Butterfly Flight Alyshia Merchant

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Alyshia Merchant

Alyshia Merchant fell suddenly ill in the summer of 2012, at the age of 23. She began having extreme fatigue, body aches, joint pain, and excruciating headaches all in a matter of days. Shortly after, she began having more visible complications, such as rashes on her face, hair loss, and swollen puffy eyes. Constant visits to the ER over the course of three months revealed no clue as to what was going on with her body. It was only when she began having serious life threatening symptoms such as high fevers, vomiting, swelling in her feet and legs, and blackouts, that she was finally hospitalized. After several long days of testing, and a kidney biopsy, in October of 2012, she tested positive for SLE Lupus Nephritis. From that day on, Alyshia’s life was never the same.

The first thing that Alyshia tried to do, was find support in her community. She felt that if she could just talk to someone who had been through what she was going through, that it would encourage her, and help her get through. However, she found absolutely nothing. Despite the treatment plan that Alyshia was placed on, Lupus remained fully active, and wrecked havoc on her life for a year and a half. Lupus had caused her to lose most of her hair, she carried around 40 lbs of painful edema, or fluid, in her feet and legs, skin rashes, and a swollen round face from the high dosages of steroids prescribed to suppress her immune system. For the first time in Alyshia’s life, she was insecure, and she was alone.

In January of 2014, lupus caused her to go into acute kidney failure. After six long months of chemotherapy, she finally began walking on her path to recovery. She then decided that she never wanted anyone in her community, or in the world, to go through what she went through alone. In 2015, she created the organization, Making Lupus Look Good.

MLLG is dedicated to empowering women that are suffering silently with the many insecurities that the lupus battle may bring. The MLLG mission is to restore the confidence in these women that lupus has stolen from them, by providing them with a full glam experience including makeovers, wigs for hair loss, skin care, etc, and full photoshoots at no cost to the patient whatsoever. The purpose of the makeovers is to remind these women of the beauty that God has given them, despite the many insecurities that lupus may throw their way. In July of 2015, MLLG partnered with The Lupus Foundation Of America, and created the first ever Lupus Awareness Event in Roanoke, Virginia. In March of 2016, Alyshia received the UBU Honors “Event Of The Year Award.” In February of 2017, Alyshia received the C.C Williams Community Service Award from the Urban Professional League, along with the “You Are A Star In The Star City” award by Mayor Sherman Lee. In October of 2017, Alyshia became certified as a Chronic Disease Self-Management leader through Stanford University. With this, she leads workshops in the community, to help others living with Chronic Illnesses learn to better cope with, and maintain control over their illnesses. In 2019, she created The Survivor’s Circle, the first lupus support group in her community in over a decade. And in 2020, she became one of thirteen people chosen across the country to be a Team Of Advisors Member for PatientsLikeMe, the world’s largest personalized health network.
Since Alyshia’s lupus diagnosis, she has also been diagnosed with Pseudo Tumor Ceribri, a rare neurological condition caused by lupus, that mimics the symptoms of a brain tumor. Although she has learned to better manage her illnesses over the years, she still battles much pain and insecurities every single day. Which is why her God given passion is to bring as much awareness as she can to lupus and invisible illnesses, and to let lupus warriors across the world know that they aren’t alone in this battle, and that she is fighting with them.

Lupus In Color is excited to present Alyshia Merchant’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Alyshia Merchant . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!

PLEASE SHARE Alyshia Merchant’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Leila Muxinga

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Leila Muxinga

My name is Leila Muxinga and I was diagnosed with Lupus at the age of 14 and this is my story.

Back before I got diagnosed, I was misdiagnosed for about 2 years by a doctor who passed on a while ago, he was our family doctor. Later on I got referred to my current physician, who is a Specialist Dr. Goagoseb and he officially diagnosed me with SLE in 2010.

I went through a lot of bullying. I was bullied by the very same people whom I thought were my friends and best friends.

I was bullied for how my fingers were shaped, how they were blue/purple, how I would be in and out of the hospital. They talked about how nasty they thought I was.

But to my high school friends, the true friends , Ralitza Gawises, Bernelee Kahiiko and Trisha Skrywer, I just want to use this opportunity to thank you guys. I love you all still today.

So to make things short, I have been living with Lupus for over 13 years. I am legally disabled, but I have my own company and I am my own BOSS.
I just want to thank the all mighty, my King in Heaven and His one and only begotten Son Jesus Christ for His mercy and His grace. Without Him, I wouldn’t have Hope.

Today I have my own Lupus Support group on WhatsApp and also a Christian group whereby I plan on motivating the young people.

This is my Story

Lupus In Color is excited to present Leila Muxinga’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.Lupus In Color Salutes you Leila Muxinga. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!
PLEASE SHARE Leila Muxinga’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Salute to Service

Inaugural Butterfly Salute to Service Highlighting different Lupus Organizations that are making a difference in the lives of lupus warriors and those who support them.

Our first recipient is The Jordan D. Savage Foundation, Inc. The Jordan D. Savage Foundation, Inc.  is a community service organization that  is dedicated to honoring and celebrating the life of Jordan D.  Savage by raising funds to provide support to the high school and youth sports programs in our community.   Jordan was a passionate and loyal athlete and teammate.    We can think of no better way of memorializing his life than to perform services and raise funds to allow young athletes to play, enjoy and excel in the sport of their choice.   We also support the programs of the Lupus Foundation of Georgia and seek to help improve the quality of  life for persons living with Lupus.

Lupus In Color Salutes the service of THE JORDAN D. SAVAGE FOUNDATION, INC. Your passion and purpose is amazing in the lupus community. Thank You for your service.

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness #butterflysalutetoservice

Butterfly Flight Suniya Arnold

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Suniya Arnold

In 2017 Suniya was diagnosed with overlap syndrome. Her symptoms were weird, she started with swelling of the feet and could not walk. We went to the hospital and they ran tests and they stated she had the flu. She did proper treatment for that, but her feet swelled again. We took her to her pediatrician office they tested her again for the flu it was positive again. She later went back to the pediatrician and the nurse practitioner did research to test her for lupus and her levels were extremely high at 4000.

She was rushed to the hospital were they kept her to get her levels down. It was a start of a whole new world with her only being 8 years old.
She was monitored closely. She couldn’t do normal 8 yr. old things. Suniya was diagnosed with anxiety and depression.

She has family to keep her motivated and knowing God is by her side she was and is able to get through her tough times. Just this year the doctors came to the agreement that she has SLE . “Lupus was a adventure of the life time it almost makes me compare to wonder”

Suniya is my Warrior!

Lupus In Color is excited to present Suniya Arnold’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Suniya Arnold . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Suniya Arnold’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Emmitt Henderson III

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Emmitt Henderson III

My name is Emmitt Henderson III, I was diagnosed with Systemic Lupus back in 1995, however, my symptoms of Discoid Lupus took a toll on my skin when I was a young boy at the age of 10. Back then it was not diagnosed as Lupus but treated as a skin disease. For a year, I had skin rashes and blemishes all over my upper body that ended up going away. I thought I was cured.

15 years later, I had joint pains in my knees, wrist, and shoulders that I could not explain. They were so bad I went to the emergency room a few times just for them to send me home saying they cannot find anything wrong. Keep in mind all they did was X-rays at that time.

Pain settled all over my body while maintaining my full time job as a service manager at an auto shop. Despite my pain, I pushed through and went to work every day. One day at work, my pain was so bad that the owner of the company noticed it and wanted me to go to urgent care to get checked. I fought him, but he’s the owner, so I went. From urgent care after 8 hours, the doctors told me they needed to send me to the hospital for further diagnosis. 19 days later in the hospital, I was told “You have Lupus” my first reply was, “what is Lupus”

Since that time, I went through major complications in my life because of Lupus. It has affected every major organ in my body and most current, my brain. Some of the most notable procedures included a Bone Marrow Stem Cell Transplant to slow my Lupus activity down, Kidney Transplant, Right Knee replacement, Left Shoulder replacement, Gall Bladder removed, Interstitial Lung disease, and Encephalopathy in my brain. I also had to deal with Ulcers in my throat and esophagus that I had to eat from a feeding tube for 2 weeks, I went through chemotherapy and radiation therapy for over a year, Peritoneal dialysis over a year, Cardiomyopathy that caused heart failure, I was put in a clinically induced coma then rehab to walk, talk and use my limbs again, Over a long period of time I suffered from gout and shingles as well.

