RIP Jessica Morse-Coley

Another Lupus Warrior has gained her heavenly wings. Rest In Peace Jessica Morse-Coley! You have earned your angel wings and can fly free of pain. Everyone please say a prayer of strength and comfort to be granted to her family, friends and lupus warriors mourning her passing. #LupusInColor

LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

Be Mindful

Someone said to me to stop saying I have lupus because I make it so, that I manifest it more in my body. Now, I know words have power, but the reality is I didn’t speak lupus into my body. None of us did. Although I know how we see ourselves and speak to ourselves as we battle lupus is important, I also know that saying I don’t have lupus, when in fact I do, is detrimental to me doing what I need to do to treat lupus and beat it daily.

Just a note to those who mean well but don’t think before stating things that are harmful to those in this lupus fight, stop speaking from a place of the unknown. Every Lupus warrior has gone through a mourning period which includes the battle with denial to acceptance. You stating ‘stop saying you have lupus’ places one back into a denial stage. Lupus is not a person’s fault and it isn’t manifested in their body because they say what their diagnosis is. Lupus won’t just go away because a warrior doesn’t say they have lupus, if it was that easy we all would not have lupus.

Please be mindful of what you say to lupus warriors. It’s not an easy condition to deal with. We all understand we have lupus but it is not us and we don’t need anyone to try and make it seem so simple as to stop talking about it to make it go away. We appreciate your well intentions, but please understand all we have to deal with in our battle and only speak words that you know will strengthen us in our fight. #LupusInColor

EffUCeeKay Lupus

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor

Purpose In Change

Once you are diagnosed with lupus your life will change. It doesn’t mean it changes for the worse, but it will just change. Things that used to mean so much, will be replaced with things that you need to survive. People that used to take up so much of your time with nonsense, will be replaced with people that work to give your life meaning. The simple things in life will become the best things you’ve ever seen and life as you know it will be filled with special moments in pain that become the best times in your life to grow stronger. Life after a Lupus diagnosis will change, but it doesn’t mean it changes for the worse. Make it your duty to take every moment for what it is. Get up after you’re knocked down, wipe yourself off and begin again. You have changed and it’s okay. Your life still has meaning and purpose in your change. #LupusInColor

Manage Lupus

4 Steps to Manage Your Lupus for Life

1. Learn About Lupus – Learn as much as you can about lupus and the effects it can have on your body. Don’t be overwhelmed or angry as you learn. Since lupus is a disease of varying issues it’s important to know that every lupus journey is different.

2. Know Your Lupus ABCs – A Know ALL of your tests and levels. Work with your doctor to find out what tests they are taking and why. Keep on track of your levels as they show inflammation and other things that happen in your body. B BLOOD PRESSURE If your blood pressure gets too high, it makes your heart work too hard. It can cause a heart attack, stroke, and damage your kidneys and eyes. C CARING for your self. Find out how you can properly care for yourself while battling lupus on a daily basis.

3. Learn How to Live with Lupus -It is common to feel overwhelmed, sad, or angry when you are living with lupus. Learn to cope with lupus through limiting your stress, eating healthy, being active and sticking to the plan of treatment every day.

4. Get Routine Care to Stay Healthy – See your health care team to find and treat any problems early. You will see many doctors, so make sure you are communicating well with every doctor and keeping them in your lupus loop together. Don’t feel intimidated to be your best healthcare advocate.

#LupusInColor

Holiday Pouch Drive

Hello all, Lupus In Color is launching a Holiday Pouch Drive for Lupus! This year, Lupus In Color is adopting the patients at Henrico Doctors Infusion Center to receive Holiday Pouches, filled with goodies.

I personally spend a lot of time there every month receiving chemo infusions and treatments for my own personal battle with lupus. I understand the importance of receiving items that can make your infusion more comfortable. Our goal is 50+ Pouches! Lupus In Color will fill each pouch with goodies to help make time at the infusion center just a little bit easier.

For as little as $10 you can sponsor 2 pouches for men and women who fight daily for their lives. It’s a small act of kindness that will go a long way.

Please take a moment and donate and help us help those who battle lupus daily.

https://www.facebook.com/donate/491951027958300/