Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3

Manage Stress

Stress can really make lupus worse. Manage your stress through silent time, daily walks in nature, relaxation, meditation and/or yoga. Remember that stress can be just as inflammatory to the body as your food. Take care of yourself in all forms to experience the benefits of a healthy, anti-inflammatory life, both on and outside your plate. #LupusInColor

Butterfly Flight Melissa Evans

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Melissa Evans

I reflect back to the day I was diagnosed early 20’s young mom just had my second child who was clinging onto his life in NICU 29 weeks old due to my cardiomyopathy taken early I was young body failing doctors searching for answers. I can’t believe almost twenty years ago the lupus diagnosis was so grim. I was actually told my life expectancy was just 40 years old. Through the years I struggled diagnosed with overlapping diseases, anti phospholipid syndrome which causes blood clots, IVC filter placed in my chest that same filter that was suppose to save almost killed me fracturing breaking into pieces a strut (leg of filter) migrated to my lung. I’m a walking miracle! Diagnosed with RA referred in those with lupus as “Rupus”. Struggled to raise my two boys fought every step of the way. Went back to college got a degree at 28. Divorced by the time I was in my 30’s, I never gave up on hope! FAST FORWARD! I am now 39 will be 40 in July yes 40! I have defied the odds looking back to a time I once walked with a cane had a port in my chest daily injections that is no longer. Cane is retired port is out, I take a drug Xererlto not available my early years for my blood condition freeing me from painful shots I had to take. No more admissions on heparin drips which can scary your blood can’t be too thin but can’t be too thick a fine science hematology is. Trial will be soon the fractured IVC filter that almost took my life holding manufacturer responsible for the flaws of a device they clearly knew existed and turned a blind eye too. I’m on a infusion Benlysta which just came out 5+ or so years ago which for many helps Lupus, Benlysta gave me my life back has basically put my lupus in a calm sleep in a remission of sorts. I require monthly infusions to many this drug is a wonder drug! Last but not least save the best for last my eldest son graduating this year my youngest will be 16. I’m a proud mom of two amazing young men, I also found love again a best friend who supports me through my lupus journey’s always by my side.

Moral of the story NEVER give up HOPE!

#lupus #lupuswarrior #lupusawareness #lupusawarenessmonth #hope #fighter

Lupus In Color is excited to present Melissa’s story to the world. As a Lupus Warrior he is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Melissa Evans.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Mellisa’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬

As You Battle

As you battle lupus it’s hard to take a day off be it from work, life or the mental and emotional strain lupus puts on you. You have to train yourself and make conscious efforts to live in spite of it all! #LupusInColor

Love Yourself Beyond Lupus

“To be beautiful means to be yourself. You don’t need to be accepted by others. You need to accept yourself.”

~Thich Nhat Hanh~

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It can be a very hard task to love yourself beyond the pain that lupus brings, but it is necessary. There are a couple of steps that you can take to begin the process of just loving who you are beyond lupus.

1. Begin your day with love.
In order for you to get through the hard days you have to start your day in meditation and positive thoughts to saturate your being with love. You have to spend time focusing inward daily to clear the path to a better day beyond your pain.

2. Speak happy over you.
Yes it is difficult to deal and fight lupus day to day, that is the reality. You have to use positive affirmations sometimes just to get the day started in the most productive way you can. Don’t continue to self criticize yourself and make your moments even more difficult than they need to be.

3. Get honest with how you feel.
You have to get honest as to how you feel about your battle with lupus. Acknowledge those feelings and begin to process them so you can begin to heal emotionally. The masks you place to hide lupus must be removed in order for you to heal emotionally to deal with lupus positively and purposefully. Realize how important your emotional state is to healing your body beyond the constant pain.

4. Allow yourself to relax.
Breathe, relax and let go. It can be hard with the pain but it is necessary to stop fighting against yourself in order to understand and deal with your emotions during pain. You have to let your body and spirit rest before your body and mind force you to.

5. Be patient with yourself.
Stop blaming you for things that you had no control of. It is not your fault that you have lupus. Don’t be so hard on yourself that you create a double fight with your body and spirit. Be patient with yourself in going through the process of dealing with a chronic illness.

6. Accept Uncertainty.
Lupus is so unpredictable and as a warrior you need to accept that. It’s a hard pill to swallow, but it has to be accepted so you can live in your present moment in peace.

7. Forgive yourself.
Forgive yourself for being your harshest critic during your most difficult times. Having lupus is no easy feat but forgiving you for not being able to do when you want to will give you the strength to accept it all and move peacefully in your moments. Forgive yourself for judging you in the times when you need to love you most.

8. Be Real.
Be real about how you feel at all times. The time has come to stop hiding behind the masks of lupus. Be real with how you allow yourself to be seen, known and heard. Get comfortable allowing people in your world of lupus pain so you are not creating a super human to those who misunderstand what lupus is.

9. Focus on the positive.
Get in your head and heart that you are amazing beyond lupus. Yes you have pain which can create some major setbacks, but you are still able to fight.  Get positively in tune with you.

10. Seek professional help.
Lupus is hard to deal with and it can create in you a self-rejection and neglect that can be extremely painful. You deserve to be happy beyond lupus. You have a right to be accepted and loved by you. If necessary, seek help from a support group, counselor or coach. It will be the best investment you will make.

Loving yourself can be one of the hardest things to do while battling lupus. We get down on ourselves and notice every flaw. We focus on who we used to be instead of the greatness of who we are in this moment. You have to work at reconditioning your love of self. Begin to do what you need to do to make yourself feel good to make yourself happy. Don’t try  and be perfect, but be proud of who you are beyond the limits lupus imposes.

~Racquel H. Dozier~  #LupusInColor

Why Complain

WARNING IF YOU DON’T LIKE CURSING KEEP SCROLLING:

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor

 

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Butterflies of HOPE 

Butterflies of HOPE H.olding O.n P.urposely E.veryday


Holding • Holding on to the power of health and wellness beyond lupus. Believing that it is possible to be better, to be well, even when we are at our worst. Holding on to the possibility of a cure and complete total healing.

On • On top of advocacy for yourself. On top of education about your own lupus issues. On the ball with communication with your doctors, family and friends about all that goes on with you as you battle lupus. Being On top of being honest with yourself and others about how you really feel in order to not overdo it.

Purposely • Purposely living in spite of Lupus. Living in the purpose of getting better a nanosecond at a time. Being purposeful in reminding yourself of the importance of being well mentally and spiritually even when your body is not cooperating and you don’t want to be. Staying determined to stay purposeful in thinking right so that your body will respond with feeling right beyond lupus. Staying purposeful in your plan to defeat lupus at every turn. Living in purpose beyond lupus to lead a purposefully powerful life.

Everyday • Every day in every way making a conscious effort to get up, get dressed, get out and live beyond lupus. These everyday activities make a huge difference in your fight. Lupus can stifle your will to live. It can take your everyday and create a plethora of feelings that remove your spark to live. Every day you must make a concerted effort to change the way you think, act and react to living with lupus. Every day you must realize that live is amazing beyond lupus’ constraints and live with everyday activities that create a more positive tone in your fight. Every day you have to live like you mean it.

HOPE

Holding On Purposely Everyday

Live in HOPE, Fight in HOPE
#LupusInColor