Going through all that, made me the Warrior I am today. I created my brand Male Lupus Warriors because that is exactly what I am. During my journey I haven’t found too many men speaking out on Lupus so I decided to be the Voice. Because of it, I was honored to be in magazine articles on health and wellness, Live news appearances about Lupus, I was given speaking events from the Lupus Foundation of America Socal, I was honored an award for Lupus Advocacy and featured on radio talk shows.

I’m also Vice President to a nonprofit organization founded by my partner called Hugs and Bags. We provide food, clothing, toiletries and we do haircuts for our community Free of charge. Since Covid-19, we provided over 3,500 meals to those in need. Doing this, brings Joy to my Heart as well as keeping my attention off of whatever Lupus brings me.
My goal for Male Lupus Warriors is to educate, inspire and spread awareness on Lupus. It’s also to encourage the fellas to speak out on their illnesses and come together to help others. I speak on Lupus and Mental Health in hope to encourage people to not be a victim to their illness.

Lupus In Color is excited to present Emmitt Henderson III’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Emmitt Henderson III.

YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Emmitt Henderson III’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Steff Linden

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories


Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Steff Linden

I was diagnosed with SLE just over a year ago. After years of being misdiagnosed and having symptoms no doctor could explain, it was a mental breakdown that led to the discovery of my diagnosis.
The SLE I have effects my nervous system, so my odds of having a stroke are 50 times higher than that of a typical human being. Therefore, yoga is my lifeline.  Yoga meets me where I am, it never judges me or tells me I’m not enough.  It is as gentle or as vigorous as I need it to be, and honors my journey. 

Some days I feel like pushing, while other days are meant for rest. 

Regardless of what stage I’m at in my journey, yoga has helped me develop a sense of normalcy among the uncertainty.

My message to all my fellow Spoonies out there- find one thing that brings you joy.  Doesn’t have to be anything big, just something that will help you get through the tough days and flares.  You can do this!

Lupus In Color is excited to present Steff Linden’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.Lupus In Color Salutes you Steff Linden.

YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Steff Linden’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Sylvia McKelvey

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Sylvia McKelvey

Lupus In Color is excited to present Sylvia McKelvey’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.Lupus In Color Salutes you Sylvia McKelvey . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!FLY ON!
PLEASE SHARE Sylvia McKelvey’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight L’Mekka Edwards

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly L’Mekka Edwards

As I sit in silence, I hear so many thoughts. What did I do? Who did I hurt? Is this Karma. Why me? When will this be over? Why I can’t get over this? How did I get here? Is this my new life!

Living with Lupus has been a thorn in my side since 2008 attacking my SKIN. Facebook has these memories that pop up and it shows me saying how Lupus affected me around the same time year after year. Am I the reason? Am I harming myself? What can I do different? I have always wanted to be a Police Officer. I finally took the test in 2004. 2005 I couldn’t start because I had my spleen removed. I gave up. I was working and being a mom.

My good friend suggested I try again. In March 2011, I became a Correctional Officer for Cook County. I was proud of myself, the pain I endured, the money I spent, the time I invested. I had no family support. I had to rely on God and a few friends to help me with my sons.

My health reared again, and I developed more auto immune problems, but I continued to try to get better. I got into fitness again became a Personal Trainer opened up my own gym in 2014. 2016 I made another milestone by finally becoming a Police Officer. After losing family members, miscarriages, being attacked at work, marriage failing I  made it through all of this. I was in the best shape of my life. My personal life sucks but my professional life was amazing.

2016 I developed HEART problems and had to wear a heart monitor a month before I started the Police Academy. I refused to let that stop me.  October 2017, I kept falling down. Hospitalized.

Lupus attacking my BRAIN. March 2018 my squad car was rear- ended. Hospitalized. I injured my left leg developed DVT and PE. Blood clot in left leg and one on each LUNG. April 2018 hospitalized Lupus attack my KIDNEYS. Category II and IV Lupus Nephritis. My son graduated from High school and went off to College. August 2018, I sprained my ankle in 3 places. I was off work from March until October 2018 with no income.

