Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.
Flight of the Butterflies Begins…..
Butterfly Flight Melissa Evans
I reflect back to the day I was diagnosed early 20’s young mom just had my second child who was clinging onto his life in NICU 29 weeks old due to my cardiomyopathy taken early I was young body failing doctors searching for answers. I can’t believe almost twenty years ago the lupus diagnosis was so grim. I was actually told my life expectancy was just 40 years old. Through the years I struggled diagnosed with overlapping diseases, anti phospholipid syndrome which causes blood clots, IVC filter placed in my chest that same filter that was suppose to save almost killed me fracturing breaking into pieces a strut (leg of filter) migrated to my lung. I’m a walking miracle! Diagnosed with RA referred in those with lupus as “Rupus”. Struggled to raise my two boys fought every step of the way. Went back to college got a degree at 28. Divorced by the time I was in my 30’s, I never gave up on hope! FAST FORWARD! I am now 39 will be 40 in July yes 40! I have defied the odds looking back to a time I once walked with a cane had a port in my chest daily injections that is no longer. Cane is retired port is out, I take a drug Xererlto not available my early years for my blood condition freeing me from painful shots I had to take. No more admissions on heparin drips which can scary your blood can’t be too thin but can’t be too thick a fine science hematology is. Trial will be soon the fractured IVC filter that almost took my life holding manufacturer responsible for the flaws of a device they clearly knew existed and turned a blind eye too. I’m on a infusion Benlysta which just came out 5+ or so years ago which for many helps Lupus, Benlysta gave me my life back has basically put my lupus in a calm sleep in a remission of sorts. I require monthly infusions to many this drug is a wonder drug! Last but not least save the best for last my eldest son graduating this year my youngest will be 16. I’m a proud mom of two amazing young men, I also found love again a best friend who supports me through my lupus journey’s always by my side.
Moral of the story NEVER give up HOPE!
#lupus #lupuswarrior #lupusawareness #lupusawarenessmonth #hope #fighter
Lupus In Color is excited to present Melissa’s story to the world. As a Lupus Warrior he is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Melissa Evans.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!
PLEASE SHARE Mellisa’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!
#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness