LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

Merry Christmas

Merry Christmas! I know that this time of year can be hard for you as you battle lupus. You may have lost loved ones due to lupus issues and complications or you’re just getting through a difficult time or are still going through some rough times. It’s hard for me too, I understand what you’re going through! But, I feel so blessed to be able to reflect on the memories and cherish the love of my family and friends that are still present in my life. Today, don’t focus on your pain but on love. Sometimes we can focus so much on what’s missing, what’s hurting in this lupus fight and forget to see all that is good and all the love right in front of us. I suggest if you are feeling down today try giving some love away, first start with the person in the mirror, it’s a great spirit lifter and motivator. Be blessed, be encouraged and be a blessing! #GiveSomeLoveAway #LupusInColor

You Prove It

People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor

Our Goal

Our goal is NOT to make you feel bad as you battle lupus.
Our goal is NOT to minimize anything you go through in your lupus journey.
Our goal IS to help you think a little differently so your stress will be less and your lupus flares will not be exasperated to a point of no return. Our goal IS to give you hope when you feel hopeless. To give you a voice when you feel no one hears you. To be a support when you feel all alone. #LupusInColor

Lupie Gurl Episode 7

Life of a Lupie Gurl.. Episode 7

Lupus really trips out sometimes. I mean really trips out. It’s like when lupus doesn’t see me for a day or so she comes back with a vengeance. So, today I went to get out of bed and lupus decided that my feet were all hers. I placed my feet on the floor, thought I had it made took a couple of steps and *BAM* I was greeting the floor. “Oh hello floor you are always there to catch me, I love you!” I couldn’t even cry, I could only laugh and think DAMN! I laid there as I laughed and said (in my Michael Jackson voice) “Lupus you really knocked me off my feet now baby *hee hee*.” I eventually got up and made my way to the bathroom with semi swollen sausage toes leading me into the day.

Life of a Lupie Gurl, its not always pretty but there’s no reason I can’t laugh it out.

That Lupie Gurl Classy, Sassy and a bit Smart Assy, beating lupus one laugh at a time! #LupusInColor

Be Mindful

Someone said to me to stop saying I have lupus because I make it so, that I manifest it more in my body. Now, I know words have power, but the reality is I didn’t speak lupus into my body. None of us did. Although I know how we see ourselves and speak to ourselves as we battle lupus is important, I also know that saying I don’t have lupus, when in fact I do, is detrimental to me doing what I need to do to treat lupus and beat it daily.

Just a note to those who mean well but don’t think before stating things that are harmful to those in this lupus fight, stop speaking from a place of the unknown. Every Lupus warrior has gone through a mourning period which includes the battle with denial to acceptance. You stating ‘stop saying you have lupus’ places one back into a denial stage. Lupus is not a person’s fault and it isn’t manifested in their body because they say what their diagnosis is. Lupus won’t just go away because a warrior doesn’t say they have lupus, if it was that easy we all would not have lupus.

Please be mindful of what you say to lupus warriors. It’s not an easy condition to deal with. We all understand we have lupus but it is not us and we don’t need anyone to try and make it seem so simple as to stop talking about it to make it go away. We appreciate your well intentions, but please understand all we have to deal with in our battle and only speak words that you know will strengthen us in our fight. #LupusInColor

Toni Braxton Talks Lupus

Many may have gone through this, are going through this or have had these feelings. It’s important to talk it out and really understand your feelings and how it relates to what’s going on on your life. #LupusInColor

Video portion courtesy of Red Table Talk we do not own the right to the video or its contents.

Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3

EffUCeeKay Lupus

I could complain about what lupus does to me, but what will that solve? I’ll say this though… Lupus you summummabish, I can’t wait until you rot in hell! You sick twisted bastard! Kick rocks barefoot and kiss my cocoa brown ass as I get up when you try and knock me out. You hit like a bitch and I’m shaking that crap off and continuing to live. EFF-U-CEE-KAY You Lupus! That is all. I think that was more productive than woe is me. I feel so free! *Flinging the mic across the room* … mumbling dis bitch gonna have me choke her out…. #LupusInColor

Purpose In Change

Once you are diagnosed with lupus your life will change. It doesn’t mean it changes for the worse, but it will just change. Things that used to mean so much, will be replaced with things that you need to survive. People that used to take up so much of your time with nonsense, will be replaced with people that work to give your life meaning. The simple things in life will become the best things you’ve ever seen and life as you know it will be filled with special moments in pain that become the best times in your life to grow stronger. Life after a Lupus diagnosis will change, but it doesn’t mean it changes for the worse. Make it your duty to take every moment for what it is. Get up after you’re knocked down, wipe yourself off and begin again. You have changed and it’s okay. Your life still has meaning and purpose in your change. #LupusInColor