You Prove It

People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor

Toni Braxton Talks Lupus

Many may have gone through this, are going through this or have had these feelings. It’s important to talk it out and really understand your feelings and how it relates to what’s going on on your life. #LupusInColor

Video portion courtesy of Red Table Talk we do not own the right to the video or its contents.

Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3

EffUCeeKay Lupus

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor

Purpose In Change

Once you are diagnosed with lupus your life will change. It doesn’t mean it changes for the worse, but it will just change. Things that used to mean so much, will be replaced with things that you need to survive. People that used to take up so much of your time with nonsense, will be replaced with people that work to give your life meaning. The simple things in life will become the best things you’ve ever seen and life as you know it will be filled with special moments in pain that become the best times in your life to grow stronger. Life after a Lupus diagnosis will change, but it doesn’t mean it changes for the worse. Make it your duty to take every moment for what it is. Get up after you’re knocked down, wipe yourself off and begin again. You have changed and it’s okay. Your life still has meaning and purpose in your change. #LupusInColor

Deliberate Self Care

As you battle lupus you can hit some serious emotional ups and downs. You have to deliberately invest in some form of self-care and make sure it’s something that you know will help your mood. Also, remember that tomorrow is another day. #LupusInColor

Manage Lupus

4 Steps to Manage Your Lupus for Life

1. Learn About Lupus – Learn as much as you can about lupus and the effects it can have on your body. Don’t be overwhelmed or angry as you learn. Since lupus is a disease of varying issues it’s important to know that every lupus journey is different.

2. Know Your Lupus ABCs – A Know ALL of your tests and levels. Work with your doctor to find out what tests they are taking and why. Keep on track of your levels as they show inflammation and other things that happen in your body. B BLOOD PRESSURE If your blood pressure gets too high, it makes your heart work too hard. It can cause a heart attack, stroke, and damage your kidneys and eyes. C CARING for your self. Find out how you can properly care for yourself while battling lupus on a daily basis.

3. Learn How to Live with Lupus -It is common to feel overwhelmed, sad, or angry when you are living with lupus. Learn to cope with lupus through limiting your stress, eating healthy, being active and sticking to the plan of treatment every day.

4. Get Routine Care to Stay Healthy – See your health care team to find and treat any problems early. You will see many doctors, so make sure you are communicating well with every doctor and keeping them in your lupus loop together. Don’t feel intimidated to be your best healthcare advocate.

#LupusInColor

Healing

Healing from lupus is not only in the cure. Although the cure is the optimal desire, healing comes mentally, spiritually, emotionally and physically with the mini miracles you receive daily. #LupusInColor