Someone said to me to stop saying I have lupus because I make it so, that I manifest it more in my body. Now, I know words have power, but the reality is I didn’t speak lupus into my body. None of us did. Although I know how we see ourselves and speak to ourselves as we battle lupus is important, I also know that saying I don’t have lupus, when in fact I do, is detrimental to me doing what I need to do to treat lupus and beat it daily.
Just a note to those who mean well but don’t think before stating things that are harmful to those in this lupus fight, stop speaking from a place of the unknown. Every Lupus warrior has gone through a mourning period which includes the battle with denial to acceptance. You stating ‘stop saying you have lupus’ places one back into a denial stage. Lupus is not a person’s fault and it isn’t manifested in their body because they say what their diagnosis is. Lupus won’t just go away because a warrior doesn’t say they have lupus, if it was that easy we all would not have lupus.
Please be mindful of what you say to lupus warriors. It’s not an easy condition to deal with. We all understand we have lupus but it is not us and we don’t need anyone to try and make it seem so simple as to stop talking about it to make it go away. We appreciate your well intentions, but please understand all we have to deal with in our battle and only speak words that you know will strengthen us in our fight. #LupusInColor
