Midweek Refuel 12-4
Staying on Task
Midweek Refuel 12-4
Staying on Task
As you battle lupus be BETTER: B.rave E.mpowered T.ransformed T.hriving E.xcited R.efined. Stronger and courageously living in every moment with power. Be Brave in your continued fight beyond lupus; Empowered enough to help another through this lupus journey,; Transformed in your mindset to stay strong; Thriving way beyond lupus. Be Excited that you’ve made it this far and be Refined beyond your pain to bring you positive power. Better. We all want it and operate in it daily. Be proud of how much better you are today than you were yesterday. Today together we are better. #LupusInColor
Don’t be so Hard on Yourself
Sometimes the scars of Lupus are very visible and sometimes they are not. It’s hard to inform people of a chronic infirmity that is not visible to the naked eye. But it is just as difficult to explain when the scars become visible.
I am not one for vanity. I mean, I love to look good because it helps me to feel my best, But vain is not a character trait I possess. Although many may look at me at me posting photos and assume oh she’s so vain always about herself, They really have no clue what I am all about.
Anyway, some days it’s easy to hide the fact that the insides of my body is in a constant fight for power over me. That they battle in a daily war for rights to my organs. That sometimes my mind gets involved in the battle and tries to fight for recognition only to forget why it tried to get in on the battle in the first place. Sometimes it’s easy to hide that….
Other times between the lupus butterfly rashes… the lupus lesions…the battle scars from treatments it’s hard. When the scars become recognizable scars for all to see and question or look at you like you have a disease that can be caught….it’s hard.
Now, don’t get me wrong the battle is always difficult. Just some days are easier to deal with than others.
I think anyone with a chronic illness tries to hide the scars, but when they become more visible it makes it more of a difficult pill to swallow. I say this because when you have a chronic illness you are forever battling with self to be positive and not succumb to the negatives of your illness. Couple that with the questions of your scars and battle wounds and it becomes difficult to handle at times.
I am here to not only encourage you but to encourage myself when the scars are so prominent that you just want to turn life off. *Click* just flip the switch and sit in the dark for no one to see not even yourself.
I’ve had to look at it differently. My scars aren’t a burden but a bountiful blessing to get awareness in the face of those that have never or would ever hear about Lupus. I look at my scars as battle wounds that are attached to the story of a fearless warrior that lives day to day in a treacherous fight for life.
Yeah… there are recognizable scars and battle wounds…. but they are my story… I can look at them and be sad and solicit pity from those around me. Instead, I choose to be strong when I can, allow my weak moments to peak and crawl through them, embrace the teaching moments and solicit support and love from those around me.
Is my attitude always positive about lupus and living beyond it…HELL NO.. sometimes I’m downright negative about it… but I have learned to live in that moment, appreciate it for what it is and pick myself up scars and all and start each day in a new way.
Your recognizable scars don’t define you they just give you an opportunity to tell the story of overcoming a battle. A story that all must hear including YOU!
I am the face of lupus that someone forgot to tell you about. Can you hear my story NOW? ~Racquel~
Butterflies of HOPE H.olding O.n P.urposely E.veryday
Holding • Holding on to the power of health and wellness beyond lupus. Believing that it is possible to be better, to be well, even when we are at our worst. Holding on to the possibility of a cure and complete total healing.
On • On top of advocacy for yourself. On top of education about your own lupus issues. On the ball with communication with your doctors, family and friends about all that goes on with you as you battle lupus. Being On top of being honest with yourself and others about how you really feel in order to not overdo it.
Purposely • Purposely living in spite of Lupus. Living in the purpose of getting better a nanosecond at a time. Being purposeful in reminding yourself of the importance of being well mentally and spiritually even when your body is not cooperating and you don’t want to be. Staying determined to stay purposeful in thinking right so that your body will respond with feeling right beyond lupus. Staying purposeful in your plan to defeat lupus at every turn. Living in purpose beyond lupus to lead a purposefully powerful life.
Everyday • Every day in every way making a conscious effort to get up, get dressed, get out and live beyond lupus. These everyday activities make a huge difference in your fight. Lupus can stifle your will to live. It can take your everyday and create a plethora of feelings that remove your spark to live. Every day you must make a concerted effort to change the way you think, act and react to living with lupus. Every day you must realize that live is amazing beyond lupus’ constraints and live with everyday activities that create a more positive tone in your fight. Every day you have to live like you mean it.
Holding On Purposely Everyday
Live in HOPE, Fight in HOPE
I am POWERFUL Beyond Lupus Manifesto
I promise NOT to be too hard on myself.
HELL I promise to love myself abundantly.
I will remember that my self worth is NOT
Based on the things Lupus can do to me,
How much weight I gain from medications
Or any other stupid crap I can’t control.
I will empower other Lupus Warriors,
Be KIND to myself and keep a sense of
Humor even in the rough times. I will do
My best NOT to judge myself or feel guilty
For resting on hard days. I will remind
Myself to Hold On Pain Ends. And even
on my worst days, I WILL remember
I AM POWERFUL BEYOND LUPUS!
April 27, 2019 • 2p-4:30p
Glen Allen Library Small Conference Room
Butterflies of Hope Lupus Support Group
LIVIN’ LA VIDA LUPIE
Practicing living a mindful Peaceful life beyond lupus.
Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor