From The Heart

Lupus Thoughts From the Heart:

Some people only want to support stars in their journey with lupus when their neighbor just needs a listening ear. Some people rather put an “L” in the air with a superstar than get in the trenches to support the star in their home. We can walk all day, raise funds all night but if we aren’t encouraging and helping one another through the hard times it means nothing. We can wear shirts, sport purple, scream we need a cure and adorn the metamorphosis of a butterfly, but when we are in the hospital holding dear to the IV that sustains us for the moment and saying the prayers that keep us for a lifetime those who are right by our side is what truly matters.

It’s a beautiful thing to spread awareness, but if support is lacking the awareness is naught. In place of throwing up an L, spreading a lupus banner on FB, sending a tweet on twitter, make a concerted effort to encourage, support and reach out to those closest to you that are fighting so hard every second of every day. #LupusInColor

World Kidney Day 2019

World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys.

World Kidney Day aims to raise awareness of the importance of our kidneys to our overall health and to reduce the frequency and impact of kidney disease and its associated health problems worldwide.

Systemic lupus erythematosus (SLE) that affects the kidneys is called lupus nephritis. Lupus nephritis causes inflammation (swelling or scarring) of the small blood vessels that filter wastes in your kidney (glomeruli) and sometimes the kidneys, by attacking them like they would attack a disease.

About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. The part of the kidney most frequently troubled by lupus is a part of the nephron called the glomerulus, a tuft of capillaries that functions to filter substances from of the blood. For this reason, the type of kidney inflammation most commonly experienced in lupus is called glomerulonephritis. Fortunately, the prognosis for patients experiencing kidney lupus is improving due to the growing number of medications that physicians have in their arsenal.

#lupusincolor #educate #inspire #encourage #empower

Antiphospholipid Antibodies

Lupus Facts: About 50 percent of people with lupus have antiphospholipid antibodies. Antiphospholipid antibodies interfere with the normal function of blood vessels and can lead to narrowing of the blood vessels or blood clots. These complications can lead to stroke, heart attack, and miscarriage.

#LupusInColor #educate #inspire #encourage #empower

Balance

As you battle lupus it’s all about balance. Balancing your eating habits, your workouts, your spirituality, your mental space, your time, your relationships, your stress and your life. If you don’t have some sort of balance you’ll be in a forever flare. #LupusInColor #Educate #Inspire #Encourage #Empower

Night of Beauty

ARLINGTON, VA LIC MEMBERS THIS IS A GREAT EVENT. REGISTER TODAY!

MARCH 7

Lupus community! Register with family and friends to attend Night of Beauty on March 7 in Arlington, Virginia. You can connect with local lupus community members, and lupus patients get a free mini makeover by professional NARS artists and gain valuable education about your disease! RSVP now because space is limited. https://wegoh.co/2VaJcaw.

Sponsored by GSK. #LupusInColor #WEGOHealth #USInLupus #GSK

RIP Jessica Morse-Coley

Another Lupus Warrior has gained her heavenly wings. Rest In Peace Jessica Morse-Coley! You have earned your angel wings and can fly free of pain. Everyone please say a prayer of strength and comfort to be granted to her family, friends and lupus warriors mourning her passing. #LupusInColor

LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

Merry Christmas

Merry Christmas! I know that this time of year can be hard for you as you battle lupus. You may have lost loved ones due to lupus issues and complications or you’re just getting through a difficult time or are still going through some rough times. It’s hard for me too, I understand what you’re going through! But, I feel so blessed to be able to reflect on the memories and cherish the love of my family and friends that are still present in my life. Today, don’t focus on your pain but on love. Sometimes we can focus so much on what’s missing, what’s hurting in this lupus fight and forget to see all that is good and all the love right in front of us. I suggest if you are feeling down today try giving some love away, first start with the person in the mirror, it’s a great spirit lifter and motivator. Be blessed, be encouraged and be a blessing! #GiveSomeLoveAway #LupusInColor

Be Gentle

Be gentle with yourself as you battle lupus. You’re trying and if it takes you longer than you thought to achieve something or get somewhere that’s okay. Don’t compare yourself to others or who you were before lupus, because not everyone gets to where they need to be right away. You’re alive that’s what matters. Keep trying, keep fighting, because so far you’ve beaten lupus 100% up until this living day. #LupusInColor