God helped me survive. November, twice in December 2018 Lupus attacks my EYES, twice in January 2019 and February I was in the hospital because Lupus attacked my Kidneys, eyes and lungs. I was off work again from January until May 2019 with no income, but God is keeping me. 

In 2019 was hospitalized every month except April and July. I am more focused on what I am eating that is causing my Lupus flare and how I can live my best life.

I turned 40 in 2019 on January 26 and I promised myself I was going to do 40 new things that year and I did.

On March 7th 2019 I became  a member of the First Lupus Sorority  – Lambda Sigma Sigma Lupus Sorority, Inc. Founded by LaCasha Lee in Chicago on August 13, 2018.

Lupus will not win.

I walk for myself.

I walk for awareness.

I walk for health.

I walk for you.

This girl treks.

Next time join me.

Help Me find a cure for Lupus. 

Lupus In Color is excited to present L’Mekka Edwards’ story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you L’Mekka Edwards . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE L’Mekka Edwards’ FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Lashunda Reaves

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Lashunda Reaves

My name is Lashunda Reaves. I was born and raised in St. Petersburg, Florida. I am a Registered nurse and I work night shift. On March 18, 2018 I was diagnosed with SLE lupus.

I have always felt tired and some pain, but I looked at it as me working the night shift and many hours. I have also had 4 miscarriages.

I have always had issues with my hair falling out and dry scalp which was being treated as eczema. One morning  after working a night shift, I woke up and my right eye was completely closed, painful, and throbbing.

I immediately went to emergency room where I spent 8 hours. Finally the ophthalmologist asked if I have been diagnosed with an autoimmune disease? My answer was no. She diagnosed me with uveitis. She gave me 3 eye drops and discharged me.

Fast forward, I went in to my internal medicine doctor for regular check up. I Informed her of my situation with my eye and she sent me for blood work. 16 tubes of blood first round and second round 10 tubes. The 3rd round was x-rays of every bone in my body. I was then diagnosed with SLE lupus.
I found out my father’s sister had lupus and at that time the only medicine was prednisone. I can remember her skin was flaky, scaly and would bleed when scratched.

I can say this past 2 years I have fought for my life. With the help of my husband, my children, family, and friends I will continue to fight.
I AM A WARRIOR!!!!! I HAVE LUPUS, LUPUS DOESN’T HAVE ME.

Lupus In Color is excited to present Lashunda Reaves’ story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Lashunda Reaves.
YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Lashunda Reaves’ FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Butterfly Flight Remantha Louw

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories
Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Remantha Louw


My name is Remantha, I’m from South Africa, I am a lupus warrior. I am 20 years old and I was  diagnosed almost 2 years ago (in May it will be 2 years) I was 18 at the time and I was extremely sick for about 3 months. It started with me vomiting, after that I was diagnosed with arthritis. The doctor told me I had gland fever for a very long time. After dealing with all that, I was taken to a hospital to get stabilized. I was extremely scared because I thought I would die because all the tests that were run on me with no answers. It took doctors 3 days to discover what was actually wrong and then I was finally diagnosed with lupus.

I didn’t know anything about lupus, but I was extremely scared and I Googled my illness a lot after that. I was put on intense steroids and I started feeling better but after a week I could go home but I was extremely weak. I was also very depressed, all my friends left and my boyfriend didn’t want to be with someone who was sick. I felt very alone and I was depressed. I didn’t leave my room and I didn’t even leave my house until my mom and dad forced me to go shopping even though I was weak and tired.
I was still in high school and my high school forced me to write my end exam I was a senior in high school. I was in my last year and I was supposed to go to prom and I didn’t want to because I was extremely depressed. I did end up going though all because of my parents, they were my support system through all this.


I took my tablets everyday and I got better but gained a lot weight and since I was skinny before, I started hating my body. I always covered my body but with time I am still getting to be comfortable. My path with lupus hasn’t been the best, I still have bad days, but I do thank God for my life and I am willing to fight the good fight.


Lupus In Color is excited to present Remantha Louw’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Remantha Louw .

YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!


PLEASE SHARE Remantha Louw’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness