May 17 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 17 Lupus Fact

“Lupus headache” refers to a specific type of headache that occurs with Lupus warriors where the disease is active and there is actual inflammation around the brain that causes discomfort and headaches.

This is your seventeenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

May 11 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 11 Lupus Fact

About 50 percent of people with lupus have antiphospholipid antibodies. Antiphospholipid antibodies interfere with the normal function of blood vessels and can lead to narrowing of the blood vessels or blood clots. These complications can lead to stroke, heart attack, and miscarriage.

This is your eleventh butterfly of hope.
We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 9 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 9 Lupus Fact

Lupus is a disease of flares and periods of quiescence (quieting).

Lupus flare-ups can be mild, or they can be severe. At least 75% of people with lupus have arthritis and skin rashes. Half have kidney problems. Cardiovascular issues can occur more in people with lupus and this with lupus are also more vulnerable to infection than most people.

This is your ninth butterfly of hope.
We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 7 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 7 Lupus Fact

Lupus can be difficult to diagnose as the symptoms come and go and mimic many other illnesses. It can take 3-5 years for a firm lupus diagnosis. Lupus is NOT AIDS. Lupus is NOT cancerous, NOT contagious or rare.

This is your seventh butterfly of hope.
We need awareness and a cure!
Encourage everyone you know to let it FLY!
#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

LIVIN’ La Vida Lupie

April 27, 2019 • 2p-4:30p

Glen Allen Library Small Conference Room

Butterflies of Hope Lupus Support Group

LIVIN’ LA VIDA LUPIE

Practicing living a mindful Peaceful life beyond lupus.

Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor

It’s okay

Too many times warriors beat themselves up and feel guilty for feeling good and walking in that power. They don’t want to get too excited for fear of the moment changing. As you beat lupus, you are allowed to be okay. Sometimes it might feel like you don’t deserve to feel okay, but you do! You deserve happiness beyond lupus. #LupusInColor

Balance

As you battle lupus it’s all about balance. Balancing your eating habits, your workouts, your spirituality, your mental space, your time, your relationships, your stress and your life. If you don’t have some sort of balance you’ll be in a forever flare. #LupusInColor #Educate #Inspire #Encourage #Empower

LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

7 Tips For The Holiday

Seven Tips to Survive the Holidays With Lupus

The holidays can be fun, but they can also be stressful. While we all are getting so excited about seeing loved ones and hosting events, there can be real fears that can and will bubble up in side of us. There may be fears of missing out, getting sick, or not being able to reach expectations put on us by family members or friends. The anxiety can be high, the worry can be off the charts and the depression may increase.

It’s important as we battle lupus to take it one step at a time. To not become overwhelmed and to not overdo it. If you already find yourself in a crazed frenzy of the holidays, it’s time to take your life and holiday sanity back.

Below are some helpful tips that may help you in finding your calm in the midst of the holiday storm.

1. Remember, you don’t have to look at the whole forest. You don’t even have to look at a whole tree. Focus on the branch, the leaf, the bark. Breaking things down into smaller, manageable tasks is a great way to get started.

2. Make a realistic list. Divide it between URGENT tasks that must get done, stuff that can wait a few days, and things that you should do, but that can be done at any time.

3. Setting a time limit with a built in reward can be a great motivator. For example, put the dishes away while the tea kettle boils. Do a small task, like writing a thank you note, as you can while you wait for food to finish cooking.

4. Ask for help – Reach out. Ask others for help. It can be scary, but more often than not, people are grateful to help. People like to feel useful.

5. Take a deep breath. Take another. Drink some water and open the blinds. Put on fun music. Making your environment welcoming will help get you moving and ready to start the day.

6. Say NO. This one is so hard for so many people especially lupus warriors. If you feel yourself getting stretched thin, or there’s absolutely no way you can do one more thing, you can say NO. Remember you are not responsible for another person’s bad time management. You don’t have to be a “Yes” man or woman to try and please others.

7. PACE YOURSELF AND REST. This is hard especially for lupus warriors that may be feeling better and have some energy. Warriors tend to overdo it and then have to pay for it later on. I know many are excited, but it’s important to pace yourself and rest before you overdo it and end up in a bad flare.

Having lupus is challenging and when the holidays roll around it can be overwhelming and difficult to handle. The main thing to stay holiday flare free is to make it a collaborative effort. Don’t think you have to do it all yourself or make an extravagant party that will take you months to recover from. Let your need for perfection go. Remember, your first priority needs to involve doing what you can to protect your health. Don’t stress out and overwork yourself and you will have a nice holiday season.

#LupusInColor

EffUCeeKay Lupus

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor