Recognizable Scars

Sometimes the scars of Lupus are very visible and sometimes they are not. It’s hard to inform people of a chronic infirmity that is not visible to the naked eye. But it is just as difficult to explain when the scars become visible.

I am not one for vanity. I mean, I love to look good because it helps me to feel my best, But vain is not a character trait I possess. Although many may look at me at me posting photos and assume oh she’s so vain always about herself, They really have no clue what I am all about.

Anyway, some days it’s easy to hide the fact that the insides of my body is in a constant fight for power over me. That they battle in a daily war for rights to my organs. That sometimes my mind gets involved in the battle and tries to fight for recognition only to forget why it tried to get in on the battle in the first place. Sometimes it’s easy to hide that….

Other times between the lupus butterfly rashes… the lupus lesions…the battle scars from treatments it’s hard. When the scars become recognizable scars for all to see and question or look at you like you have a disease that can be caught….it’s hard.

Now, don’t get me wrong the battle is always difficult. Just some days are easier to deal with than others.

I think anyone with a chronic illness tries to hide the scars, but when they become more visible it makes it more of a difficult pill to swallow. I say this because when you have a chronic illness you are forever battling with self to be positive and not succumb to the negatives of your illness. Couple that with the questions of your scars and battle wounds and it becomes difficult to handle at times.

I am here to not only encourage you but to encourage myself when the scars are so prominent that you just want to turn life off. *Click* just flip the switch and sit in the dark for no one to see not even yourself.

I’ve had to look at it differently. My scars aren’t a burden but a bountiful blessing to get awareness in the face of those that have never or would ever hear about Lupus. I look at my scars as battle wounds that are attached to the story of a fearless warrior that lives day to day in a treacherous fight for life.

Yeah… there are recognizable scars and battle wounds…. but they are my story… I can look at them and be sad and solicit pity from those around me. Instead, I choose to be strong when I can, allow my weak moments to peak and crawl through them, embrace the teaching moments and solicit support and love from those around me.

Is my attitude always positive about lupus and living beyond it…HELL NO.. sometimes I’m downright negative about it… but I have learned to live in that moment, appreciate it for what it is and pick myself up scars and all and start each day in a new way.

Your recognizable scars don’t define you they just give you an opportunity to tell the story of overcoming a battle. A story that all must hear including YOU!

I am the face of lupus that someone forgot to tell you about. Can you hear my story NOW? ~Racquel~

#LupusInColor

Permission to Heal


You have permission to heal. It will not always be a physical healing, it may be a mental healing from the depression stronghold of lupus. It may be a spiritual healing from the strain that lupus can place on your soul with doubt of overcoming. It may be a healing in your heart from the pain that lupus has placed on it fighting the lupus battle with every fiber of your being. Whatever the healing you have permission to accept it even if it’s not the one you are looking for. Healing comes in so many shapes, so many forms and in so many ways. Remember to accept them all as they allow you to continue a valiant fight in beating lupus daily. You have permission to heal in any and every way you can. #LupusInColor

Seek Help

You don’t have to be at rock bottom to seek help. It’s okay to seek help even if you think you don’t deserve it or if you think it’s “not bad enough” Please try your best to reach out whenever you need to because you deserve the help and you deserve to get through anything lupus puts you through. #LupusInColor #Educate #Inspire #Encourage #Empower

LIVIN’ La Vida Lupie

April 27, 2019 • 2p-4:30p

Glen Allen Library Small Conference Room

Butterflies of Hope Lupus Support Group

LIVIN’ LA VIDA LUPIE

Practicing living a mindful Peaceful life beyond lupus.

Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor

You Prove It

People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor

Toni Braxton Talks Lupus

Many may have gone through this, are going through this or have had these feelings. It’s important to talk it out and really understand your feelings and how it relates to what’s going on on your life. #LupusInColor

Video portion courtesy of Red Table Talk we do not own the right to the video or its contents.

Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3

EffUCeeKay Lupus

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor

Purpose In Change

Once you are diagnosed with lupus your life will change. It doesn’t mean it changes for the worse, but it will just change. Things that used to mean so much, will be replaced with things that you need to survive. People that used to take up so much of your time with nonsense, will be replaced with people that work to give your life meaning. The simple things in life will become the best things you’ve ever seen and life as you know it will be filled with special moments in pain that become the best times in your life to grow stronger. Life after a Lupus diagnosis will change, but it doesn’t mean it changes for the worse. Make it your duty to take every moment for what it is. Get up after you’re knocked down, wipe yourself off and begin again. You have changed and it’s okay. Your life still has meaning and purpose in your change. #LupusInColor