Butterfly Flight Katrina Alva

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Katrina Alva

“Today I decided to smile”

For over a year I been experiencing pain not knowing why or what was causing me to hurt. A few doctor’s took a look at me and say I don’t see the problem, you look healthy lab work shows nothing. In December 2019, I went to a new doctor to try figure out what’s going on with me. At the Arizona Arthritis Specialist Rheumatologist Clinic the office did lab again for the 3rd time. The trip was worth it, they found out what’s going on with me. I am not happy about the results but at least I know and I have a treatment plan. I lost my grandmother 2 years ago to Lupus I watched her fight for years. I know and understand not how she truly felt.

Everyday is a struggle for me, I am grateful for the good days. I am blessed to have a great support from family and friends.

I am a Lupus warrior

Today I brought myself flowers!!
I am praying for more days like today.

Lupus In Color is excited to present Katrina Alva’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.
Lupus In Color Salutes you Katrina Alva.
YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Katrina Alva’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Shawnna-Lee James

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Shawnna-Lee James

My name is Shawnna-Lee, known online as Lee My officially diagnosed journey with Lupus began at the end of 2015, however I believe I may have developed lupus in 2009 or earlier. The skin on my scalp became extremely dry and covered in sores. I noticed I would go through times where my entire scalp was tender to the point where I couldn’t run a comb through my hair. And when I was able to, I was losing a lot of hair. I saw 3 specialist dermatology doctors from different hospitals who all diagnosed me as having various types of skin conditions. No tests were ever done but I was prescribed numerous different shampoos and ointments over the next 6 years. Nothing worked. In 2013 I had my first pain related hospitalization due to a sudden and excruciating pain in my back that came out of nowhere. The hospital didn’t really run any tests, I was released after 2 nights being told it was just chronic muscle inflammation. One thing I have learned from my diagnosis journey is you could see the doctors a thousand times with a variety of ailments and your Lupus will only be discovered if they are looking for the right thing.

Finally at the end of 2015, having gone to a new dermatology doctor again at a different hospital, the dermatologist finally said they need to do extensive blood tests to find out what might be the cause of my rapid hair loss. Those results revealed SLE at the end of 2015, age 28. Less than a year later I was diagnosed with Sjögren’s syndrome. I’ve been on Hydroxychloroquine since early 2016. I had a depressive episode in 2016 when I tried to deal with my new reality of daily pain and saying goodbye to the person I once was and the life I once had. I had to accept that this was my new reliability and that didn’t really sink in until the beginning of 2018. With the help of friends and family, especially my best friend Simonne (who is no longer with us). She pushed me to stay strong and be better than my Lupus. Now I am here today, speaking to hundreds of strangers about my journey. It’s scary at times but this is my therapy and this is my story. I am grateful for everything I have been through. Diagnosis: SLE, Sjögren’s, Raynaud’s, Serositis, Seborrheic dermatitis.

Main Symptoms: Fatigue, Joint pains, ankle swellings, chest pain, chronic muscle inflammation in my back, dry mouth and sores on my scalp. Daily Medications: Hydroxychloroquine, Mycophenolate, amitriptyline. Adhoc Medications: Colchicine, CoCodamol, Prednisolone occasionally when symptoms flare and 6-monthly steroid back injections.

Lupus In Color is excited to present Shawnna-Lee James’ story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Shawnna-Lee James. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Shawnna-Lee James’ FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Penny Partin

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Penny Partin

My journey began 32 years ago, diagnosed 27 years ago. and today, at 58 I continue my battles with health issues, because of Lupus. If I told you my story, you would hear Hope that wouldn’t let go. And if I told you my story, you would hear Love that never gave up. And, if I told you my story, You would hear Life, but it wasn’t mine. So, If I should speak, then let it be of the grace that is greater than all my sin; of when justice was served and where mercy wins! of the kindness of Jesus’ that draws me in.

I am one of the lupus warriors with the drug induced lupus. There’s not lot said about this one as much as the other ones. But, it’s as damaging to the body as the others. Had they caught mine in time I would have gotten over it in six months they said. But, the blood pressure meds had sent me into orbit and there was no coming
back around with lupus as a hitchhiker.

The best way I’ve found is to be treated as the problems arise! Like the diverticulitis that almost killed me 4 years go for I had to have a colonoscopy and the one that did pervaded my intestine caused my bowels to leak out. But, my body surrounded it so it didn’t rupture. This was a year from the time I had to have an ic pic in my arm to surgery to repair and then breaking open and wearing a wound vac for four months. This time last year, I had knee replacement and I couldn’t get up on my own without help.

I had a second surgery so they could bend my knee had to come home with a knee bender and therapy for six months. But, thank God today I can walk and climb my hill behind my house and walk stress off. I also have eye issues and get shots in my left eye. I’ve been having now to get them every 8 weeks. I hope others will see they need to be careful with medicine as it can hurt you! as well as help you!

