXTREME FATIGUE (TIREDNESS), HEADACHES, PAINFUL OR SWOLLEN JOINTS, FEVER, ANEMIA (LOW NUMBERS OF RED BLOOD CELLS OR HEMOGLOBIN, OR LOW TOTAL BLOOD VOLUME), SWELLING (EDEMA) IN FEET, LEGS, HANDS, AND/OR AROUND EYES, PAIN IN CHEST ON DEEP BREATHING (PLEURISY), BUTTERFLY-SHAPED RASH ACROSS CHEEKS AND NOSE, SUN- OR LIGHT-SENSITIVITY (PHOTOSENSITIVE), HAIR LOSS, ABNORMAL BLOOD CLOTTING, FINGERS TURNING WHITE AND/OR BLUE WHEN COLD (RAYNAUD’S PHENOMENON),MOUTH OR NOSE ULCERS
• The history of lupus begins in 1828 when the French dermatologist, Biett described the disease. For the next 45 years, studies of the disease showed nothing more than descriptions that emphasized skin changes. In the mid 1800’s, Pierre Cazenave was the first person to have a comprehensive description of lupus. The disease was named because of a wolf-bite shaped rash (the butterfly rash) that appears across the nose and cheeks of many lupus patients. “Lupus” is the Latin word for wolf.
• Research suggests 4-22% of those with lupus are male. Men develop the same typical clinical manifestations of lupus as women, yet certain key symptoms may be different. Kidney and skin involvement, for example, may be more common among men with lupus.
• Lupus can be difficult to diagnose as the symptoms come and go and mimic many other illnesses. It can take 3-5 years for a firm lupus diagnosis. Lupus is NOT AIDS. Lupus is NOT cancerous, NOT contagious or rare.
• It took 50 years to create a drug that targets lupus specifically. The IV-administered drug belimumab, known as Benlysta, approved by Food and Drug Administration (FDA) in March 2011, is the newest lupus treatment. It works by suppressing overactive immune-system components known as B-cells.
• Lupus is a disease of flares and periods of quiescence (quieting). Lupus flare-ups can be mild, or they can be severe. At least 75% of people with lupus have arthritis and skin rashes. Half have kidney problems. Cardiovascular issues can occur more in people with lupus and this with lupus are also more vulnerable to infection than most people.
• May 10 is World Lupus Day. A day to help us celebrate warriors and spread awareness. World Lupus Day was created to help all to understand that this seemingly random grab bag of symptoms is actually a life altering, debilitating, chronic autoimmune disease suffered by approximately 5 million people worldwide, with 1.5 million of them living in the United States alone.
• About 50 percent of people with lupus have antiphospholipid antibodies. Antiphospholipid antibodies interfere with the normal function of blood vessels and can lead to narrowing of the blood vessels or blood clots. These complications can lead to stroke, heart attack, and miscarriage.
• Hair loss due to systemic lupus is known as “telogen effluvium” and is basically due to the insult of being very ill. Hair loss tends to be diffuse, however, it may be most pronounced around the front areas of the scalp. Patchy hair loss can also be the result of a flare-up in lupus disease activity. Hair typically grows back when lupus is well controlled or in a quiescence.
• Raynaud’s syndrome is a condition that affects circulation, causing decreased blood flow to the extremities (most commonly the fingers and toes). This can be triggered by several things, including cold weather and stress. Often the person’s fingers or toes will change colors due to the lack of blood flow, causing them to go white, red, blue or purple. Studies estimate that Raynaud’s occurs in up to one-third of people with lupus, usually resulting from inflammation of nerves or blood vessels.
• Living with a chronic illness like lupus can be incredibly challenging and taxing. Not just on your physical health, but on your mental and emotional health, too. It’s normal for a lupus warrior to struggle with feelings of grief, frustration, sadness or hopelessness after being diagnosed with a lifelong condition. Lupus can be unpredictable and its effects far-reaching, so when these feelings persist and a lupus warrior finds themselves struggling with anxiety or depression, they have to find ways to alleviate those feeling to know they are not alone in their fight. Many lupus warriors seek help in support groups, group and personal therapy as well as finding solace in sharing their stories with others.
• Photosensitivity, also known as sensitivity to sunlight, is a common symptom of lupus, as 40 to 70 percent of people find that ultraviolet (UV) rays worsen their symptoms and cause flare-ups. Photosensitivity can affect people with both cutaneous and systemic lupus, causing symptoms such as rashes, fever, fatigue and joint pain.
• There are 4 different forms of lupus, Systemic lupus, Cutaneous lupus, Drug-induced lupus & Neonatal lupus
• “Lupus headache” refers to a specific type of headache that occurs with Lupus warriors where the disease is active and there is actual inflammation around the brain that causes discomfort and headaches.
• Lupus Fatigue is real and over 80% of those with lupus experience fatigue. Complete exhaustion, for those affected by Lupus becomes a permanent part of life. Flare-related fatigue is a most difficult exhaustion. An unpredictable state of increased fatigue during increased inflammation and pain can last for days or weeks. Fatigue is one of the things that is hardest to combat.
• Because lupus can affect so many different organs, a wide range of signs and symptoms can occur. These symptoms may come and go, and different symptoms may appear at different times during the course of the disease. Symptoms vary but can include fatigue, joint pain, rash, and fever. These can periodically get worse (flare-up) and then improve.
• THE DIRECT COSTS OF TREATING LUPUS CAN BE ENORMOUS. THE MEAN DIRECT MEDICAL COSTS IN MODERATE OR SEVERE CASE OF LUPUS IS APPROXIMATELY $22,300-83,000. THOSE WITH A MILDER CASE OF LUPUS IS APPROXIMATELY $8,900-15,000. PEOPLE WITH LUPUS ALSO FACE HIGH ANNUAL PHARMACY EXPENSES, WITH MEAN COSTS RANGING BETWEEN $1,572-13,138.
• Chilblain lupus is a cutaneous form of systemic lupus erythematosus characterized by the appearance of painful bluish-red papular or nodular lesions of the skin in acral locations (including the dorsal aspects of fingers and toes, heels, nose, cheeks, ears, and, in some cases, knees) precipitated by cold and wet exposure.
• Lupus can affect the nervous system and brain. There are several terms doctors use to describe this: neuropsychiatric lupus (NPSLE), neurocognitive dysfunction, or central nervous system lupus (CNS lupus).
• Lupus nephritis is a type of kidney disease caused by systemic lupus erythematosus. Kidney damage is one of the more common health problems caused by lupus. In adults who have lupus, as many as 5 out of 10 can have kidney disease. In children who have lupus, 8 of 10 can have kidney disease.
• Lupus raises your chances of heart disease and stroke. Lupus causes inflammation of the heart or the sac that surrounds it. Lupus can cause inflammation of the myocardium, the muscle tissue of your heart.
• An extremely difficult diagnosis such as lupus can put you into so many emotional phases. Finding coping methods is crucial to keeping a happy life after being diagnosed with lupus. Some of the very first feelings include frustration, sadness, anxiety, and fear of what’s to come.
• LUPUS IS A DISEASE OF FLARES BUT EVERY LUPUS WARRIOR MAY NOT HAVE THE SAME TRIGGERS. A HEALTHY LIFESTYLE REDUCES LUPUS FLARES AND EVERY LUPUS WARRIOR’S FLARES ARE NOT THE SAME.
• The butterfly is the symbol for lupus. Although it is a beautiful symbol, the disease itself is very difficult to live with. The butterfly became the symbol because of the malar rash that presents itself on the faces of lupus warriors. It is called the lupus butterfly rash because of its butterfly-like shape on the bridge of the nose and cheekbones. These rashes are usually red or purple in color in either a blotchy pattern or completely red over the affected area, and can be flat or raised in nature.
• Having lupus can make everyday life challenging. When lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult and sometimes impossible. Since these symptoms aren’t visible, the people around a lupus warrior may have trouble understanding how they feel.
• Lupus fog is a general name for the cognitive impairments that often appear with lupus, including concentration and memory problems, confusion, and difficulty expressing yourself.These cognitive problems are often worse during flares.
• Sometimes lupus can affect men a little differently than women. Symptoms more common in men but also present in women: Pleurisy (inflammation of the sac around the lungs)•Renal (kidney) disease•Discoid lupus (reddish, scaly skin)•Hemolytic anemia (from the destruction of red blood cells)•Lupus anticoagulant (can promote abnormal blood clotting)•Seizures

Thank you for spreading lupus awareness with Lupus In Color. Please continue to get the word out about lupus. Support a warrior, gain and share understanding beyond lupus awareness month.

This is your thirty-first butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

Faces of Lupus Episode 9

Lupus In Color 7th Annual Faces Of Lupus

Social Media Lupus Awareness Campaign

Lupus affects individuals of virtually every age, race, ethnic background and socioeconomic status. Yet, some groups are notably affected with the disease. Lupus is three times more common in African-American women than in white women. It is also more frequent among women of Hispanic/Latina, Asian and Native American descent.

Often, you can look at a Lupus Warrior and never know they are fighting a bitter hard battle daily. It’s important to see the faces that can bear the pain within without showing it to everyone who they come in contact with without.
These are the Faces of Lupus from every walk of life fighting the same battle. Supporting one another in the battle for their lives.
These are the Faces of Lupus, they are brave, courageous and strong!

#LupusInColor #FacesOfLupus #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness

May 30 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a Time
Let this butterfly flutter all over cyberspace!
May 30 Lupus Fact

Sometimes lupus can affect men a little differently than women. Symptoms more common in men but also present in women: Pleurisy (inflammation of the sac around the lungs)•Renal (kidney) disease•Discoid lupus (reddish, scaly skin)•Hemolytic anemia (from the destruction of red blood cells)•Lupus anticoagulant (can promote abnormal blood clotting)•Seizures

This is your thirtieth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

Butterfly Flight Trude Wessel Thilesen

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Trude Wessel Thilesen

This year, specifically the 2nd of May I have had Lupus for 45 years.. And I would like to take part in your campaign Stories of Hope, releasing in May (World Lupus month).

My name is Trude Wessel Thilesen and I live south in Norway in a city named Arendal, and I am invisible sick. An early Spring day in 1974 my life suddenly changed to be worse. I came home from school and was terribly ill. My mother had only one advice and that was to seek a doctor immediately. The doctor concluded very fast that I was seriously ill and I got straight into the children’s section at my hospital (I was only 11 years old). There I got true several examinations and tests. I was there for seven weeks and I specifically remember that I got to celebrate our National Day (Costume Day) the 17th of May there. After the examinations was finished they still could not figure out what was wrong with me. But they knew for sure it was a rheumatic disease I have gotten, but not Rheumatoid Arthritis (RA). So they released me with the medicine Cortisone (Prednisone) in the “luggage”. After treated this way I got much better.

Yes, so much better it went for me that the doctors believed I had gotten well again. But, this was to good to be true, so when I had turned 16 years old this strange disease decided to bloom again with a flare. This time the doctors sent me to a rheumatic hospital in Oslo. They was specialists in rheumatic diseases. I was there for 2 months. Also there I went through many examinations and tests. The last day, the release day, I got to speak with a rheumatologist and this he was now about to tell me should change my whole life. I had got the rheumatic disease Lupus, Systemic Lupus Erythematosus (SLE). This was for me very unknown. What was really this? I finished high school, and which I recently had started that Autumn. So I was on my way into work possibilities. I become a secretary. My first work was at the local police office in my city (Arendal). And my last work was in the biggest hospital in our Capital Oslo.

Yes, I was so versatile that I took part in a travelling (guide) school in Spain. So in 1991 I decided to visit my sister in the States who was there for work. I traveled to New York round trip, alone. I was there for 3 weeks. And together with my sister and our friend we traveled to Washington, New York, Utah, Bryce and Grand Canyon, LA, Hollywood and Las Vegas at the same trip. This was an amazing vacation. But how it went with my disease Lupus, really? The answer is – terrible. I came home and after a week I got so sick again that the way to the hospital was the only solution. At that hospital (Oslo)l I was a regular patient. But my normal rheumatologist was on vacation so another took the management. I did know him from I was his patient when he worked in Arendal hospital. At the hospital it only went one way with me – down. The rheumatologist stated that I gotten a kind of a infection in my left hand. It looked like I have gotten a insect bites of a kind. To ensure he was right he consulted a surgeon. But this doctor absolutely did not agree with my doctor.

This was Lupus related he said . But despite of this statement my rheumatologist was sure he had the right answer. And he decided to give me antibiotics intravenous 3 times a day for the so-called infection. This was not for any help since the cause of my big health problem was my disease – Lupus (Wolf in Latin). So then my body reacted with activating my brain Lupus (CNS Lupus) and I completely stopped sleeping and started acting strange. This rheumatologist did not take any consideration into the fact that my Lupus was very active. I had fever and terrible pain. And besides that my hands was very painful since I had gotten Jaccaud’s Arthtopathy, a strange part of Lupus only a very few gets. So after a while, when I was not getting any better, he decided to put me into a psychiatric section, against my will, in another hospital. I was unaccountable he said.

So after my mother had tanken the long trip from Arendal to visit her sick and oldest daughter he made it up to her to follow me (by taxi) to this hospital, unfamiliar to me. I stayed there for one week, and it was horrible. My mother saw I was suffering. So after one week she took me out on her responsibility. So finally we could travel back home to Arendal. And I got the right treatment for my Lupus by my rheumatologist there, he did know me and my kind of Lupus.

CNS Lupus (Neuropsychiatric Lupus) is a serious condition which must be treated with Steroids (Cortisone). And one time it happened that they took it away from me. But, my mother told my rheumatologist who then told them to give it back to me, very dangerous to quit suddenly after long term use.

Finally I got better and I could start working again. This time I got a new job at children’s section at SMR (Senter for Mental Retardation). This was a very interesting work I had for 2 Professors. But suddenly I got sick again. I got a sore throat. And once again I had to go to the hospital. This time my body had got enough sickness. So I had only the solution to travel back home to Arendal. After one year back home I decided to apply for disability, in the age before I was getting 30.

In 1992 I finally get to know what kind of disease I had. Since this year the first conference against Lupus took part, and I was one of them who was delighted to come. And some years later, in 1996, I started a Lupus group in my county (Agder Lupusgruppe av NRF), a part of the Norwegian Rheumatism Association.

Thank you for your time.

Best Regards
Trude Wessel Thilesen
(Norway)

Lupus In Color is excited to present Trude Wessel Thilesen’s story to the world. As a Lupus Warrior he/she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Trude Wessel Thilesen . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Trude Wessel Thilesen’sFLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Dion Langley

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Dion Langley

I was diagnosed with Lupus back in 2010 and it was very painful at the time because I wasn’t aware of what Lupus was. I spent many days crying and wondering to myself why me? But I prayed and God showed me my purpose through me having Lupus. It’s a testimony for me and being able to share my story to others especially to kids and adults to let them know that having Lupus doesn’t stop me from achieving my dreams. My job as a professional drummer, I have to use my upper body constantly. “If I’ve had a show or just a long studio session, I know I will need a pain pill,” and certain shows can last for a long time depending on the venue.

“Sometimes your body is tired but your mind has to catch up with your body,” To relax my mind, I often takes a hot shower, uses a heating pad and spends 30 minutes listening to music, reading or watching a relaxing movie. I also experiments to find the right position for my specific pain: “I know I can’t lie flat a lot of times because of the pain and sometimes I have to lay in a uncomfortable position at times but people will never understand how my body feels at times.

It took me a while to adjust because I have to take a lot of meds daily and as a child I never been a fan of taking pills. Some days I feel perfect then other days I barely have energy to move and I feel as if I can’t get enough rest but that’s just how my body feels. So when I have days like that all I can do is just relax.

Over the years I’ve been hospitalized on various occasions and the recovery process is draining but I keep pushing because I won’t let this defeat me. I’m blessed to be able to play drums each day and share my gifts to the world.

I have good days and bad days but avoiding stress as much as possible helps both with the pain of lupus and with sleep. In my opinion “You cannot be stressed at all, “Surround yourself with positive people. Avoid people that bring you down. You have to get rest and plenty of it. Also eating properly is a plus.

I’m on record to say I’m praying for a cure and I’m striving each day to educate myself more on this disease. I would like to share my story to the world thru playing drums and hosting clinics in various places to show people that although I have Lupus I’m still able to succeed and this won’t get me down.

Lupus In Color is excited to present Dion Langley’s story to the world. As a Lupus Warrior he/she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Dion Langley . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Dion Langley’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

May 29 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 29 Lupus Fact

Lupus fog is a general name for the cognitive impairments that often appear with lupus, including concentration and memory problems, confusion, and difficulty expressing yourself.These cognitive problems are often worse during flares.

The exact cause of lupus fog is hard to pin down. In some cases, lupus can damage cells in the brain, leading directly to cognitive problems. However, in most cases other factors play a role, including fatigue, stress, and depression. Lupus fog is sometimes worse in people who also have fibromyalgia. Although it’s possible that side effects from drugs such as NSAIDs or steroids could worsen lupus fog, experts say that switching medicines rarely resolves the problem.

This is your twenty-ninth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

HOPE HOLD ON PURPOSELY EVERYDAY

Butterflies of HOPE H.olding O.n P.urposely E.veryday


Holding • Holding on to the power of health and wellness beyond lupus. Believing that it is possible to be better, to be well, even when we are at our worst. Holding on to the possibility of a cure and complete total healing.

On • On top of advocacy for yourself. On top of education about your own lupus issues. On the ball with communication with your doctors, family and friends about all that goes on with you as you battle lupus. Being On top of being honest with yourself and others about how you really feel in order to not overdo it.

Purposely • Purposely living in spite of Lupus. Living in the purpose of getting better a nanosecond at a time. Being purposeful in reminding yourself of the importance of being well mentally and spiritually even when your body is not cooperating and you don’t want to be. Staying determined to stay purposeful in thinking right so that your body will respond with feeling right beyond lupus. Staying purposeful in your plan to defeat lupus at every turn. Living in purpose beyond lupus to lead a purposefully powerful life.

Everyday • Every day in every way making a conscious effort to get up, get dressed, get out and live beyond lupus. These everyday activities make a huge difference in your fight. Lupus can stifle your will to live. It can take your everyday and create a plethora of feelings that remove your spark to live. Every day you must make a concerted effort to change the way you think, act and react to living with lupus. Every day you must realize that live is amazing beyond lupus’ constraints and live with everyday activities that create a more positive tone in your fight. Every day you have to live like you mean it.

HOPE
Holding On Purposely Everyday
Live in HOPE, Fight in HOPE
#LupusInColor

Butterfly Flight Srushti Gangawanwale

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Srushti Gangawanwale

FOBSGangawanwale

SGangawanwale

My first blood test was like when I was in 7th or something. I hadn’t gotten my period yet and somehow my hemoglobin was low. It was like 7.5 and my mother was worried and she took me to a doctor and the gave me some tonic. But, it didn’t really help.

I started to look yellow, my eyes, my skin generally looked yellow. I thought it was just a passing phase of yellowness on my skin. I was living under the delusion that things are fine. Even everyone in my house just overlooked it.

In December 2013 I got a high fever and I was really unwell. I went to a doctor and he said I have jaundice.

All the time I was trying to reassure my mother, “Oh, I’m fine, I’m not sick! But I was wrong.

Lupus In Color is excited to present Srushti Gangawanwale’s story to the world. As a Lupus Warrior he/she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Srushti Gangawanwale . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Srushti Gangawanwale’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness