From The Heart

Lupus Thoughts From the Heart:

Some people only want to support stars in their journey with lupus when their neighbor just needs a listening ear. Some people rather put an “L” in the air with a superstar than get in the trenches to support the star in their home. We can walk all day, raise funds all night but if we aren’t encouraging and helping one another through the hard times it means nothing. We can wear shirts, sport purple, scream we need a cure and adorn the metamorphosis of a butterfly, but when we are in the hospital holding dear to the IV that sustains us for the moment and saying the prayers that keep us for a lifetime those who are right by our side is what truly matters.

It’s a beautiful thing to spread awareness, but if support is lacking the awareness is naught. In place of throwing up an L, spreading a lupus banner on FB, sending a tweet on twitter, make a concerted effort to encourage, support and reach out to those closest to you that are fighting so hard every second of every day. #LupusInColor

World Kidney Day 2019

World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys.

World Kidney Day aims to raise awareness of the importance of our kidneys to our overall health and to reduce the frequency and impact of kidney disease and its associated health problems worldwide.

Systemic lupus erythematosus (SLE) that affects the kidneys is called lupus nephritis. Lupus nephritis causes inflammation (swelling or scarring) of the small blood vessels that filter wastes in your kidney (glomeruli) and sometimes the kidneys, by attacking them like they would attack a disease.

About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. The part of the kidney most frequently troubled by lupus is a part of the nephron called the glomerulus, a tuft of capillaries that functions to filter substances from of the blood. For this reason, the type of kidney inflammation most commonly experienced in lupus is called glomerulonephritis. Fortunately, the prognosis for patients experiencing kidney lupus is improving due to the growing number of medications that physicians have in their arsenal.

#lupusincolor #educate #inspire #encourage #empower

LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

Merry Christmas

Merry Christmas! I know that this time of year can be hard for you as you battle lupus. You may have lost loved ones due to lupus issues and complications or you’re just getting through a difficult time or are still going through some rough times. It’s hard for me too, I understand what you’re going through! But, I feel so blessed to be able to reflect on the memories and cherish the love of my family and friends that are still present in my life. Today, don’t focus on your pain but on love. Sometimes we can focus so much on what’s missing, what’s hurting in this lupus fight and forget to see all that is good and all the love right in front of us. I suggest if you are feeling down today try giving some love away, first start with the person in the mirror, it’s a great spirit lifter and motivator. Be blessed, be encouraged and be a blessing! #GiveSomeLoveAway #LupusInColor

You Prove It

People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor

Our Goal

Our goal is NOT to make you feel bad as you battle lupus.
Our goal is NOT to minimize anything you go through in your lupus journey.
Our goal IS to help you think a little differently so your stress will be less and your lupus flares will not be exasperated to a point of no return. Our goal IS to give you hope when you feel hopeless. To give you a voice when you feel no one hears you. To be a support when you feel all alone. #LupusInColor

Lupie Gurl Episode 7

Life of a Lupie Gurl.. Episode 7

Lupus really trips out sometimes. I mean really trips out. It’s like when lupus doesn’t see me for a day or so she comes back with a vengeance. So, today I went to get out of bed and lupus decided that my feet were all hers. I placed my feet on the floor, thought I had it made took a couple of steps and *BAM* I was greeting the floor. “Oh hello floor you are always there to catch me, I love you!” I couldn’t even cry, I could only laugh and think DAMN! I laid there as I laughed and said (in my Michael Jackson voice) “Lupus you really knocked me off my feet now baby *hee hee*.” I eventually got up and made my way to the bathroom with semi swollen sausage toes leading me into the day.

Life of a Lupie Gurl, its not always pretty but there’s no reason I can’t laugh it out.

That Lupie Gurl Classy, Sassy and a bit Smart Assy, beating lupus one laugh at a time! #LupusInColor

Be Mindful

Someone said to me to stop saying I have lupus because I make it so, that I manifest it more in my body. Now, I know words have power, but the reality is I didn’t speak lupus into my body. None of us did. Although I know how we see ourselves and speak to ourselves as we battle lupus is important, I also know that saying I don’t have lupus, when in fact I do, is detrimental to me doing what I need to do to treat lupus and beat it daily.

Just a note to those who mean well but don’t think before stating things that are harmful to those in this lupus fight, stop speaking from a place of the unknown. Every Lupus warrior has gone through a mourning period which includes the battle with denial to acceptance. You stating ‘stop saying you have lupus’ places one back into a denial stage. Lupus is not a person’s fault and it isn’t manifested in their body because they say what their diagnosis is. Lupus won’t just go away because a warrior doesn’t say they have lupus, if it was that easy we all would not have lupus.

Please be mindful of what you say to lupus warriors. It’s not an easy condition to deal with. We all understand we have lupus but it is not us and we don’t need anyone to try and make it seem so simple as to stop talking about it to make it go away. We appreciate your well intentions, but please understand all we have to deal with in our battle and only speak words that you know will strengthen us in our fight. #LupusInColor

Toni Braxton Talks Lupus

Many may have gone through this, are going through this or have had these feelings. It’s important to talk it out and really understand your feelings and how it relates to what’s going on on your life. #LupusInColor

Video portion courtesy of Red Table Talk we do not own the right to the video or its contents.

Lupus Holiday Pouches

HAPPY HOLIDAYS

Lupus In Color is providing Lupus Pouches for the holidays for lupus warriors that have monthly IV infusions. If you are a lupus warrior that gets IV infusions or you would like a lupus pouch for the holidays, please visit the link below, answer the questions, enter your name, email address and mailing address to sign up. The first 50 lupus warriors will receive a pouch. Below is a view of what a pouch will look like. Each pouch will contain items to help through infusions and rough moments with lupus. Limit 1 per household.

https://goo.gl/forms/9rTpXrTMr8JuSV3B3