Butterfly Flight Norlesha Rogers
My name is Norlesha aka Lesharogers on IG.
In 2010 I was told I may have Lupus but I was officially diagnosed with Systemic Lupus Erythemstosus in 2014 and again in 2015.
Lupus is a very challenging autoimmune disease and hard to detect as it mimics so many illnesses while it also attacks different organs.
The hardest part of having Lupus is the uncertainty of life meaning not able to funtion, focus, move around one day and next I can be energetic and be mobile without needing help from anyone. The severe pain I go through most days is hard to explain.
The journey of struggling with lupus for several years I’ve learned to be kind to myself and find ways to be stronger , fight for myself. I see life in a different perspective. It’s never easy.
My advice for newly diagnosed , it’s important to research and educate yourself and others about the illness even thou everyone experience is different. Always get more than one doctor’s opinion. Surround yourself with positive individuals, read or watch positive stuff. Don’t give up on prayers. Additionally its okay to cry but just don’t stop fighting or giving up.
My kidney is now at stage 4, I had brain inflammation, I went into a horrific lupus psychosis, diagnosed with Lupus Vasculitis, Fibromyalgia, I had a chronic cough for almost 3 years, plus fighting for months with a difficult pneumonia, I experience temporary paralysis, I had septic, weight loss. I couldn’t remember how to spell my name. The list goes on. I put up one hell of a fight. My ex husband even told me he can’t have a sick wife, In the process of it all I also lost friends and family who either couldn’t deal with me or was embarrassed of me which left me with external and visible scars which had affected me mentally.
What keeps me strong is seeing how far I’ve come , knowing God will not give me more than I can bear and seeing myself as a role model to others. I have the visible scars, but I also have a life. I’m not perfect , yes, I do have cloudy days when I feel like giving up. Thankfully though, I have few good individuals who want to see me win this battle, who also encourages me to fight this battle and remind me that they are rooting for me, and they love me. I also have dreams to travel the world, start my books, my hair products and skincare line. I must win this battle!
What gets me the most of all of this is when most people see me and say “but you don’t look sick” and that’s how I know you really can’t judge a book but it’s cover.
#lupusincolor #butterfliesofhope #flightofthebutterflies #Brave #Courageous #Strong #spreadinglupusawareness #onebutterflyatatime #flyonbutterfly