Oh to tell you my story is to tell of Him…If I told you my story, You would hear victory over the enemy. And if I told you my story, you would hear freedom that was won for me! And if I told you my story, you would hear Life that overcome the grave. If I should speak then let it be of the grace that is greater than all my sin; of when justice was served and where mercy wins. Of the kindness of Jesus’ that draws me in. Oh to tell you my story is to tell of Him! For this is my story, and this is my song! Praising my “savior” all the day long… Oh to tell you my story is to tell of Him…Greater is He that is in you than he that is in the world 1 John 4:4 🙌 and this is my story, of my 30+ years! battling Lupus. ”Giving Thanks” for my story! Thanks for all you do!

Lupus In Color is excited to present Penny Partin’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.
Lupus In Color Salutes you Penny Partin. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Penny Partin’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Angela Lackey

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Angela Lackey

On February 1, 1996, an emergency Cesarean was done due to preeclampsia I gave birth to a beautiful baby girl that was born at 30 weeks premature with a hole in her heart. The doctors thought that I would be fine, and everything would return to normal after giving birth, but things continued to get worse. My blood pressure was still not normal, my wound was not healing correctly, and blood work was abnormal. The gynecologist was unable to figure out what was wrong with me, so they began to consult with a specialist.

I had been in the hospital for over 5 days at this point and was unable to visit with my newborn baby in the neonatal intensive care unit.

I was later diagnosed with Systemic Lupus Erythematosus by infectious disease doctor and was linked with a Rheumatologist and internal medicine doctor. I was put on several different medications with one being prednisone to help control lupus.

After being home for only 2 days I was rushed back to the hospital and admitted where emergency surgery was done called Pericardiocentesis. Due to all the issues from the lupus flare of giving birth, another surgery, a heart doctor was added to my care. I was in the hospital this time for about 7 days and unable to visit with my newborn baby prohibited bonding time. All that I could do was call to check on my baby and let my husband and mother visit with her. She was later discharged as a healthy baby at 4 weeks old with no major medical issues where we bonded and still have a strong bond today.

Depression hit after receiving the diagnosis of lupus. I was hurt, didn’t know what direction to turn because I was in a new relationship, a new baby, and trying to finish school. Then to be told you have lupus and wasn’t familiar with the disease made things even harder for me at the time. It was an emotional process that I was not ready for at the time because I was only 21 years and that was concerned the prime of one’s life. I had support from my family, church family and friends helped me through a very hard time in my life. To help me with coping I educated myself about lupus.

I was later told that I was unable to work due to all the issues from lupus. As time went by my health started to get better and I was eventually able to go back to work. Over the years I continue to have lupus flare and other medical issues.

Spring of 2016 as my health began to start failing me. I had the flu, pneumonia, pleurisy and I was left with a bad cough that would not go away. There was continued visits to internal medicine doctor, pulmonary specialist, and rheumatologist. I even consulted with getting a second opinion from another rheumatologist with no help. Until one day my regular rheumatologist did further test and consulted with another doctor which proved I had Interstitial Lung Disease. The recommendation was to take Cytoxan by IV. After I researched it and another second opinion, I did the treatment. I was still having some issues, so I was sent to a Pulmonary specialist at UAB where it was recommended to start taking Cellcept. I am currently on Cellcept and low dosage of prednisone to help maintain.

I currently still have lupus flares where I have major leg pains, muscle pains, and fatigued. I have learned that I have other major medical issues that have caused doctors to say that I am no longer able to work. I have been diagnosed with type 2 diabetes, migraines, avascular necrosis, neuropathy, osteoarthritis, hypertension, insomnia, depression/anxiety, Cushing’s syndrome, Obstructive sleep apnea, sickle-cell trait, restless leg syndrome among other things. I have 3 pages of medications that I take daily or take as needed pending the situation. I keep a list of medications and my diagnosis with me at all times in case something goes wrong and I am rushed to the hospital.

I have fought to get on disability with no avail since August of 2016. I am currently still fighting for my disability because the doctors feel that I will no longer able to work. The struggle is real because I never thought I would be in this position of not working, having all these major medical issues and having so many lupus flares that are beyond my control.

It is currently an emotional battle to cope with my situation of not working, depending on my husband, and family members. I don’t feel I have the support I had 23 years ago with the diagnosis of lupus, because times have changed, everyone has their own challenges compared to then. I know it’s through faith and the grace of God that I’m still here today. Most of my days are spent journaling, keeping up with doctor’s appointments, reading, spending time with family/friends, advocating and believing in my true purpose in life and that’s fighting for my life. I believe it’s important to let others know my story because it is a struggle for me each day to make it through the day. I want to encourage others to be the best they can be and not let the disease take over their life.

Lupus In Color is excited to present Angela Lackey’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Angela Lackey. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Angela Lackey’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Dr. Jessica Shadae Dowd

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories
Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Dr. Jessica Shadae Dowd

I am Dr. Jessica Shadae Dowd, RPh, and I currently live with two forms of Lupus, (SLE and Cutaneous). At the young age of 12, Lupus came barging into my life. Rashes and scars covered my face and I was losing weight quickly. Thankfully, an early diagnosis prevented permanent damage, but I was forced to quickly adjust to my new lifestyle. Honestly, I truly hated everything about this transition. I began a complicated medication regimen. I began to gain weight. I watched my parents painstakingly try to remember every medication, what it was for, when to give it to me, and the local community pharmacist was not helpful when my family had questions about them. My parents had no idea about how to raise a child with a chronic condition, but they did their best and I’m grateful for that. My experience influenced me to become a pharmacist so that I could help other patients and families like mine.

I have a post-graduate career goal of becoming a well-rounded clinician and leader, ultimately growing to become influential pharmacist. The stress of pharmacy school caused multiple flare ups. I consistently missed medication doses because of class or study schedules. Throughout my academic journey, I have faced, and have overcame, many obstacles. I didn’t let my condition obstruct my vision and goals. I strove to be a reliable pharmacist that went above and beyond for my patients and help them manage their chronic conditions. Through the tireless support of my mentors, family, and friends, and a beyond-grueling curriculum, in 2018, I became Dr. Jessica Shadae Dowd, a registered pharmacist in the state of Florida.

Furthermore, I recently started an Instagram page, @dowdvslupus, to share my experiences as a lupus warrior, and to promote uplifting and support individuals with Lupus or any autoimmune diseases.
Lupus In Color is excited to present Dr. Jessica Shadae Dowd’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Dr. Jessica Shadae Dowd. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!

PLEASE SHARE Dr. Jessica Shadae Dowd’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Julie Ricano

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories
Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Julie Ricano


I was 26 when my pain started. I went to endless doctors and they all would tell me it was all in my head that it was a mental one.
Thanksgiving day I sat down and out of nowhere I got a fever of 102 and became paralyzed. I stayed home because I thought I was going crazy. 
The pain on my legs and my muscles was overwhelming.
I decided to go to a vascular doctor. When I went to take off my shoes, he only saw the bottom of my feet. In his words, he told me go to Mercy Hospital. He stated, “I know what you have, but will tell you after its confirmed. “
The next day he told me, “you have SLE,” my world as I knew it ended FEBRUARY 14,1991.

Lupus In Color is excited to present Julie Ricano’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Julie Ricano . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!
PLEASE SHARE Julie Ricano’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Alyshia Merchant

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Alyshia Merchant

Alyshia Merchant fell suddenly ill in the summer of 2012, at the age of 23. She began having extreme fatigue, body aches, joint pain, and excruciating headaches all in a matter of days. Shortly after, she began having more visible complications, such as rashes on her face, hair loss, and swollen puffy eyes. Constant visits to the ER over the course of three months revealed no clue as to what was going on with her body. It was only when she began having serious life threatening symptoms such as high fevers, vomiting, swelling in her feet and legs, and blackouts, that she was finally hospitalized. After several long days of testing, and a kidney biopsy, in October of 2012, she tested positive for SLE Lupus Nephritis. From that day on, Alyshia’s life was never the same.

The first thing that Alyshia tried to do, was find support in her community. She felt that if she could just talk to someone who had been through what she was going through, that it would encourage her, and help her get through. However, she found absolutely nothing. Despite the treatment plan that Alyshia was placed on, Lupus remained fully active, and wrecked havoc on her life for a year and a half. Lupus had caused her to lose most of her hair, she carried around 40 lbs of painful edema, or fluid, in her feet and legs, skin rashes, and a swollen round face from the high dosages of steroids prescribed to suppress her immune system. For the first time in Alyshia’s life, she was insecure, and she was alone.

In January of 2014, lupus caused her to go into acute kidney failure. After six long months of chemotherapy, she finally began walking on her path to recovery. She then decided that she never wanted anyone in her community, or in the world, to go through what she went through alone. In 2015, she created the organization, Making Lupus Look Good.

MLLG is dedicated to empowering women that are suffering silently with the many insecurities that the lupus battle may bring. The MLLG mission is to restore the confidence in these women that lupus has stolen from them, by providing them with a full glam experience including makeovers, wigs for hair loss, skin care, etc, and full photoshoots at no cost to the patient whatsoever. The purpose of the makeovers is to remind these women of the beauty that God has given them, despite the many insecurities that lupus may throw their way. In July of 2015, MLLG partnered with The Lupus Foundation Of America, and created the first ever Lupus Awareness Event in Roanoke, Virginia. In March of 2016, Alyshia received the UBU Honors “Event Of The Year Award.” In February of 2017, Alyshia received the C.C Williams Community Service Award from the Urban Professional League, along with the “You Are A Star In The Star City” award by Mayor Sherman Lee. In October of 2017, Alyshia became certified as a Chronic Disease Self-Management leader through Stanford University. With this, she leads workshops in the community, to help others living with Chronic Illnesses learn to better cope with, and maintain control over their illnesses. In 2019, she created The Survivor’s Circle, the first lupus support group in her community in over a decade. And in 2020, she became one of thirteen people chosen across the country to be a Team Of Advisors Member for PatientsLikeMe, the world’s largest personalized health network.
Since Alyshia’s lupus diagnosis, she has also been diagnosed with Pseudo Tumor Ceribri, a rare neurological condition caused by lupus, that mimics the symptoms of a brain tumor. Although she has learned to better manage her illnesses over the years, she still battles much pain and insecurities every single day. Which is why her God given passion is to bring as much awareness as she can to lupus and invisible illnesses, and to let lupus warriors across the world know that they aren’t alone in this battle, and that she is fighting with them.

Lupus In Color is excited to present Alyshia Merchant’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Alyshia Merchant . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!

PLEASE SHARE Alyshia Merchant’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Leila Muxinga

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Leila Muxinga

My name is Leila Muxinga and I was diagnosed with Lupus at the age of 14 and this is my story.

Back before I got diagnosed, I was misdiagnosed for about 2 years by a doctor who passed on a while ago, he was our family doctor. Later on I got referred to my current physician, who is a Specialist Dr. Goagoseb and he officially diagnosed me with SLE in 2010.

I went through a lot of bullying. I was bullied by the very same people whom I thought were my friends and best friends.

I was bullied for how my fingers were shaped, how they were blue/purple, how I would be in and out of the hospital. They talked about how nasty they thought I was.

But to my high school friends, the true friends , Ralitza Gawises, Bernelee Kahiiko and Trisha Skrywer, I just want to use this opportunity to thank you guys. I love you all still today.

So to make things short, I have been living with Lupus for over 13 years. I am legally disabled, but I have my own company and I am my own BOSS.
I just want to thank the all mighty, my King in Heaven and His one and only begotten Son Jesus Christ for His mercy and His grace. Without Him, I wouldn’t have Hope.

Today I have my own Lupus Support group on WhatsApp and also a Christian group whereby I plan on motivating the young people.

This is my Story

Lupus In Color is excited to present Leila Muxinga’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.Lupus In Color Salutes you Leila Muxinga. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!
PLEASE SHARE Leila Muxinga’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Salute to Service

Inaugural Butterfly Salute to Service Highlighting different Lupus Organizations that are making a difference in the lives of lupus warriors and those who support them.

Our first recipient is The Jordan D. Savage Foundation, Inc. The Jordan D. Savage Foundation, Inc.  is a community service organization that  is dedicated to honoring and celebrating the life of Jordan D.  Savage by raising funds to provide support to the high school and youth sports programs in our community.   Jordan was a passionate and loyal athlete and teammate.    We can think of no better way of memorializing his life than to perform services and raise funds to allow young athletes to play, enjoy and excel in the sport of their choice.   We also support the programs of the Lupus Foundation of Georgia and seek to help improve the quality of  life for persons living with Lupus.

Lupus In Color Salutes the service of THE JORDAN D. SAVAGE FOUNDATION, INC. Your passion and purpose is amazing in the lupus community. Thank You for your service.

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness #butterflysalutetoservice

Butterfly Flight Suniya Arnold

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Suniya Arnold

In 2017 Suniya was diagnosed with overlap syndrome. Her symptoms were weird, she started with swelling of the feet and could not walk. We went to the hospital and they ran tests and they stated she had the flu. She did proper treatment for that, but her feet swelled again. We took her to her pediatrician office they tested her again for the flu it was positive again. She later went back to the pediatrician and the nurse practitioner did research to test her for lupus and her levels were extremely high at 4000.

She was rushed to the hospital were they kept her to get her levels down. It was a start of a whole new world with her only being 8 years old.
She was monitored closely. She couldn’t do normal 8 yr. old things. Suniya was diagnosed with anxiety and depression.

She has family to keep her motivated and knowing God is by her side she was and is able to get through her tough times. Just this year the doctors came to the agreement that she has SLE . “Lupus was a adventure of the life time it almost makes me compare to wonder”

Suniya is my Warrior!

Lupus In Color is excited to present Suniya Arnold’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Suniya Arnold . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Suniya Arnold’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness