MIDWEEK REFUEL April 1

It’s hard not to let the issues of the world to consume you. It’s especially hard when you are fighting for your life as you defeat lupus daily. Fear of the unknown can really create a lot of anxiety and stress and this can cause massive lupus flares.

However there are things you can do to alleviate your anxiety, your fears and stress around what’s going on around you. And, it’s not just about quelling the fear in the moment, but learning coping skills that can last you a lifetime.

So, today’s Midweek Refuel focuses on garnering HOPE, H.ealing O.ver P.ain E.veryday in a time when anxiety and stress can try to overtake you. We know that anxiety, fear and stress is normal and it’s okay to feel these emotions. But, it’s sometimes hard to detach from those emotions especially as you battle lupus daily.

In the next few moments I want to provide some tips that may be able to help you through some difficult emotions and maybe a few stressful days. Some things you may already be doing others you may want to try. I just want you to know you can remain hopeful even during times of immense stress and anxiety.

1. Reconnect With Nature: All you have to do here is walk out your front door. Whether it’s just a few deep breaths as you stand outside your front door, or a short time as you sit on a patch of grass, or simply taking a walk through your neighborhood… Reconnecting with nature gives you the opportunity to enjoy simply being alive. We can’t all stand on the moon and exclaim how beautiful our earth is, but we can all take one minute to surround ourself with the power of nature. It has a way of creating a perspective in life that is real, that is powerful and strong.

2. Focus On Spirit: The surest way to alleviate stress and suffering is to find meaning in it. Whether it’s through mediation, personal prayer, asking friends and family to pray for you, cultivating your own sense of spirit surrounding and supporting you, these are all such important ways to alleviate stress, anxiety and fear and encourage hope. Finding a deeper, spiritual meaning in what you are going through is important in instilling hope and faith to see those difficult moments through.

3. Play Music: If you are feeling stressed or depressed, especially since you aren’t able to leave your current surroundings, put on some music and allow it to sweep through your soul and lift your spirits higher. Music is an amazing healer and can meet you where you are.

4. Reach Out To Your Support System: There IS a support system around you, even if you don’t think you have a friend in the world. If you are having a stressful crisis, ask for help. There are butterfly angels that are out there waiting to embrace and help you. They need to support you and they need your support as well. There is power in knowing you are not alone.

5. Move And Get Moving: There is something about a fresh start during times of stress that is symbolic. It can help you move towards healing and help usher in new, positive and hopeful energy instead of feeling stuck battling lupus. You may not be able to physically move out if the space you are in but, you can go through your entire home with the idea of bringing in fresh energy. You can freshen up the plants in each room, rearrange whatever furniture you can, add a mirror or two and burn candles in the evenings to help create a new flow of refreshing light through old, dark and depressing spaces. Doing this in turn gets you moving which will help create endorphins that can bring you hope and happiness.

6. Focus On The Possibility

When the going gets tough, skepticism and cynicism can take center stage and can literally take over your life. The naysayers within you will scream things like “it can’t be done,” “we’ll never make it,” “it’s impossible,” etc. You have to be willing to think out of the lupus box and shut the naysayer in you down. Focus on what really matters and why it matters. We feel hope when we connect with that part of ourselves that wants to make the possibility a true reality.

7. Give Yourself Some Compassion: “You can search throughout the entire universe for someone who is more deserving of your love and affection than you are yourself, and that person is not to be found anywhere. You yourself, as much as anybody in the entire universe deserve your love and affection.” ~Buddha~ Self-criticism is a common problem, especially as you fight lupus for your life. It not one to be overlooked and the way you talk to yourself plays a vital role in well-being and healing in your lupus fight. It’s important to overcome your inner critic by strengthening your self-compassion and fostering a sense of acceptance beyond the anger and sadness we can have as we battle lupus.

Bringing a genuine sense of hope and optimism in your life can truly make a difference in your stress and anxiety. It can help you heal beyond the grips of lupus. Realizing that you have choices, power, and the the strength to continue fighting, goes a long way towards re-claiming a sense of hope.

Reclaiming your Healing Over Pain Everyday is a most important part in your lupus fight. It will lead you to have a more fulfilling life beyond the grips of lupus. It’s time for you to get back a sense of hope that will last a lifetime. It’s up to you, it’s your choice and you have the power to make it so.

#LupusInColor #MidweekRefuel #HOPE #healing #over #pain #everyday

Coronavirus & Lupus

Coronavirus Disease 2019 called COVID-19 and Lupus

Coronavirus is a group of different viruses that have a crown-like form (corona). Most types of corona virus cause colds (another virus, rhinovirus, is the most common cause of colds). However, recent years have seen epidemics with more serious infections in the form of SARS (Severe Acute Respiratory Syndrome) 2002-2003, MERS (Middle East Respiratory Syndrome) 2012 and in December 2019, an epidemic started from the city Wuhan in China with the virus covid-19, also called the 2019 nCoV or the Wuhan virus.

People with lupus are predisposed (at greater risk) to infections because of both their disease as well as the medications they take to manage it. Given that people with lupus are at higher risk for a number of types of infections, including viruses, it is only natural to be concerned about the coronavirus.

The Centers for Disease Control and Prevention (CDC) is closely watching the coronavirus both internationally and here in the U.S., while the risk of widespread infection continues to be low in the U.S., It is important for you to look after your health and keep your risk of infection low.

There is currently no vaccine to prevent coronavirus disease 2019 (COVID-19). The best way to prevent illness is to avoid being exposed to this virus. However, as a reminder, CDC always recommends everyday preventive actions to help prevent the spread of respiratory diseases, including:

  • Avoid close contact with people who are sick.
  • Avoid touching your eyes, nose, and mouth.
  • Stay home when you are sick.
  • Cover your cough or sneeze with a tissue, then throw the tissue in the trash.
  • Clean and disinfect frequently touched objects and surfaces using a regular household cleaning spray or wipe.
  • Follow CDC’s recommendations for using a facemask.
  • CDC does not recommend that people who are well wear a facemask to protect themselves from respiratory diseases, including COVID-19.
  • Facemasks should be used by people who show symptoms of COVID-19 to help prevent the spread of the disease to others. The use of facemasks is also crucial for health workers and people who are taking care of someone in close settings (at home or in a health care facility).
  • Wash your hands often with soap and water for at least 20 seconds, especially after going to the bathroom; before eating; and after blowing your nose, coughing, or sneezing.
  • If soap and water are not readily available, use an alcohol-based hand sanitizer with at least 60% alcohol. Always wash hands with soap and water if hands are visibly dirty.

These are everyday habits that can help prevent the spread of several viruses.

Lupus warriors who think they may have been exposed to COVID-19 should contact their healthcare provider immediately.

Information gathered from several online sources including, but not limited to the CDC, Lupus Research Alliance and Lupus Foundation of America. Art by Singapore artist Weiman Kow. Infographic by Curtis Newbold

View the information in one PDF file Coronavirus & Lupus

Spread Lupus Awareness

Lupus In Color Butterflies of Hope
Flight of the Butterflies
Lupus Awareness Month Campaign

An estimated 16,000 people develop lupus each year but Lupus awareness is lacking.

What can you do to support and spread awareness? I’m glad you asked

• Join Lupus In Color in spreading lupus awareness.
• On May 10, Take the Lupus In Color Awareness Pledge and encourage others to do the same.
• Educate someone about lupus. Make them aware of what lupus is all about.
• Share Lupus In Color facts with your family and friends.
• Learn about lupus and its affects on the person and the effects on the family.

Support a lupus warrior today!
Someone you know has lupus.
Be a support.
Be a help.
Spread the Awareness!
#LupusInColor #Educate #Inspire #Encourage #Empower #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #MayIsLupusAwarenessMonth

LIVIN’ La Vida Lupie

April 27, 2019 • 2p-4:30p

Glen Allen Library Small Conference Room

Butterflies of Hope Lupus Support Group

LIVIN’ LA VIDA LUPIE

Practicing living a mindful Peaceful life beyond lupus.

Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor

Toni Braxton Talks Lupus

Many may have gone through this, are going through this or have had these feelings. It’s important to talk it out and really understand your feelings and how it relates to what’s going on on your life. #LupusInColor

Video portion courtesy of Red Table Talk we do not own the right to the video or its contents.

Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3