MIDWEEK REFUEL April 1

It’s hard not to let the issues of the world to consume you. It’s especially hard when you are fighting for your life as you defeat lupus daily. Fear of the unknown can really create a lot of anxiety and stress and this can cause massive lupus flares.

However there are things you can do to alleviate your anxiety, your fears and stress around what’s going on around you. And, it’s not just about quelling the fear in the moment, but learning coping skills that can last you a lifetime.

So, today’s Midweek Refuel focuses on garnering HOPE, H.ealing O.ver P.ain E.veryday in a time when anxiety and stress can try to overtake you. We know that anxiety, fear and stress is normal and it’s okay to feel these emotions. But, it’s sometimes hard to detach from those emotions especially as you battle lupus daily.

In the next few moments I want to provide some tips that may be able to help you through some difficult emotions and maybe a few stressful days. Some things you may already be doing others you may want to try. I just want you to know you can remain hopeful even during times of immense stress and anxiety.

1. Reconnect With Nature: All you have to do here is walk out your front door. Whether it’s just a few deep breaths as you stand outside your front door, or a short time as you sit on a patch of grass, or simply taking a walk through your neighborhood… Reconnecting with nature gives you the opportunity to enjoy simply being alive. We can’t all stand on the moon and exclaim how beautiful our earth is, but we can all take one minute to surround ourself with the power of nature. It has a way of creating a perspective in life that is real, that is powerful and strong.

2. Focus On Spirit: The surest way to alleviate stress and suffering is to find meaning in it. Whether it’s through mediation, personal prayer, asking friends and family to pray for you, cultivating your own sense of spirit surrounding and supporting you, these are all such important ways to alleviate stress, anxiety and fear and encourage hope. Finding a deeper, spiritual meaning in what you are going through is important in instilling hope and faith to see those difficult moments through.

3. Play Music: If you are feeling stressed or depressed, especially since you aren’t able to leave your current surroundings, put on some music and allow it to sweep through your soul and lift your spirits higher. Music is an amazing healer and can meet you where you are.

4. Reach Out To Your Support System: There IS a support system around you, even if you don’t think you have a friend in the world. If you are having a stressful crisis, ask for help. There are butterfly angels that are out there waiting to embrace and help you. They need to support you and they need your support as well. There is power in knowing you are not alone.

5. Move And Get Moving: There is something about a fresh start during times of stress that is symbolic. It can help you move towards healing and help usher in new, positive and hopeful energy instead of feeling stuck battling lupus. You may not be able to physically move out if the space you are in but, you can go through your entire home with the idea of bringing in fresh energy. You can freshen up the plants in each room, rearrange whatever furniture you can, add a mirror or two and burn candles in the evenings to help create a new flow of refreshing light through old, dark and depressing spaces. Doing this in turn gets you moving which will help create endorphins that can bring you hope and happiness.

6. Focus On The Possibility

When the going gets tough, skepticism and cynicism can take center stage and can literally take over your life. The naysayers within you will scream things like “it can’t be done,” “we’ll never make it,” “it’s impossible,” etc. You have to be willing to think out of the lupus box and shut the naysayer in you down. Focus on what really matters and why it matters. We feel hope when we connect with that part of ourselves that wants to make the possibility a true reality.

7. Give Yourself Some Compassion: “You can search throughout the entire universe for someone who is more deserving of your love and affection than you are yourself, and that person is not to be found anywhere. You yourself, as much as anybody in the entire universe deserve your love and affection.” ~Buddha~ Self-criticism is a common problem, especially as you fight lupus for your life. It not one to be overlooked and the way you talk to yourself plays a vital role in well-being and healing in your lupus fight. It’s important to overcome your inner critic by strengthening your self-compassion and fostering a sense of acceptance beyond the anger and sadness we can have as we battle lupus.

Bringing a genuine sense of hope and optimism in your life can truly make a difference in your stress and anxiety. It can help you heal beyond the grips of lupus. Realizing that you have choices, power, and the the strength to continue fighting, goes a long way towards re-claiming a sense of hope.

Reclaiming your Healing Over Pain Everyday is a most important part in your lupus fight. It will lead you to have a more fulfilling life beyond the grips of lupus. It’s time for you to get back a sense of hope that will last a lifetime. It’s up to you, it’s your choice and you have the power to make it so.

#LupusInColor #MidweekRefuel #HOPE #healing #over #pain #everyday

HOPE HOLD ON PURPOSELY EVERYDAY

Butterflies of HOPE H.olding O.n P.urposely E.veryday


Holding • Holding on to the power of health and wellness beyond lupus. Believing that it is possible to be better, to be well, even when we are at our worst. Holding on to the possibility of a cure and complete total healing.

On • On top of advocacy for yourself. On top of education about your own lupus issues. On the ball with communication with your doctors, family and friends about all that goes on with you as you battle lupus. Being On top of being honest with yourself and others about how you really feel in order to not overdo it.

Purposely • Purposely living in spite of Lupus. Living in the purpose of getting better a nanosecond at a time. Being purposeful in reminding yourself of the importance of being well mentally and spiritually even when your body is not cooperating and you don’t want to be. Staying determined to stay purposeful in thinking right so that your body will respond with feeling right beyond lupus. Staying purposeful in your plan to defeat lupus at every turn. Living in purpose beyond lupus to lead a purposefully powerful life.

Everyday • Every day in every way making a conscious effort to get up, get dressed, get out and live beyond lupus. These everyday activities make a huge difference in your fight. Lupus can stifle your will to live. It can take your everyday and create a plethora of feelings that remove your spark to live. Every day you must make a concerted effort to change the way you think, act and react to living with lupus. Every day you must realize that live is amazing beyond lupus’ constraints and live with everyday activities that create a more positive tone in your fight. Every day you have to live like you mean it.

HOPE
Holding On Purposely Everyday
Live in HOPE, Fight in HOPE
#LupusInColor

Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3

Manage Stress

Stress can really make lupus worse. Manage your stress through silent time, daily walks in nature, relaxation, meditation and/or yoga. Remember that stress can be just as inflammatory to the body as your food. Take care of yourself in all forms to experience the benefits of a healthy, anti-inflammatory life, both on and outside your plate. #LupusInColor

Butterfly Flight Melissa Evans

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Melissa Evans

I reflect back to the day I was diagnosed early 20’s young mom just had my second child who was clinging onto his life in NICU 29 weeks old due to my cardiomyopathy taken early I was young body failing doctors searching for answers. I can’t believe almost twenty years ago the lupus diagnosis was so grim. I was actually told my life expectancy was just 40 years old. Through the years I struggled diagnosed with overlapping diseases, anti phospholipid syndrome which causes blood clots, IVC filter placed in my chest that same filter that was suppose to save almost killed me fracturing breaking into pieces a strut (leg of filter) migrated to my lung. I’m a walking miracle! Diagnosed with RA referred in those with lupus as “Rupus”. Struggled to raise my two boys fought every step of the way. Went back to college got a degree at 28. Divorced by the time I was in my 30’s, I never gave up on hope! FAST FORWARD! I am now 39 will be 40 in July yes 40! I have defied the odds looking back to a time I once walked with a cane had a port in my chest daily injections that is no longer. Cane is retired port is out, I take a drug Xererlto not available my early years for my blood condition freeing me from painful shots I had to take. No more admissions on heparin drips which can scary your blood can’t be too thin but can’t be too thick a fine science hematology is. Trial will be soon the fractured IVC filter that almost took my life holding manufacturer responsible for the flaws of a device they clearly knew existed and turned a blind eye too. I’m on a infusion Benlysta which just came out 5+ or so years ago which for many helps Lupus, Benlysta gave me my life back has basically put my lupus in a calm sleep in a remission of sorts. I require monthly infusions to many this drug is a wonder drug! Last but not least save the best for last my eldest son graduating this year my youngest will be 16. I’m a proud mom of two amazing young men, I also found love again a best friend who supports me through my lupus journey’s always by my side.

Moral of the story NEVER give up HOPE!

#lupus #lupuswarrior #lupusawareness #lupusawarenessmonth #hope #fighter

Lupus In Color is excited to present Melissa’s story to the world. As a Lupus Warrior he is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Melissa Evans.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Mellisa’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬

As You Battle

As you battle lupus it’s hard to take a day off be it from work, life or the mental and emotional strain lupus puts on you. You have to train yourself and make conscious efforts to live in spite of it all! #LupusInColor

Love Yourself Beyond Lupus

“To be beautiful means to be yourself. You don’t need to be accepted by others. You need to accept yourself.”

~Thich Nhat Hanh~

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It can be a very hard task to love yourself beyond the pain that lupus brings, but it is necessary. There are a couple of steps that you can take to begin the process of just loving who you are beyond lupus.

1. Begin your day with love.
In order for you to get through the hard days you have to start your day in meditation and positive thoughts to saturate your being with love. You have to spend time focusing inward daily to clear the path to a better day beyond your pain.

2. Speak happy over you.
Yes it is difficult to deal and fight lupus day to day, that is the reality. You have to use positive affirmations sometimes just to get the day started in the most productive way you can. Don’t continue to self criticize yourself and make your moments even more difficult than they need to be.

3. Get honest with how you feel.
You have to get honest as to how you feel about your battle with lupus. Acknowledge those feelings and begin to process them so you can begin to heal emotionally. The masks you place to hide lupus must be removed in order for you to heal emotionally to deal with lupus positively and purposefully. Realize how important your emotional state is to healing your body beyond the constant pain.

4. Allow yourself to relax.
Breathe, relax and let go. It can be hard with the pain but it is necessary to stop fighting against yourself in order to understand and deal with your emotions during pain. You have to let your body and spirit rest before your body and mind force you to.

5. Be patient with yourself.
Stop blaming you for things that you had no control of. It is not your fault that you have lupus. Don’t be so hard on yourself that you create a double fight with your body and spirit. Be patient with yourself in going through the process of dealing with a chronic illness.

6. Accept Uncertainty.
Lupus is so unpredictable and as a warrior you need to accept that. It’s a hard pill to swallow, but it has to be accepted so you can live in your present moment in peace.

7. Forgive yourself.
Forgive yourself for being your harshest critic during your most difficult times. Having lupus is no easy feat but forgiving you for not being able to do when you want to will give you the strength to accept it all and move peacefully in your moments. Forgive yourself for judging you in the times when you need to love you most.

8. Be Real.
Be real about how you feel at all times. The time has come to stop hiding behind the masks of lupus. Be real with how you allow yourself to be seen, known and heard. Get comfortable allowing people in your world of lupus pain so you are not creating a super human to those who misunderstand what lupus is.

9. Focus on the positive.
Get in your head and heart that you are amazing beyond lupus. Yes you have pain which can create some major setbacks, but you are still able to fight.  Get positively in tune with you.

10. Seek professional help.
Lupus is hard to deal with and it can create in you a self-rejection and neglect that can be extremely painful. You deserve to be happy beyond lupus. You have a right to be accepted and loved by you. If necessary, seek help from a support group, counselor or coach. It will be the best investment you will make.

Loving yourself can be one of the hardest things to do while battling lupus. We get down on ourselves and notice every flaw. We focus on who we used to be instead of the greatness of who we are in this moment. You have to work at reconditioning your love of self. Begin to do what you need to do to make yourself feel good to make yourself happy. Don’t try  and be perfect, but be proud of who you are beyond the limits lupus imposes.

~Racquel H. Dozier~  #LupusInColor

Why Complain

WARNING IF YOU DON’T LIKE CURSING KEEP SCROLLING:

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor

 

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Butterflies of HOPE 

Butterflies of HOPE H.olding O.n P.urposely E.veryday


Holding • Holding on to the power of health and wellness beyond lupus. Believing that it is possible to be better, to be well, even when we are at our worst. Holding on to the possibility of a cure and complete total healing.

On • On top of advocacy for yourself. On top of education about your own lupus issues. On the ball with communication with your doctors, family and friends about all that goes on with you as you battle lupus. Being On top of being honest with yourself and others about how you really feel in order to not overdo it.

Purposely • Purposely living in spite of Lupus. Living in the purpose of getting better a nanosecond at a time. Being purposeful in reminding yourself of the importance of being well mentally and spiritually even when your body is not cooperating and you don’t want to be. Staying determined to stay purposeful in thinking right so that your body will respond with feeling right beyond lupus. Staying purposeful in your plan to defeat lupus at every turn. Living in purpose beyond lupus to lead a purposefully powerful life.

Everyday • Every day in every way making a conscious effort to get up, get dressed, get out and live beyond lupus. These everyday activities make a huge difference in your fight. Lupus can stifle your will to live. It can take your everyday and create a plethora of feelings that remove your spark to live. Every day you must make a concerted effort to change the way you think, act and react to living with lupus. Every day you must realize that live is amazing beyond lupus’ constraints and live with everyday activities that create a more positive tone in your fight. Every day you have to live like you mean it.

HOPE

Holding On Purposely Everyday

Live in HOPE, Fight in HOPE
#LupusInColor