Butterfly Flight Katrina Alva

THE 8TH ANNUAL FLIGHT OF THE BUTTERFLIES
Butterflies of Hope Warrior Stories

Flight of the Butterflies, Butterflies of Hope Warrior Stories is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies, Butterflies of Hope Warrior Stories is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Katrina Alva

“Today I decided to smile”

For over a year I been experiencing pain not knowing why or what was causing me to hurt. A few doctor’s took a look at me and say I don’t see the problem, you look healthy lab work shows nothing. In December 2019, I went to a new doctor to try figure out what’s going on with me. At the Arizona Arthritis Specialist Rheumatologist Clinic the office did lab again for the 3rd time. The trip was worth it, they found out what’s going on with me. I am not happy about the results but at least I know and I have a treatment plan. I lost my grandmother 2 years ago to Lupus I watched her fight for years. I know and understand not how she truly felt.

Everyday is a struggle for me, I am grateful for the good days. I am blessed to have a great support from family and friends.

I am a Lupus warrior

Today I brought myself flowers!!
I am praying for more days like today.

Lupus In Color is excited to present Katrina Alva’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.
Lupus In Color Salutes you Katrina Alva.
YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY. YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY! FLY ON!

PLEASE SHARE Katrina Alva’s FLIGHT ON YOUR SOCIAL MEDIA PAGES AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Lupus Awareness Month Wrap Up TODAY


Join us for a candid conversation with Dr. Maggie Cadet, Rheumatologist, about lupus myths and facts.  Help us wrap up lupus awareness month as we continue to educate, inspire encourage and empower lupus warriors worldwide.  Sunday May 31, 2020 Instagram Live 1:30pm EST.  #LupusInColor #drmaggiecadet

Meet us on Instagram Live @lupusincolor 1:30pm EST. TODAY

Dr. Magdalena “Maggie” Cadet is a well respected board certified clinical rheumatologist in New York City. Dr. Cadet’s interests have always focused on women’s health issues such as osteoporosis, issues relating to arthritis, autoimmune diseases such as lupus, sports medicine, and motivating others to live a healthier lifestyle. As a former competitive figure skater, former ballet dancer, pianist and current long distance runner, Dr. Cadet understands the importance of keeping one’s joints, muscles, bones and immune system healthy in order to maintain an active lifestyle and avoid serious injuries. She has dedicated her career to raising awareness of  arthritis and autoimmune diseases which may cause significant disability and chronic pain in people, especially minority women. Her continuous clinical work, community outreach, and research in the field of arthritis and autoimmune diseases as well as her participation in national education about arthritis has resulted in her being a recipient of a Regional Leader Award by the Arthritis Foundation.

She is an active athlete and has completed running six Shape Fitness Half Marathon in NYC. For her knowledge in the area of sports medicine and autoimmune diseases, Dr. Maggie has also been featured in Essence, Prevention, The Ultimate Health Guide and online sites such as Lifescript, Healthline and Everyday Health. Her experiences as a rheumatologist were also captured in the book “Lupus: Real life, Real patients, Real Talk”. She has been a speaker for educational events held at Athleta, Lulu Lemon, Bandier and Equinox. She is also on the board of @LupusChick official. Dr. Maggie plans to continue her quest in motivating individuals living with osteoporosis, arthritis and autoimmune diseases to advocate for themselves and learn more about their disease and treatments while maintaining a healthy lifestyle.

Lupus Awareness Month Fact 28

Butterflies of Hope – Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a time

Let this butterfly flutter all over cyberspace!

May 28th Lupus Fact

Contrary to popular opinion, Lupus can be fatal. Many times the cause of death is not listed as lupus, but the condition such as stroke, heart attack, pneumonia, kidney failure or seizure was caused by a complication of lupus.

This is your 28th Butterfly of Hope.We need awareness! We need a cure!Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Lupus Awareness Month Fact 26

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 26th Lupus Fact

Lupus Awareness Month Fact 26

Sometimes, lupus warriors can experience the whole range of clinical symptoms and laboratory findings of two well-defined autoimmune diseases at the same time—even those that are not part of one or the other disease. When this happens, they are said to have overlap syndrome. Overlapping autoimmune disease is common in SLE diagnosis. There are some common diseases associated with lupus, they include but are not limited to: Scleroderma, Rheumatoid Arthritis, Mixed Connective Tissue Disease, Raynaud’s Syndrome, Sjogren’s Syndrome, Autoimmune thyroid disease, Celiac disease, Myasthenia gravis, Antiphospholipid syndrome, Polymyositis, Dermatomyositis and Fibromyalgia.

This is your 26th Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!
#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Lupus Awareness Month Fact 13

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 13th Lupus Fact

Battling lupus can be very difficult, not only physically, but monetarily. The yearly cost of treatment for lupus warriors ranges between $12,600 – $60,000 per lupus warrior depending upon treatments and severity of the manifestation of the disease.

This is your thirteenth Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Lupus Awareness Pledge

Take the Lupus In Color Lupus Awareness Pledge

• LEARN THE FACTS ABOUT LUPUS

• WEAR PURPLE ON PUT ON PURPLE DAY MAY 15

• SPREAD LUPUS AWARENESS VIA SOCIAL MEDIA BY SHARING BUTTERFLIES OF HOPE FACTS AND STORIES

• TAKE ACTION TO HONOR A FAMILY
MEMBER OR FRIEND BY SHARING YOUR EXPERIENCES WITH LUPUS TO HEIGHTEN AWARENESS

• START A CONVERSATION WITH OTHERS ABOUT LUPUS

Share with others and ask them to take the pledge to support Lupus Warriors. Share the message spread the awareness!

#LupusAwarenessPledge
#ShareTheMessage
#SpreadLupusAwareness #LupuslnColor

Spread Lupus Awareness

Together we can spread awareness. Let’s help others get educated and spread awareness. Support Lupus Warriors! #LupuslnColor #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness

Spread Lupus Awareness

Lupus Awareness Month Fact 6

Butterflies of Hope – Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 6th Lupus Fact

Lupus is more prevalent than aids, sickle-cell anemia, cerebral palsy, multiple sclerosis and cystic fibrosis combined. Lupus affects 1 out of every 185 Americans. Few people know about lupus, which has led to some myths about what lupus is.

This is your sixth Butterfly of Hope.
We need awareness! We need a cure!
Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusAwarenessMonth

Butterfly Flight Lori Heller

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Lori Heller

My name is Lori Heller, I was diagnosed with Lupus at the age of 39 in the year 1999. It took almost 10 years for me to get a diagnosis. I have been managing my illness now for 20 years. I was also diagnosed with Antiphospholipid syndrome, anticardiolipin syndrome, vasculitis , Sjogrens, and Hashimotos thyroiditis. My lupus affects my brain mostly . I have had 4 strokes since my diagnosis. Lupus pneumonitis, and many episodes of where I cannot move my arms and legs and this will resolve in a couple of weeks. Now that I am 59 years old it is affecting my cognitive and memory . I am pretty much home bound at this point and need assistance getting out . I have to use a cane or a walker to walk long distances. I have tried all the immunosupressants and failed . I am currently on a long term dose of Prednisone which is helping. But will start weaning soon due the long term affects.

I am a single mom with 3 adult children, and 3 grandsons. I worked as a Nurse since 1981 caring for chronic ill seniors. I then worked in the insurance industry assisting patients with chronic illness get the appropriate medical care. I stopped working last year due to advancement of my Lupus. My Rheumatologist tells me that I have severe lupus at this time. I am fortunate that it does not involve my kidneys and heart at this time.

I recently started a facebook page Lori’s Lupus Journey to start with education and awareness of Lupus. Many people know the name of Lupus but do not know what it is.

Lupus In Color is excited to present Lori Heller’s story to the world. As a Lupus Warrior he/she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Lori Heller . YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Lori Heller’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

Faces of Lupus Episode 9

Lupus In Color 7th Annual Faces Of Lupus

Social Media Lupus Awareness Campaign

Lupus affects individuals of virtually every age, race, ethnic background and socioeconomic status. Yet, some groups are notably affected with the disease. Lupus is three times more common in African-American women than in white women. It is also more frequent among women of Hispanic/Latina, Asian and Native American descent.

Often, you can look at a Lupus Warrior and never know they are fighting a bitter hard battle daily. It’s important to see the faces that can bear the pain within without showing it to everyone who they come in contact with without.
These are the Faces of Lupus from every walk of life fighting the same battle. Supporting one another in the battle for their lives.
These are the Faces of Lupus, they are brave, courageous and strong!

#LupusInColor #FacesOfLupus #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness