MIDWEEK REFUEL 12-25

MIDWEEK REFUEL 12-25
HOPE H.ealing O.ver P.ain Everyday

The holidays are so hard to deal with as you battle lupus. You may be battling depression, grief, anger, or sadness. It’s so easy for someone to say just think about the good in your life to get over it all. The reality is, it’s not that easy. What I can tell you is this, sometimes you won’t be able to get over the hard times.  Especially during the holiday. It will take you releasing those feelings just to get through some tough memories and moments. It will take you realizing that those feelings aren’t bad, they are just a part of an experience you have had. It will take you a few moments to get out of your feelings and into your living in the now beyond it all. Take the time to get through and then make time to live beyond. As I said it will not be easy but it will surely be worth it for you in the long run. Just by making a conscious decision to make life liveable makes a difference in the way you walk through your fires. These issues may never go away but you can lessen the effects they have on your life. Through it all, make sure you always have HOPE. HEALING OVER PAIN EVERYDAY!

This has been your MIDWEEK REFUEL for Christmas December 25, 2019. Whatever you do for the rest of the night, make sure you are educated, inspired, encouraged and empowered beyond the pain and issues of lupus. #educate #inspire #encourage #empower  #LupusInColor #MidweekRefuel

MAY 28 Lupus Fact

Butterflies of Hope

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a Time

Let this butterfly flutter all over cyberspace!

May 28 Lupus Fact

Having lupus can make everyday life challenging. When lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult and sometimes impossible. Since these symptoms aren’t visible, the people around a lupus warrior may have trouble understanding how they feel.

This is your twenty-eighth butterfly of hope. We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 27 Lupus Fact

Flight of the Butterflies

Spreading Lupus Awareness One Butterfly at a time

Let this butterfly flutter all over cyberspace!

May 27 Lupus Fact

The butterfly is the symbol for lupus. Although it is a beautiful symbol, the disease itself is very difficult to live with. The butterfly became the symbol because of the malar rash that presents itself on the faces of lupus warriors. It is called the lupus butterfly rash because of its butterfly-like shape on the bridge of the nose and cheekbones. These rashes are usually red or purple in color in either a blotchy pattern or completely red over the affected area, and can be flat or raised in nature.

This is your twenty-seventh butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope#FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

Butterfly Flight Sarah Gragg

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterfly Sarah Gragg


I was diagnosed on February 4, 2019 two days after my 40th Birthday. I have been struggling with symptoms for almost 7 years. I was always exhausted no matter how much rest I got. I was told I was anemic and put on Iron. I was having chest pain, swollen Lymph nodes, Then I started getting painful rashes every time I would get in the sun even if I was only outside for 15 minutes. Then I would start getting really weak, dizzy, and nauseous. Then the full body aches would hit. I just felt like I had a flu that would never go away. My first diagnoses was Polymorphic Light Eruption. I was also struggling with endometriosis at that time and already had 3 surgeries from that. While working one night on an assembly line, I lost the feeling in 1 of my fingers and it turned white and then blue, and my toes also a few weeks later. So after seeing the doctor I was then diagnosed with Raynauds Phenomenon. I had constant fevers, and colds all the time. The Doctor thought that I might have lymphoma and had to have a needle biopsy, then a surgical biopsy to remove them. I was also diagnosed with Arthritis, and Sciatica. I was in constant pain, and frustration not knowing why or what was going on with my body.

I finally found a doctor who put it all together and did the right test to find I had had Lupus SLE all along after all these years. This disease can attack a different part of your body at anytime you just never know what to expect, and it can mimic so many other illnesses. I am on Prednisone and plaquenil daily to manage the symptoms which I am still experiencing flares and having to avoid Sun exposure which is the hardest part because I love outdoors and hiking. I am sharing my story in hopes of helping bring awareness and maybe someday they will find a cure for all of us struggling daily with autoimmune diseases like Lupus.


Lupus In Color is excited to present Sarah Gragg’s story to the world. As a Lupus Warrior he/she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Sarah Gragg. YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.
YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Sarah Gragg’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

May 22 Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 22 Lupus Fact

Lupus can affect the nervous system and brain. There are several terms doctors use to describe this: neuropsychiatric lupus (NPSLE), neurocognitive dysfunction, or central nervous system lupus (CNS lupus).

The nervous system has three parts, any of which may be affected by lupus:

The central nervous system (CNS)—The brain and spinal cord.

The peripheral nervous system (PNS)—The network of nerves that connects the brain and spinal cord to the rest of the body, and gives skin and muscles the signals needed for sensation and movement.

The autonomic nervous system (ANS)—Allows communication between spinal and peripheral nerves and the brain and internal organs, and controls functions like breathing, blood flow, and heart rate.

Lupus warriors can experience a number of complications when their nervous system is affected. The symptoms may come on suddenly or may come and go, but they will vary depending upon the location and extent of the tissue injury. These symptoms also can be present in other diseases, so diagnosing lupus-related nervous system disorders is often difficult.

This is your twenty-second butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

Faces of Lupus Episode 6

Lupus In Color 7th Annual Faces Of Lupus
Social Media Lupus Awareness Campaign

Lupus affects individuals of virtually every age, race, ethnic background and socioeconomic status. Yet, some groups are notably affected with the disease. Lupus is three times more common in African-American women than in white women. It is also more frequent among women of Hispanic/Latina, Asian and Native American descent.

Often, you can look at a Lupus Warrior and never know they are fighting a bitter hard battle daily. It’s important to see the faces that can bear the pain within without showing it to everyone who they come in contact with without.

These are the Faces of Lupus from every walk of life fighting the same battle. Supporting one another in the battle for their lives.

These are the Faces of Lupus, they are brave, courageous and strong!

#LupusInColor #FacesOfLupus #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness

May 21 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 21 Lupus Fact


Chilblain lupus is a cutaneous form of systemic lupus erythematosus characterized by the appearance of painful bluish-red papular or nodular lesions of the skin in acral locations (including the dorsal aspects of fingers and toes, heels, nose, cheeks, ears, and, in some cases, knees) precipitated by cold and wet exposure.

This is your twenty first butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

May 20 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 20 Lupus Fact

THE DIRECT COSTS OF TREATING LUPUS CAN BE ENORMOUS. THE MEAN DIRECT MEDICAL COSTS IN MODERATE OR SEVERE CASE OF LUPUS IS APPROXIMATELY $22,300-83,000. THOSE WITH A MILDER CASE OF LUPUS IS APPROXIMATELY $8,900-15,000. PEOPLE WITH LUPUS ALSO FACE HIGH ANNUAL PHARMACY EXPENSES, WITH MEAN COSTS RANGING BETWEEN $1,572-13,138.

This is your twentieth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts