Lupus Survival

GUIDE TO SURVIVING LUPUS: Cry when you need to. Scream. Shout. Lay on the floor. Sob in the shower. Be still. Run. Walk. Create. Live in your truth. Share your victories without fear. Listen to your body. Release your pain. Read. Seek support. Be a support. Be a friend. Find friends. Be real. Be honest about what you need and what’s going on with your body. Be courageous. Be strong. Be compassionate. Be vulnerable. Don’t be hard on yourself. Breathe. Don’t fear the hard times. Always understand how amazing you are fighting day by day. #LupusInColor

30 Day Walk Challenge

We hope you all have been walking daily with the Lupus In Color 30 Day Walk Challenge. 30 minutes a day for 30 days. The purpose was to create a habit beyond all the things in your day to get moving! Here is some information on what walking can do. We have one day left to the challenge, but you have already hit 30 days of walking 30 minutes a day!! YOU DID IT!!!!! WELL DONE!!! #LupusInColor

Walk Challenge App

Almost time to begin our challenge!
We will be using the MapMyWalk app to log in our workouts. You can download it for FREE at your app store on your phone. You do not need to pay extra for walkout logs.

Once you download the app please do a search for me RACQUEL DOZIER ask to be a friend and I will add you to the LUPUS IN COLOR 30 DAY WALK CHALLENGE. Here you will log your walks or activity that we all can see. #LupusInColor #WalkItOut #30DayWalkChallenge

Toni Braxton Talks Lupus

Many may have gone through this, are going through this or have had these feelings. It’s important to talk it out and really understand your feelings and how it relates to what’s going on on your life. #LupusInColor

Video portion courtesy of Red Table Talk we do not own the right to the video or its contents.

Manage Lupus

4 Steps to Manage Your Lupus for Life

1. Learn About Lupus – Learn as much as you can about lupus and the effects it can have on your body. Don’t be overwhelmed or angry as you learn. Since lupus is a disease of varying issues it’s important to know that every lupus journey is different.

2. Know Your Lupus ABCs – A Know ALL of your tests and levels. Work with your doctor to find out what tests they are taking and why. Keep on track of your levels as they show inflammation and other things that happen in your body. B BLOOD PRESSURE If your blood pressure gets too high, it makes your heart work too hard. It can cause a heart attack, stroke, and damage your kidneys and eyes. C CARING for your self. Find out how you can properly care for yourself while battling lupus on a daily basis.

3. Learn How to Live with Lupus -It is common to feel overwhelmed, sad, or angry when you are living with lupus. Learn to cope with lupus through limiting your stress, eating healthy, being active and sticking to the plan of treatment every day.

4. Get Routine Care to Stay Healthy – See your health care team to find and treat any problems early. You will see many doctors, so make sure you are communicating well with every doctor and keeping them in your lupus loop together. Don’t feel intimidated to be your best healthcare advocate.


Dear Concerned Citizen

Dear Concerned Citizen,

It’s easy for someone to tell you don’t take the meds they are only making you sicker. It’s easy for someone to tell you that the pharmaceutical companies are making money on creating medications that make you dependent on them. It’s easy for people to pass judgment because you choose to take the meds that keep you alive and operational. It’s easy for people to say you should just go with natural products, or just smoke weed, or change your eating habits and you’ll be cured. It’s easy for people to say your doctor is taking you for a ride pumping you with meds that are obviously not working because you are still sick.

It’s easy when they are not battling day to day. When they don’t have to fight to do simple things like get up, brush your teeth, interact with your family. It’s easy when they don’t know anything about what lupus does to your body and how it can ravish and destroy the little soul left after pain killed the rest. It’s easy to say things that don’t help but hurt; Or to speak without thinking how it will affect the person that is not just sick but chronically ill.

It’s not easy to make the health choices you must make to survive to live a normal life in spite of lupus. It’s not easy to come to the conclusion that your life is forever changed by something that can potentially take your last breath. It’s not as easy as just doing a,b,c or d. If it was we would do it all simply and enjoy a cure. So many people give advice with no knowledge or skills that can assist.

So, before you decide to give unsolicited medical advice, please take a moment to think before you speak, know before you make judgement and learn before you tell others how they should take care of their own health. Your support is appreciated, your judgment and lack of knowledge of what my health care needs are is not.

Love as we Fight,

Lupus Warriors World Wide

Meditation To Cope

We have seen “mindfulness” and meditating being written about everywhere, and there’s good reason. By taking a few minutes during the day to pause, breathe deeply, and relax, we can “quiet our minds.” It helps to lift mood, reduce fatigue and encourage feelings of peace, calm and gentleness toward the self.

The mind plays an important role in our capacity to cope with disease and pain.

When it is successfully practiced by those living with lupus, meditation has the capacity to reduce stress levels and anxiety, to help bring depression and mood disorders under control, and to change the perception of pain. In addition, meditation can help lupus warriors who suffer from a long-standing problem: insomnia. Since insomnia may be related to the pain, anxiety, or neuropsychiatric symptoms, meditation, mindfulness or prayer may help. It stands to reason that helping to bring these symptoms under control with meditation and other practices could bring lupus warriors relief from insomnia.

Why meditate?

Meditation is a powerful tool that can reduce stress, help our physical health, ease chronic pain and support better sleep. Meditation has also been proven to improve mental and emotional wellbeing.

If you’ve never tried to meditate, don’t worry. It’s incredibly simple to start:

1.Find a quiet spot where you will not be interrupted or distracted.

2.Sit or lie down in a comfortable position. Feel free to use pillows to make your experience more enjoyable.

3.Make no effort to control your breath, simply breathe normally.

4.Bring your attention to your breath. In and out. In and out.

5.Bring your attention to your body and thoughts.

6.Bring your attention to any emotions that are present.

7.Be kind to yourself.

There is no right or wrong way to meditate. Wherever your mind wanders, it’s okay, simply return your mental focus back to your breath. Whatever emotions come up, simply be with them. Some people feel physical energy moving through their body, and others feel sadness, anger, or even laughter come through. The key is to be kind and gentle with yourself. Start in small increments and work up to more time as you become more acclimated. A good beginning goal is 2-5 minutes. Set a timer so you don’t have to wonder about an end time.

If you’re just listening to all the noise in your brain and being reactive, you’re gonna lose it. That’s normally where people live. Being able to find a place of stability outside of that noise means first disengaging and understanding that it’s noise and it’s not you.


Lupus Judgements

I understand how this Lupus Warrior feels and I applaud her for getting this issue out to the public. But, we as warriors must NOT allow anyone to make us feel like we are unworthy or a freak. We have to work at keeping our own self esteem up and stay encouraged beyond the ignorance of others. When we are faced with situations we have to remember that everyone does not know about lupus, so we can’t automatically assume they are trying to be hurtful in their approach to us. When we encounter people that don’t understand or know about lupus it is our duty to educate them to empower ourselves.

73% of Americans between the ages 18-34 have either not heard about lupus or know little or nothing about lupus beyond the name.

Judgements and discrimination because of scars from lupus is real. Not just at the nail shop but at the grocery store, at the mall, at the movie theater. Lupus Warriors even face these same judgements and issues at hospitals and their doctors offices. All because many still do not know what lupus is. All because many continue to believe that lupus may be in someone’s head. All because people are not educated enough to understand lupus’ burdens. Another added mental strain to fighting lupus.

Video courtesy Fox11 Laguna California

For the record:

Lupus is a chronic, autoimmune disease which causes inflammation of various parts of the body, especially the skin, joints, blood and kidneys. The immune system normally protects the body against viruses, bacteria and other foreign material. In an autoimmune disease, like lupus, the immune system loses its ability to tell the difference between foreign substances and its own cells and tissues. The immune system then makes antibodies directed against itself.

Lupus is NOT infectious, rare, or cancerous.

Lupus is more prevalent than AIDS, sickle-cell anemia, cerebral palsy, multiple sclerosis and cystic fibrosis combined.

Some individuals have or will develop a type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs.

#LupusInColor #Educate #Inspire #Encourage #Empower

Having A Moment

Having a moment….Those sobering moments when you realize your chronic illness is real that lupus is not a joke. When you are thankful for insurance coverage and medicines in order for you to function in some sense of normalcy. This is my life. #LupusAwareness #LupusInColor