We had an amazing conversation with Dr. Maggie Cadet, Rheumatologist. Dr. Cadet debunked myths and gave us facts. It was a great wrap up to Lupus Awareness Month. We were educated, inspired, encouraged and empowered. Thanks to everyone who was able to attend today. Please be on the lookout for Dr. Cadet’s information in our magazine that will share some great education for all to read. #LupusInColor #DrMaggieCadet
THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories
Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.
Flight of the Butterfly Shawnna-Lee James
My name is Shawnna-Lee, known online as Lee My officially diagnosed journey with Lupus began at the end of 2015, however I believe I may have developed lupus in 2009 or earlier. The skin on my scalp became extremely dry and covered in sores. I noticed I would go through times where my entire scalp was tender to the point where I couldn’t run a comb through my hair. And when I was able to, I was losing a lot of hair. I saw 3 specialist dermatology doctors from different hospitals who all diagnosed me as having various types of skin conditions. No tests were ever done but I was prescribed numerous different shampoos and ointments over the next 6 years. Nothing worked. In 2013 I had my first pain related hospitalization due to a sudden and excruciating pain in my back that came out of nowhere. The hospital didn’t really run any tests, I was released after 2 nights being told it was just chronic muscle inflammation. One thing I have learned from my diagnosis journey is you could see the doctors a thousand times with a variety of ailments and your Lupus will only be discovered if they are looking for the right thing.
Finally at the end of 2015, having gone to a new dermatology doctor again at a different hospital, the dermatologist finally said they need to do extensive blood tests to find out what might be the cause of my rapid hair loss. Those results revealed SLE at the end of 2015, age 28. Less than a year later I was diagnosed with Sjögren’s syndrome. I’ve been on Hydroxychloroquine since early 2016. I had a depressive episode in 2016 when I tried to deal with my new reality of daily pain and saying goodbye to the person I once was and the life I once had. I had to accept that this was my new reliability and that didn’t really sink in until the beginning of 2018. With the help of friends and family, especially my best friend Simonne (who is no longer with us). She pushed me to stay strong and be better than my Lupus. Now I am here today, speaking to hundreds of strangers about my journey. It’s scary at times but this is my therapy and this is my story. I am grateful for everything I have been through. Diagnosis: SLE, Sjögren’s, Raynaud’s, Serositis, Seborrheic dermatitis.
Main Symptoms: Fatigue, Joint pains, ankle swellings, chest pain, chronic muscle inflammation in my back, dry mouth and sores on my scalp. Daily Medications: Hydroxychloroquine, Mycophenolate, amitriptyline. Adhoc Medications: Colchicine, CoCodamol, Prednisolone occasionally when symptoms flare and 6-monthly steroid back injections.
Lupus In Color is excited to present Shawnna-Lee James’ story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.
Lupus In Color Salutes you Shawnna-Lee James. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!
PLEASE SHARE Shawnna-Lee James’ FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!
#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness
Join us for a candid conversation with Dr. Maggie Cadet, Rheumatologist, about lupus myths and facts. Help us wrap up lupus awareness month as we continue to educate, inspire encourage and empower lupus warriors worldwide. Sunday May 31, 2020 Instagram Live 1:30pm EST. #LupusInColor #drmaggiecadet
Meet us on Instagram Live @lupusincolor 1:30pm EST. TODAY
Dr. Magdalena “Maggie” Cadet is a well respected board certified clinical rheumatologist in New York City. Dr. Cadet’s interests have always focused on women’s health issues such as osteoporosis, issues relating to arthritis, autoimmune diseases such as lupus, sports medicine, and motivating others to live a healthier lifestyle. As a former competitive figure skater, former ballet dancer, pianist and current long distance runner, Dr. Cadet understands the importance of keeping one’s joints, muscles, bones and immune system healthy in order to maintain an active lifestyle and avoid serious injuries. She has dedicated her career to raising awareness of arthritis and autoimmune diseases which may cause significant disability and chronic pain in people, especially minority women. Her continuous clinical work, community outreach, and research in the field of arthritis and autoimmune diseases as well as her participation in national education about arthritis has resulted in her being a recipient of a Regional Leader Award by the Arthritis Foundation.
She is an active athlete and has completed running six Shape Fitness Half Marathon in NYC. For her knowledge in the area of sports medicine and autoimmune diseases, Dr. Maggie has also been featured in Essence, Prevention, The Ultimate Health Guide and online sites such as Lifescript, Healthline and Everyday Health. Her experiences as a rheumatologist were also captured in the book “Lupus: Real life, Real patients, Real Talk”. She has been a speaker for educational events held at Athleta, Lulu Lemon, Bandier and Equinox. She is also on the board of @LupusChick official. Dr. Maggie plans to continue her quest in motivating individuals living with osteoporosis, arthritis and autoimmune diseases to advocate for themselves and learn more about their disease and treatments while maintaining a healthy lifestyle.
Lupus Awareness Month Lupus Warrior Tips31 Days of quick tips to help lupus warriors navigate through their lupus life. #LupusEmpowerment #LupusTips #LupusInColor #Day31
Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 30th Lupus Fact
Research suggests 4-22% of those with lupus are male. Men develop the same typical clinical manifestations of lupus as women, yet certain key symptoms may be different. Kidney and skin involvement, for example, may be more common among men with lupus.
Lupus is not contagious. It can not be passed from one person to another. It cannot be transmitted sexually. There is no need to avoid being near someone who has lupus. The cause or causes of lupus are not known with certainty.
This is your 30th Butterfly of Hope. We need awareness! We need a cure! Encourage everyone you know to let it FLY!
LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth
This begins Lupus In Color Health week. We will be featuring different live zoom workouts that will help you combat some of your lupus symptoms, get moving and feel just a little bit better. Join us tomorrow afternoon at 2pm for our Mind workout with Monday Meditations with Lupus Warrior Steff Linden. We look forward to meditating with everyone.
Topic: Monday Meditations with Lupus In Color
Time: May 25, 2020 02:00 PM Eastern Time (US and Canada)
Join Zoom Meeting
Meeting ID: 753 8401 6718