Lupus Virtual Conversation

Join the ladies of Sigma Gamma Rho Sorority, Inc. Alpha Alpha Sigma Chapter and the Office of Equity and Civil Rights – Disability Commission Baltimore, for a

Lupus Awareness Month Virtual Conversation

Thursday, May 21, 2010 7pm EST.
Lupus Awareness

Panel discussion on Personal Experiences and the New Normal

This virtual conversation is FREE, registration is encouraged but not required. Registration can be found at https://bit.ly/2X6zicK
Join us on Zoom at ID 896 1254 2471 or on Facebook Live will be shared on the Lupus In Color Facebook page. Join us for a candid conversation for Lupus Awareness Month.

#LupusInColor #lupusvirtualconversation

Butterfly Flight Remantha Louw

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES

Butterflies of Hope Warrior Stories
Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Remantha Louw


My name is Remantha, I’m from South Africa, I am a lupus warrior. I am 20 years old and I was  diagnosed almost 2 years ago (in May it will be 2 years) I was 18 at the time and I was extremely sick for about 3 months. It started with me vomiting, after that I was diagnosed with arthritis. The doctor told me I had gland fever for a very long time. After dealing with all that, I was taken to a hospital to get stabilized. I was extremely scared because I thought I would die because all the tests that were run on me with no answers. It took doctors 3 days to discover what was actually wrong and then I was finally diagnosed with lupus.

I didn’t know anything about lupus, but I was extremely scared and I Googled my illness a lot after that. I was put on intense steroids and I started feeling better but after a week I could go home but I was extremely weak. I was also very depressed, all my friends left and my boyfriend didn’t want to be with someone who was sick. I felt very alone and I was depressed. I didn’t leave my room and I didn’t even leave my house until my mom and dad forced me to go shopping even though I was weak and tired.
I was still in high school and my high school forced me to write my end exam I was a senior in high school. I was in my last year and I was supposed to go to prom and I didn’t want to because I was extremely depressed. I did end up going though all because of my parents, they were my support system through all this.


I took my tablets everyday and I got better but gained a lot weight and since I was skinny before, I started hating my body. I always covered my body but with time I am still getting to be comfortable. My path with lupus hasn’t been the best, I still have bad days, but I do thank God for my life and I am willing to fight the good fight.


Lupus In Color is excited to present Remantha Louw’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Remantha Louw .

YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!


PLEASE SHARE Remantha Louw’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Lupus Awareness Month Fact 17

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 17 Lupus Fact

More than 90% of people with lupus have skin rashes, often triggered by exposure to the sun. Lupus warriors are particularly susceptible to sunburn which may lead to “prolonged erythema” (redness) and extreme fatigue. Sunlight may also cause the development of new lupus skin lesions and more lupus flares.

This is your 17th Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!
#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Faces of Lupus Episode 4

Friday Faces of Lupus

Lupus In Color 8th Annual Faces Of Lupus

Social Media Lupus Awareness Campaign

Lupus affects individuals of virtually every age, race, ethnic background and socioeconomic status. Often, you can look at a Lupus Warrior and never know they are fighting a tremendously hard battle daily. It’s important to see the faces that can bear the pain within without showing it to everyone who they come in contact with without.

These are the Faces of Lupus from every walk of life fighting the same battle. Supporting one another in the battle for their lives.

These are the Faces of Lupus, they are brave, courageous and strong!

#LupusInColor #FacesOfLupus #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness

Lupus Awareness Month Fact 15

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 15th Lupus Fact

THE MOST COMMON SYMPTOMS OF LUPUS ARE: EXTREME FATIGUE (TIREDNESS), HEADACHES, PAINFUL OR SWOLLEN JOINTS, FEVER, ANEMIA (LOW NUMBERS OF RED BLOOD CELLS OR HEMOGLOBIN, OR LOW TOTAL BLOOD VOLUME), SWELLING (EDEMA) IN FEET, LEGS, HANDS, AND/OR AROUND EYES, PAIN IN CHEST ON DEEP BREATHING (PLEURISY), BUTTERFLY-SHAPED RASH ACROSS CHEEKS AND NOSE, SUN- OR LIGHT-SENSITIVITY (PHOTOSENSITIVE), HAIR LOSS, ABNORMAL BLOOD CLOTTING, FINGERS TURNING WHITE AND/OR BLUE WHEN COLD (RAYNAUD’S PHENOMENON),MOUTH OR NOSE ULCERS.

This is your 15th Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Lupus Awareness Fact 14

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 14th Lupus Fact

Lupus Fact 14

There are four main types of lupus: Systemic lupus erythematosus (SLE), Cutaneous lupus erythematosus, Drug-induced lupus erythematosus and Neonatal lupus. Systemic lupus is the most common form of lupus. Cutaneous lupus is limited to the skin and can cause many types of rashes and lesions. Drug induced lupus is lupus-like disease caused by certain prescription drugs and neonatal lupus is a rare condition that affects infants of women who have lupus.

This is your 14th Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Lupus Awareness Month Fact 13

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 13th Lupus Fact

Battling lupus can be very difficult, not only physically, but monetarily. The yearly cost of treatment for lupus warriors ranges between $12,600 – $60,000 per lupus warrior depending upon treatments and severity of the manifestation of the disease.

This is your thirteenth Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth