May 22 Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 22 Lupus Fact

Lupus can affect the nervous system and brain. There are several terms doctors use to describe this: neuropsychiatric lupus (NPSLE), neurocognitive dysfunction, or central nervous system lupus (CNS lupus).

The nervous system has three parts, any of which may be affected by lupus:

The central nervous system (CNS)—The brain and spinal cord.

The peripheral nervous system (PNS)—The network of nerves that connects the brain and spinal cord to the rest of the body, and gives skin and muscles the signals needed for sensation and movement.

The autonomic nervous system (ANS)—Allows communication between spinal and peripheral nerves and the brain and internal organs, and controls functions like breathing, blood flow, and heart rate.

Lupus warriors can experience a number of complications when their nervous system is affected. The symptoms may come on suddenly or may come and go, but they will vary depending upon the location and extent of the tissue injury. These symptoms also can be present in other diseases, so diagnosing lupus-related nervous system disorders is often difficult.

This is your twenty-second butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 21 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 21 Lupus Fact


Chilblain lupus is a cutaneous form of systemic lupus erythematosus characterized by the appearance of painful bluish-red papular or nodular lesions of the skin in acral locations (including the dorsal aspects of fingers and toes, heels, nose, cheeks, ears, and, in some cases, knees) precipitated by cold and wet exposure.

This is your twenty first butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 20 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 20 Lupus Fact

THE DIRECT COSTS OF TREATING LUPUS CAN BE ENORMOUS. THE MEAN DIRECT MEDICAL COSTS IN MODERATE OR SEVERE CASE OF LUPUS IS APPROXIMATELY $22,300-83,000. THOSE WITH A MILDER CASE OF LUPUS IS APPROXIMATELY $8,900-15,000. PEOPLE WITH LUPUS ALSO FACE HIGH ANNUAL PHARMACY EXPENSES, WITH MEAN COSTS RANGING BETWEEN $1,572-13,138.

This is your twentieth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 19 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 19 Lupus Fact


Because lupus can affect so many different organs, a wide range of signs and symptoms can occur. These symptoms may come and go, and different symptoms may appear at different times during the course of the disease. Symptoms vary but can include fatigue, joint pain, rash, and fever. These can periodically get worse (flare-up) and then improve.

This is your nineteenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 18 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 18 Lupus Fact

Lupus Fatigue is real and over 80% of those with lupus experience fatigue. Complete exhaustion, for those affected by Lupus becomes a permanent part of life. Flare-related fatigue is a most difficult exhaustion. An unpredictable state of increased fatigue during increased inflammation and pain can last for days or weeks. Fatigue is one of the things that is hardest to combat.

This is your eighteenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

May 16 Lupus Fact

BUTTERFLIES OF HOPE

FLIGHT OF THE BUTTERFLIES

SPREADING LUPUS AWARENESS ONE BUTTERFLY AT A TIME

LET THIS BUTTERFLY FLUTTER ALL OVER CYBERSPACE!

MAY 16 LUPUS FACT

There are 4 different forms of lupus

Systemic lupus accounts for approximately 70 percent of all cases of lupus. In approximately half of these cases, a major organ or tissue in the body, such as the heart, lungs, kidneys, or brain will be affected.

Cutaneous lupus (affecting only the skin) accounts for approximately 10 percent of all lupus cases.

Drug-induced lupus accounts for about 10 percent of all lupus cases and is caused by high doses of certain medications. The symptoms of drug induced lupus are similar to systemic lupus; however, symptoms usually subside when the medications are discontinued.

Neonatal lupus is a rare condition in which the mother’s antibodies affect the fetus. At birth, the baby may have a skin rash, liver problems, or low blood cell counts, but these symptoms typically disappear completely after six months with no lasting effects.

This is your sixteenth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 15 Lupus Fact

BUTTERFLIES OF HOPE

FLIGHT OF THE BUTTERFLIES

SPREADING LUPUS AWARENESS ONE BUTTERFLY AT A TIME

LET THIS BUTTERFLY FLUTTER ALL OVER CYBERSPACE!

MAY 15 LUPUS FACT

Photosensitivity, also known as sensitivity to sunlight, is a common symptom of lupus, as 40 to 70 percent of people find that ultraviolet (UV) rays worsen their symptoms and cause flare-ups. Photosensitivity can affect people with both cutaneous and systemic lupus, causing symptoms such as rashes, fever, fatigue and joint pain.

This is your fifteenth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

Faces of Lupus Episode 4

Lupus In Color 7th Annual Faces Of Lupus
Social Media Lupus Awareness Campaign

Lupus affects individuals of virtually every age, race, ethnic background and socioeconomic status. Yet, some groups are notably affected with the disease. Lupus is three times more common in African-American women than in white women. It is also more frequent among women of Hispanic/Latina, Asian and Native American descent.

Often, you can look at a Lupus Warrior and never know they are fighting a bitter hard battle daily. It’s important to see the faces that can bear the pain within without showing it to everyone who they come in contact with without.

These are the Faces of Lupus from every walk of life fighting the same battle. Supporting one another in the battle for their lives.

These are the Faces of Lupus, they are brave, courageous and strong!

#LupusInColor #FacesOfLupus #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness

May 14 Lupus Fact

BUTTERFLIES OF HOPE

FLIGHT OF THE BUTTERFLIES

SPREADING LUPUS AWARENESS ONE BUTTERFLY AT A TIME

LET THIS BUTTERFLY FLUTTER ALL OVER CYBERSPACE!

MAY 14 LUPUS FACT

Living with a chronic illness like lupus can be incredibly challenging and taxing. Not just on your physical health, but on your mental and emotional health, too. It’s normal for a lupus warrior to struggle with feelings of grief, frustration, sadness or hopelessness after being diagnosed with a lifelong condition. Lupus can be unpredictable and its effects far-reaching, so when these feelings persist and a lupus warrior finds themselves struggling with anxiety or depression, they have to find ways to alleviate those feeling to know they are not alone in their fight. Many lupus warriors seek help in support groups, group and personal therapy as well as finding solace in sharing their stories with others.

This is your fourteenth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 13 Lupus Fact

BUTTERFLIES OF HOPE

FLIGHT OF THE BUTTERFLIES

SPREADING LUPUS AWARENESS ONE BUTTERFLY AT A TIME

LET THIS BUTTERFLY FLUTTER ALL OVER CYBERSPACE!

MAY 13 LUPUS FACT

Raynaud’s syndrome is a condition that affects circulation, causing decreased blood flow to the extremities (most commonly the fingers and toes). This can be triggered by several things, including cold weather and stress. Often the person’s fingers or toes will change colors due to the lack of blood flow, causing them to go white, red, blue or purple. Studies estimate that Raynaud’s occurs in up to one-third of people with lupus, usually resulting from inflammation of nerves or blood vessels.

This is your thirteenth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts