Midweek Refuel 10/23
They Don’t Get It
Midweek Refuel 10/23
They Don’t Get It
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. It’s also normal to grieve for the loss of the life you had before lupus.
As you battle lupus, it’s normal to feel sad or down sometimes. After all, lupus will force you to make big adjustments in your life. Lupus can put a strain on your personal relationships, and make it hard to do some of the things you enjoy. All this can take a toll on you emotionally. But, feelings of sadness or depression that last more than a few weeks should be evaluated and treated.
Here are 11 steps you can take to somewhat alleviate the feelings if you have lupus and think you may have depression.
1. Talk With Your Doctor About Depression and Lupus
2. Aim for Acceptance of Your Lupus Diagnosis
3. Keep Self-Talk Positive, Avoid Negative Self-Talk
4. Surround Yourself With Supportive People
5. Take One Day at a Time
6. Watch Your Mood Closely
7. Keep a List of Ways to Feel Better
8. Connect With Your Spirituality
9. Be as Active as You Can With Lupus
10. Learn All You Can About Lupus
11. Keep Up Healthy Habits While Living With Lupus
People with a chronic illness such as lupus are at higher risk of depression. Studies show that as many as 60% of people with a chronic illness will have depression at some point in their lives.
It’s important to know the signs and take action to avoid depression spurts that can harm you emotionally and physically.
Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 5 Lupus Fact
The history of lupus begins in 1828 when the French dermatologist, Biett described the disease. For the next 45 years, studies of the disease showed nothing more than descriptions that emphasized skin changes. In the mid 1800’s, Pierre Cazenave was the first person to have a comprehensive description of lupus. The disease was named because of a wolf-bite shaped rash (the butterfly rash) that appears across the nose and cheeks of many lupus patients. “Lupus” is the Latin word for wolf.
This is your fifth butterfly of hope.
We need awareness and a cure!
Encourage everyone you know to let it FLY!
#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts
10 Things Should Know about People with lupus
1. They’re not faking it, the pain is real.
2. They’re not lazy , lupus can take a warrior down in an instance.
3. They often feel that they’re being judged since many of the scars of lupus can’t be seen.
4. They often feel like they’re being written off and are a burden to their loved ones.
5. They often struggle with a deep sense of shame and guilt for being sick.
6. Having a good day doesn’t mean they are cured it just means a flare has not taken them down for the count and they are feeling better for now.
7. Medications don’t always help, or take away the pain.
8. They have to work hard at loving who they have become in pain while mourning the healthier them that was before lupus.
9. Life as they knew it has changed and the adjustment is difficult.
10. They are the first fighters with the most loving hearts who look out more for others than themselves. #10Things #LupusInColor
On particularly rough days when I am at my wit’s end and feel like I can’t endure another moment, I try to remind myself that my track record for getting through bad days so far is 100%, and that’s not a bad record at all. Those moments of clarity in a rough lupus moment are magnificent. #LupusInColor
Too many times warriors beat themselves up and feel guilty for feeling good and walking in that power. They don’t want to get too excited for fear of the moment changing. As you beat lupus, you are allowed to be okay. Sometimes it might feel like you don’t deserve to feel okay, but you do! You deserve happiness beyond lupus. #LupusInColor
We hope you all have been walking daily with the Lupus In Color 30 Day Walk Challenge. 30 minutes a day for 30 days. The purpose was to create a habit beyond all the things in your day to get moving! Here is some information on what walking can do. We have one day left to the challenge, but you have already hit 30 days of walking 30 minutes a day!! YOU DID IT!!!!! WELL DONE!!! #LupusInColor
Bullet Journaling 101
On January 26 we held our monthly meeting and focused on bullet journaling.
Below is what we learned. #LupusInColor
How exactly do you start a bullet journal?
Come out and find out how you can get organized and focused on your lupus journey,
Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.
A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!
A supportive and fun learning session that will leave you inspired, encouraged and empowered!
Light refreshments will be served.
Journals provided as a gift from Lupus In Color #LupusInColor
People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor