MIDWEEK REFUEL April 1

It’s hard not to let the issues of the world to consume you. It’s especially hard when you are fighting for your life as you defeat lupus daily. Fear of the unknown can really create a lot of anxiety and stress and this can cause massive lupus flares.

However there are things you can do to alleviate your anxiety, your fears and stress around what’s going on around you. And, it’s not just about quelling the fear in the moment, but learning coping skills that can last you a lifetime.

So, today’s Midweek Refuel focuses on garnering HOPE, H.ealing O.ver P.ain E.veryday in a time when anxiety and stress can try to overtake you. We know that anxiety, fear and stress is normal and it’s okay to feel these emotions. But, it’s sometimes hard to detach from those emotions especially as you battle lupus daily.

In the next few moments I want to provide some tips that may be able to help you through some difficult emotions and maybe a few stressful days. Some things you may already be doing others you may want to try. I just want you to know you can remain hopeful even during times of immense stress and anxiety.

1. Reconnect With Nature: All you have to do here is walk out your front door. Whether it’s just a few deep breaths as you stand outside your front door, or a short time as you sit on a patch of grass, or simply taking a walk through your neighborhood… Reconnecting with nature gives you the opportunity to enjoy simply being alive. We can’t all stand on the moon and exclaim how beautiful our earth is, but we can all take one minute to surround ourself with the power of nature. It has a way of creating a perspective in life that is real, that is powerful and strong.

2. Focus On Spirit: The surest way to alleviate stress and suffering is to find meaning in it. Whether it’s through mediation, personal prayer, asking friends and family to pray for you, cultivating your own sense of spirit surrounding and supporting you, these are all such important ways to alleviate stress, anxiety and fear and encourage hope. Finding a deeper, spiritual meaning in what you are going through is important in instilling hope and faith to see those difficult moments through.

3. Play Music: If you are feeling stressed or depressed, especially since you aren’t able to leave your current surroundings, put on some music and allow it to sweep through your soul and lift your spirits higher. Music is an amazing healer and can meet you where you are.

4. Reach Out To Your Support System: There IS a support system around you, even if you don’t think you have a friend in the world. If you are having a stressful crisis, ask for help. There are butterfly angels that are out there waiting to embrace and help you. They need to support you and they need your support as well. There is power in knowing you are not alone.

5. Move And Get Moving: There is something about a fresh start during times of stress that is symbolic. It can help you move towards healing and help usher in new, positive and hopeful energy instead of feeling stuck battling lupus. You may not be able to physically move out if the space you are in but, you can go through your entire home with the idea of bringing in fresh energy. You can freshen up the plants in each room, rearrange whatever furniture you can, add a mirror or two and burn candles in the evenings to help create a new flow of refreshing light through old, dark and depressing spaces. Doing this in turn gets you moving which will help create endorphins that can bring you hope and happiness.

6. Focus On The Possibility

When the going gets tough, skepticism and cynicism can take center stage and can literally take over your life. The naysayers within you will scream things like “it can’t be done,” “we’ll never make it,” “it’s impossible,” etc. You have to be willing to think out of the lupus box and shut the naysayer in you down. Focus on what really matters and why it matters. We feel hope when we connect with that part of ourselves that wants to make the possibility a true reality.

7. Give Yourself Some Compassion: “You can search throughout the entire universe for someone who is more deserving of your love and affection than you are yourself, and that person is not to be found anywhere. You yourself, as much as anybody in the entire universe deserve your love and affection.” ~Buddha~ Self-criticism is a common problem, especially as you fight lupus for your life. It not one to be overlooked and the way you talk to yourself plays a vital role in well-being and healing in your lupus fight. It’s important to overcome your inner critic by strengthening your self-compassion and fostering a sense of acceptance beyond the anger and sadness we can have as we battle lupus.

Bringing a genuine sense of hope and optimism in your life can truly make a difference in your stress and anxiety. It can help you heal beyond the grips of lupus. Realizing that you have choices, power, and the the strength to continue fighting, goes a long way towards re-claiming a sense of hope.

Reclaiming your Healing Over Pain Everyday is a most important part in your lupus fight. It will lead you to have a more fulfilling life beyond the grips of lupus. It’s time for you to get back a sense of hope that will last a lifetime. It’s up to you, it’s your choice and you have the power to make it so.

#LupusInColor #MidweekRefuel #HOPE #healing #over #pain #everyday

Coronavirus & Lupus

Coronavirus Disease 2019 called COVID-19 and Lupus

Coronavirus is a group of different viruses that have a crown-like form (corona). Most types of corona virus cause colds (another virus, rhinovirus, is the most common cause of colds). However, recent years have seen epidemics with more serious infections in the form of SARS (Severe Acute Respiratory Syndrome) 2002-2003, MERS (Middle East Respiratory Syndrome) 2012 and in December 2019, an epidemic started from the city Wuhan in China with the virus covid-19, also called the 2019 nCoV or the Wuhan virus.

People with lupus are predisposed (at greater risk) to infections because of both their disease as well as the medications they take to manage it. Given that people with lupus are at higher risk for a number of types of infections, including viruses, it is only natural to be concerned about the coronavirus.

The Centers for Disease Control and Prevention (CDC) is closely watching the coronavirus both internationally and here in the U.S., while the risk of widespread infection continues to be low in the U.S., It is important for you to look after your health and keep your risk of infection low.

There is currently no vaccine to prevent coronavirus disease 2019 (COVID-19). The best way to prevent illness is to avoid being exposed to this virus. However, as a reminder, CDC always recommends everyday preventive actions to help prevent the spread of respiratory diseases, including:

  • Avoid close contact with people who are sick.
  • Avoid touching your eyes, nose, and mouth.
  • Stay home when you are sick.
  • Cover your cough or sneeze with a tissue, then throw the tissue in the trash.
  • Clean and disinfect frequently touched objects and surfaces using a regular household cleaning spray or wipe.
  • Follow CDC’s recommendations for using a facemask.
  • CDC does not recommend that people who are well wear a facemask to protect themselves from respiratory diseases, including COVID-19.
  • Facemasks should be used by people who show symptoms of COVID-19 to help prevent the spread of the disease to others. The use of facemasks is also crucial for health workers and people who are taking care of someone in close settings (at home or in a health care facility).
  • Wash your hands often with soap and water for at least 20 seconds, especially after going to the bathroom; before eating; and after blowing your nose, coughing, or sneezing.
  • If soap and water are not readily available, use an alcohol-based hand sanitizer with at least 60% alcohol. Always wash hands with soap and water if hands are visibly dirty.

These are everyday habits that can help prevent the spread of several viruses.

Lupus warriors who think they may have been exposed to COVID-19 should contact their healthcare provider immediately.

Information gathered from several online sources including, but not limited to the CDC, Lupus Research Alliance and Lupus Foundation of America. Art by Singapore artist Weiman Kow. Infographic by Curtis Newbold

View the information in one PDF file Coronavirus & Lupus

Lupus In Color Monday Meditations Episode 2

Monday Meditations with Lupus In Color Season 1 Episode 2

Part of Lupus In Color Empowerment Series, we hope this will help you manage your chronic pain as well as keep your mental and emotional health strong in your fight. Mindfulness meditation is not about fighting. It’s all about acceptance. And once you have achieved calm, it can help you regain a much needed sense of control when your disease brings you discomfort. Mindfulness meditation involves directing your attention to the present moment with an attitude of openness to accept without judgement. Every Monday, Lupus In Color will present a short meditation to help empower you in your lupus journey. #MondayMeditations #LupusInColor

Follow our podcast at : https://anchor.fm/lupusincolor

Lupus In Color Monday Meditations

Ever wondered how to meditate? Ever wonder how meditation can help you in your lupus journey? Mindfulness meditation is not about fighting. It’s all about acceptance. And once you have achieved calm, it can help you regain a much needed sense of control when your disease brings you discomfort. Mindfulness meditation involves directing your attention to the present moment with an attitude of openness to accept without judgement.

Every Monday, Lupus In Color will present a short meditation to help empower you in your lupus journey. Part of our new Empowerment Series, we hope this will help you manage your chronic pain as well as keep your mental and emotional health strong in your fight.

#MondayMeditations #LupusInColor

MONDAY Meditations Season 1 Episode 1

Survive The Holidays

Seven Tips to Survive the Holidays With Lupus

The holidays can be fun, but they can also be stressful. While we all are getting so excited about seeing loved ones and hosting events, there can be real fears that can and will bubble up in side of us. There may be fears of missing out, getting sick, or not being able to reach expectations put on us by family members or friends. The anxiety can be high, the worry can be off the charts and the depression may increase.

It’s important as we battle lupus to take it one step at a time. To not become overwhelmed and to not overdo it. If you already find yourself in a crazed frenzy of the holidays, it’s time to take your life and holiday sanity back.
Below are some helpful tips that may help you in finding your calm in the midst of the holiday storm.

  1. Remember, you don’t have to look at the whole forest. You don’t even have to look at a whole tree. Focus on the branch, the leaf, the bark. Breaking things down into smaller, manageable tasks is a great way to get started.
  2. Make a realistic list. Divide it between URGENT tasks that must get done, stuff that can wait a few days, and things that you should do, but that can be done at any time.
  3. Setting a time limit with a built in reward can be a great motivator. For example, put the dishes away while the tea kettle boils. Do a small task, like writing a thank you note, as you can while you wait for food to finish cooking.
  4. Ask for help – Reach out. Ask others for help. It can be scary, but more often than not, people are grateful to help. People like to feel useful.
  5. Take a deep breath. Take another. Drink some water and open the blinds. Put on fun music. Making your environment welcoming will help get you moving and ready to start the day.
  6. Say NO. This one is so hard for so many people especially lupus warriors. If you feel yourself getting stretched thin, or there’s absolutely no way you can do one more thing, you can say NO. Remember you are not responsible for another person’s bad time management. You don’t have to be a “Yes” man or woman to try and please others.
  7. PACE YOURSELF AND REST. This is hard especially for lupus warriors that may be feeling better and have some energy. Warriors tend to overdo it and then have to pay for it later on. I know many are excited, but it’s important to pace yourself and rest before you overdo it and end up in a bad flare.

Having lupus is challenging and when the holidays roll around it can be overwhelming and difficult to handle. The main thing to stay holiday flare free is to make it a collaborative effort. Don’t think you have to do it all yourself or make an extravagant party that will take you months to recover from. Let your need for perfection go. Remember, your first priority needs to involve doing what you can to protect your health. Don’t stress out and overwork yourself and you will have a nice holiday season.

#LupusInColor