World Kidney Day 2019

World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys.

World Kidney Day aims to raise awareness of the importance of our kidneys to our overall health and to reduce the frequency and impact of kidney disease and its associated health problems worldwide.

Systemic lupus erythematosus (SLE) that affects the kidneys is called lupus nephritis. Lupus nephritis causes inflammation (swelling or scarring) of the small blood vessels that filter wastes in your kidney (glomeruli) and sometimes the kidneys, by attacking them like they would attack a disease.

About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. The part of the kidney most frequently troubled by lupus is a part of the nephron called the glomerulus, a tuft of capillaries that functions to filter substances from of the blood. For this reason, the type of kidney inflammation most commonly experienced in lupus is called glomerulonephritis. Fortunately, the prognosis for patients experiencing kidney lupus is improving due to the growing number of medications that physicians have in their arsenal.

#lupusincolor #educate #inspire #encourage #empower

Antiphospholipid Antibodies

Lupus Facts: About 50 percent of people with lupus have antiphospholipid antibodies. Antiphospholipid antibodies interfere with the normal function of blood vessels and can lead to narrowing of the blood vessels or blood clots. These complications can lead to stroke, heart attack, and miscarriage.

#LupusInColor #educate #inspire #encourage #empower

Gospel Explosion

We had a magnificent time at the Gospel Explosion! Great music and great company. There was a joyful noise in the church and the Lupus Testimonies were great thank you Levern Hunt and Make A Joyful Noise created a great event to help spread lupus awareness. You are awesome!!! #LupusInColor

Not Just A Hashtag

Lupus In Color is not just a hashtag. It’s a movement to spread awareness to those who don’t know and don’t understand. It’s a movement to spread encouragement and praise to lupus warriors fighting for their lives. It’s a movement to empower people to lupus advocacy for better health policies and healthier lupus treatments. It’s the movement to spread positive hope to lupus warriors one butterfly at a time. Lupus In Color, it’s not just a hashtag. Help be a part of the movement! #LupusInColor #Educate #Inspire #Encourage #Empower

Lupus Judgements

I understand how this Lupus Warrior feels and I applaud her for getting this issue out to the public. But, we as warriors must NOT allow anyone to make us feel like we are unworthy or a freak. We have to work at keeping our own self esteem up and stay encouraged beyond the ignorance of others. When we are faced with situations we have to remember that everyone does not know about lupus, so we can’t automatically assume they are trying to be hurtful in their approach to us. When we encounter people that don’t understand or know about lupus it is our duty to educate them to empower ourselves.

73% of Americans between the ages 18-34 have either not heard about lupus or know little or nothing about lupus beyond the name.

Judgements and discrimination because of scars from lupus is real. Not just at the nail shop but at the grocery store, at the mall, at the movie theater. Lupus Warriors even face these same judgements and issues at hospitals and their doctors offices. All because many still do not know what lupus is. All because many continue to believe that lupus may be in someone’s head. All because people are not educated enough to understand lupus’ burdens. Another added mental strain to fighting lupus.

Video courtesy Fox11 Laguna California

For the record:

Lupus is a chronic, autoimmune disease which causes inflammation of various parts of the body, especially the skin, joints, blood and kidneys. The immune system normally protects the body against viruses, bacteria and other foreign material. In an autoimmune disease, like lupus, the immune system loses its ability to tell the difference between foreign substances and its own cells and tissues. The immune system then makes antibodies directed against itself.

Lupus is NOT infectious, rare, or cancerous.

Lupus is more prevalent than AIDS, sickle-cell anemia, cerebral palsy, multiple sclerosis and cystic fibrosis combined.

Some individuals have or will develop a type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs.

#LupusInColor #Educate #Inspire #Encourage #Empower

May 31 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a time

Let this butterfly flutter all over cyberspace!

May 31 Lupus Fact

While medical science has not yet developed a method for curing lupus, new research brings unexpected findings and increased hope each year.

This is your thirty-first butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#‎LupusInColor#‎ButterfliesofHope#‎FlightoftheButterflies#‎SpreadLupusAwareness

May 30 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a time

Let this butterfly flutter all over cyberspace!

May 30 Lupus Fact

Facing medical and financial crisis as a result of lupus can have a significant impact on a person and their family’s way of life. The average costs faced by Warriors can range from 12,000 thousand to over 65,000 thousand dollars per year. There are a variety of resources to assist in times of need. Scholarships, prescription assistance, food and transportation assistance and free or low-cost medical care, to name a few. But, not all will qualify and can face financial issues on top of issues from lupus.

This is your thirtieth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

Butterfly Flight Sharima Singleton

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Sharima Singleton

On October 22, 2017 I woke up and my whole face was swollen and I didn’t know what it was from. So I went to urgent care and they did a test and they said it was a lot of protein in my urine. The doctor told me to go to the hospital.

By the time I got to the hospital my ankles were swollen. So at this point I didn’t know what the hell was going on with me.They did a lot more test and they admitted me because they didn’t know why it was protein coming out.

They did a lot of tests to figure out what was going on and 4 days later they found out that I had systemic lupus erythematosus(SLE), an autoimmune disease that attacks good tissues in your body.

I had class 3 lupus but they didn’t know what type of lupus I had. I was in the hospital about 2 weeks and they figure out that I had lupus nephritis when lupus attacked my kidneys. I had to do a kidney biopsy to see how damage was done to my kidneys.

Today my kidneys are not really damage. My kidneys are less then 50% damaged and my kidney function is working fine. I was in and out the hospital bout 6 times since October. From the medicine I had experience hair loss. I had to change my eating and drinking habits.

I still had my good days and bad days and I still have flare ups, but not a lot, but I’m still a fighter. I’m still learning more stuff about it because it is still new to me.

It was hard at first but I got through it with the help of my supporters.

#lupuswarrior #lupusawareness #lupusfighter #lupussucks

Lupus In Color is excited to present Sharima’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Sharima Singleton.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Sharima’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬

May 29 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a time

Let this butterfly flutter all over cyberspace!

May 29 Lupus Fact

If you have lupus, you can expect to have times when you won’t feel well emotionally. Sometimes, lupus can prevent you from going out and doing the things you want to do. Maybe your lupus rash has flared up and you don’t look the way you’d like — it’s only natural that this can lead to feelings of sadness and stress in a person. When such feelings lead to depression, it’s known as reactive depression. The other, more commonly recognized form of depression is called chemical depression, (sometimes referred to as clinical depression), and it can go on for longer and be much harder to come out of. This type of depression, which is caused by a chemical imbalance in the brain, can make your lupus symptoms feel worse, and it needs to be treated.

This is your twenty-ninth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope#FlightoftheButterflies #SpreadLupusAwareness