World Kidney Day 2019

World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys.

World Kidney Day aims to raise awareness of the importance of our kidneys to our overall health and to reduce the frequency and impact of kidney disease and its associated health problems worldwide.

Systemic lupus erythematosus (SLE) that affects the kidneys is called lupus nephritis. Lupus nephritis causes inflammation (swelling or scarring) of the small blood vessels that filter wastes in your kidney (glomeruli) and sometimes the kidneys, by attacking them like they would attack a disease.

About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. The part of the kidney most frequently troubled by lupus is a part of the nephron called the glomerulus, a tuft of capillaries that functions to filter substances from of the blood. For this reason, the type of kidney inflammation most commonly experienced in lupus is called glomerulonephritis. Fortunately, the prognosis for patients experiencing kidney lupus is improving due to the growing number of medications that physicians have in their arsenal.

#lupusincolor #educate #inspire #encourage #empower

Balance

As you battle lupus it’s all about balance. Balancing your eating habits, your workouts, your spirituality, your mental space, your time, your relationships, your stress and your life. If you don’t have some sort of balance you’ll be in a forever flare. #LupusInColor #Educate #Inspire #Encourage #Empower

30 Day Walk Challenge

We hope you all have been walking daily with the Lupus In Color 30 Day Walk Challenge. 30 minutes a day for 30 days. The purpose was to create a habit beyond all the things in your day to get moving! Here is some information on what walking can do. We have one day left to the challenge, but you have already hit 30 days of walking 30 minutes a day!! YOU DID IT!!!!! WELL DONE!!! #LupusInColor

Walk Challenge App

Almost time to begin our challenge!
We will be using the MapMyWalk app to log in our workouts. You can download it for FREE at your app store on your phone. You do not need to pay extra for walkout logs.

Once you download the app please do a search for me RACQUEL DOZIER ask to be a friend and I will add you to the LUPUS IN COLOR 30 DAY WALK CHALLENGE. Here you will log your walks or activity that we all can see. #LupusInColor #WalkItOut #30DayWalkChallenge

Our Goal

Our goal is NOT to make you feel bad as you battle lupus.
Our goal is NOT to minimize anything you go through in your lupus journey.
Our goal IS to help you think a little differently so your stress will be less and your lupus flares will not be exasperated to a point of no return. Our goal IS to give you hope when you feel hopeless. To give you a voice when you feel no one hears you. To be a support when you feel all alone. #LupusInColor

Lupie Gurl Episode 7

Life of a Lupie Gurl.. Episode 7

Lupus really trips out sometimes. I mean really trips out. It’s like when lupus doesn’t see me for a day or so she comes back with a vengeance. So, today I went to get out of bed and lupus decided that my feet were all hers. I placed my feet on the floor, thought I had it made took a couple of steps and *BAM* I was greeting the floor. “Oh hello floor you are always there to catch me, I love you!” I couldn’t even cry, I could only laugh and think DAMN! I laid there as I laughed and said (in my Michael Jackson voice) “Lupus you really knocked me off my feet now baby *hee hee*.” I eventually got up and made my way to the bathroom with semi swollen sausage toes leading me into the day.

Life of a Lupie Gurl, its not always pretty but there’s no reason I can’t laugh it out.

That Lupie Gurl Classy, Sassy and a bit Smart Assy, beating lupus one laugh at a time! #LupusInColor

7 Tips For The Holiday

Seven Tips to Survive the Holidays With Lupus

The holidays can be fun, but they can also be stressful. While we all are getting so excited about seeing loved ones and hosting events, there can be real fears that can and will bubble up in side of us. There may be fears of missing out, getting sick, or not being able to reach expectations put on us by family members or friends. The anxiety can be high, the worry can be off the charts and the depression may increase.

It’s important as we battle lupus to take it one step at a time. To not become overwhelmed and to not overdo it. If you already find yourself in a crazed frenzy of the holidays, it’s time to take your life and holiday sanity back.

Below are some helpful tips that may help you in finding your calm in the midst of the holiday storm.

1. Remember, you don’t have to look at the whole forest. You don’t even have to look at a whole tree. Focus on the branch, the leaf, the bark. Breaking things down into smaller, manageable tasks is a great way to get started.

2. Make a realistic list. Divide it between URGENT tasks that must get done, stuff that can wait a few days, and things that you should do, but that can be done at any time.

3. Setting a time limit with a built in reward can be a great motivator. For example, put the dishes away while the tea kettle boils. Do a small task, like writing a thank you note, as you can while you wait for food to finish cooking.

4. Ask for help – Reach out. Ask others for help. It can be scary, but more often than not, people are grateful to help. People like to feel useful.

5. Take a deep breath. Take another. Drink some water and open the blinds. Put on fun music. Making your environment welcoming will help get you moving and ready to start the day.

6. Say NO. This one is so hard for so many people especially lupus warriors. If you feel yourself getting stretched thin, or there’s absolutely no way you can do one more thing, you can say NO. Remember you are not responsible for another person’s bad time management. You don’t have to be a “Yes” man or woman to try and please others.

7. PACE YOURSELF AND REST. This is hard especially for lupus warriors that may be feeling better and have some energy. Warriors tend to overdo it and then have to pay for it later on. I know many are excited, but it’s important to pace yourself and rest before you overdo it and end up in a bad flare.

Having lupus is challenging and when the holidays roll around it can be overwhelming and difficult to handle. The main thing to stay holiday flare free is to make it a collaborative effort. Don’t think you have to do it all yourself or make an extravagant party that will take you months to recover from. Let your need for perfection go. Remember, your first priority needs to involve doing what you can to protect your health. Don’t stress out and overwork yourself and you will have a nice holiday season.

#LupusInColor

Purpose In Change

Once you are diagnosed with lupus your life will change. It doesn’t mean it changes for the worse, but it will just change. Things that used to mean so much, will be replaced with things that you need to survive. People that used to take up so much of your time with nonsense, will be replaced with people that work to give your life meaning. The simple things in life will become the best things you’ve ever seen and life as you know it will be filled with special moments in pain that become the best times in your life to grow stronger. Life after a Lupus diagnosis will change, but it doesn’t mean it changes for the worse. Make it your duty to take every moment for what it is. Get up after you’re knocked down, wipe yourself off and begin again. You have changed and it’s okay. Your life still has meaning and purpose in your change. #LupusInColor