Sometimes as you battle lupus you have to allow yourself to enjoy over sleeping. You have to indulge in lazy Sunday afternoons and procrastinate things that may demand your attention. You have to sing songs and sip an occasional adult beverage in bed while you forget the damage lupus has done. You have to remind yourself to enjoy the beauty of nothingness and replenish the energy that lupus and people drain. You need to get wrapped in cozy blankets and covered in oversized sweaters with the air condition on just in case you get hot. In the midst of this lupus life, we must remember to surrender to the solace of alone time where we can clear our head and replenish our soul for anything new that may arise from lupus. #LupusInColor
My mind is always racing with thoughts about my battle with Lupus. Most times I am trying to find tranquil thoughts to offset the raging war in my body. As one can imagine this is a constant struggle that is sometimes won with tranquility and other times submitted to the barrage of constant pain. Either way it always has my mind in constant thought. I find myself always trying to find a way to combat negative thoughts about this disease. In that process I have found my mind wandering from my own needs to the needs of those I love and share my life with day to day.
I know many will say Aww what a noble gesture to think of someone other than yourself. But, I believe it is sometimes a trick to bring back excessive negative thoughts about dealing with Lupus. The reason I say this is because at times I get into a mood and in thought about how painful it is for me to see my loved ones hurt and have to deal with me as I deal with this disease. I look at my friends and family and the hardest thing for me is to see my loved ones miss the old me I used to be. I mean really if that is not my mind playing tricks on me trying to allow the negative to slip back into my thought pattern I don’t know what is.
The irony of it all, thinking about the feelings of someone else while being thrusted into a plethora of negative feelings and emotions. It’s crazy how that negative can creep in and slowly try to poison your mind and soul.
Sometimes I have to just shake myself out of it and remind myself of the good things that come out of having a life altering disease. I have to shake the negatives off in order to truly begin a journey into a tranquil way of life.
I am on a quest to live in tranquility through thoughts that increase my mental health in order to generate a better physical body. There is power in positive thinking and there is healing in tranquility.
I have lupus, Lupus does NOT have ME! #LupusInColor
Lupus Awareness Month Lupus Warrior Tips
31 Days of quick tips to help lupus warriors navigate through their lupus life. #LupusEmpowerment #LupusTips #LupusInColor #Day10
There are some things that can affect your body as you battle lupus without you realizing it. Things like…
The Weather-As we battle lupus we can be sensitive to changes in barometric pressure. If the weather goes from hot to cold or wet to dry, you can experience more aches and pains.
Media– What you read, what you watch or what you listen to can lighten your mood or bring it down. It can cause you undue stress that can cause flares.
Food Choices – Despite what you’ve read, there is no established diet for lupus. There are certain foods that may improve your symptoms as you live with lupus and there are certain foods that can worsen your flares and how you feel.
How Much You’ve Slept – 61% of individuals battling lupus state they do not rest well. With pain it can be difficult. A lack of sleep not only causes the immune system to go awry and makes you more susceptible to viral and bacterial infections, it also leads to the breakdown of immune self tolerance (tolerance of your immune system to your own body)
Self-Talk – As you battle lupus you can often have recurring negative thoughts and talk and negative thoughts and talk are very hard to give up. Negative self-talk can bring on flares and keep the flares longer. Learning to respond with a different course of self-talk can make a dramatic difference.
How Much You Move – Pain and limited mobility can stump movement as you battle lupus. The more you dont move the worse it seems to get. Exercise is an important way to take care of yourself and has many physical, emotional and social benefits.
Pay attention to these things that can dramatically affect your body, mind and spirit. #LupusInColor
The whirlwind of the holidays is finally over. Take some time to recover.
Lupus In Color Holiday Recovery:
1. Rest-Get some sleep: Make moments today to relax and just be. Your body needs it.
2. Make time to meditate: Take 5 minutes out of your day to just sit still and breathe. You deserve still moments to recharge.
3.Take a short walk: bundle up and take a short walk and enjoy the fresh air. The walk will help you relax some.
4. Write in your journal: Sit down and write out your feelings from the holiday. Get all the good and bad out of your mind and onto paper. It’s a form of great release.
5. Set boundaries: just say no if you need to. Dont feel like you have to say yes to everything.You can say no and not feel guilty.
6. Drink some hot tea: Grab a spot of tea and just enjoy the relaxation it brings. Allow the warmth to soothe you.
7. Read a good book: Take some time to read a book that you’ve wanted to read. Take your time to get into the fantasy of your imagination.
Make it a restful day. Try to limit your stress and practice some self care. Your body, mind and spirit will thank you.
GUIDE TO SURVIVING LUPUS: Cry when you need to. Scream. Shout. Lay on the floor. Sob in the shower. Be still. Run. Walk. Create. Live in your truth. Share your victories without fear. Listen to your body. Release your pain. Read. Seek support. Be a support. Be a friend. Find friends. Be real. Be honest about what you need and what’s going on with your body. Be courageous. Be strong. Be compassionate. Be vulnerable. Don’t be hard on yourself. Breathe. Don’t fear the hard times. Always understand how amazing you are fighting day by day. #LupusInColor
GSK receives US approval of Benlysta for intravenous use in children with lupus aged five years and above
FDA approval of Benlysta for intravenous use in children with lupus aged five years and above
April 27, 2019 • 2p-4:30p
Glen Allen Library Small Conference Room
Butterflies of Hope Lupus Support Group
LIVIN’ LA VIDA LUPIE
Practicing living a mindful Peaceful life beyond lupus.
Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor
World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys.
World Kidney Day aims to raise awareness of the importance of our kidneys to our overall health and to reduce the frequency and impact of kidney disease and its associated health problems worldwide.
Systemic lupus erythematosus (SLE) that affects the kidneys is called lupus nephritis. Lupus nephritis causes inflammation (swelling or scarring) of the small blood vessels that filter wastes in your kidney (glomeruli) and sometimes the kidneys, by attacking them like they would attack a disease.
About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. The part of the kidney most frequently troubled by lupus is a part of the nephron called the glomerulus, a tuft of capillaries that functions to filter substances from of the blood. For this reason, the type of kidney inflammation most commonly experienced in lupus is called glomerulonephritis. Fortunately, the prognosis for patients experiencing kidney lupus is improving due to the growing number of medications that physicians have in their arsenal.
#lupusincolor #educate #inspire #encourage #empower
As you battle lupus it’s all about balance. Balancing your eating habits, your workouts, your spirituality, your mental space, your time, your relationships, your stress and your life. If you don’t have some sort of balance you’ll be in a forever flare. #LupusInColor #Educate #Inspire #Encourage #Empower