Powerful Beyond Lupus Manifesto

I am POWERFUL Beyond Lupus Manifesto

I promise NOT to be too hard on myself.

HELL I promise to love myself abundantly.

I will remember that my self worth is NOT

Based on the things Lupus can do to me,

How much weight I gain from medications

Or any other stupid crap I can’t control.

I will empower other Lupus Warriors,

Be KIND to myself and keep a sense of

Humor even in the rough times. I will do

My best NOT to judge myself or feel guilty

For resting on hard days. I will remind

Myself to Hold On Pain Ends. And even

on my worst days, I WILL remember

I AM POWERFUL BEYOND LUPUS!

#LupusInColor

Butterfly Flight Ebony Germany

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those Butterfly of Hope stories in May for lupus awareness month.

Flight of the Butterfly Ebony Germany

My name is Ebony Germany, I was diagnosed with Lupus and Sjogrens Syndrome in 2014. Of course I cried, I was scared and I thought of nothing but the worse. I said to myself, “I can beat this”, and not only did I have to fight for myself I have to fight for my daughters. I thank God for my husband and family because they are my #1 support team.

I thank you for giving Lupus a voice.

Lupus In Color is excited to present Ebony Germanys’ story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Ebony Germany!

YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Ebony Germany’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

May 19 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 19 Lupus Fact


Because lupus can affect so many different organs, a wide range of signs and symptoms can occur. These symptoms may come and go, and different symptoms may appear at different times during the course of the disease. Symptoms vary but can include fatigue, joint pain, rash, and fever. These can periodically get worse (flare-up) and then improve.

This is your nineteenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts

Butterfly Flight Stacy Compton

THE 7TH ANNUAL FLIGHT OF THE BUTTERFLIES

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those Butterfly of Hope stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Flight of the Butterfly Stacy Compton

I was diagnosed with lupus at 34 years old. I am now 57. I have had acute pericarditis and admitted to the intensive care unit of the hospital three times. I feel like I am in a constant flareup. Every single day I have joint pain and skin rashes and fatigue.

I have worked for Southwest Airlines for 20 years now and through the support of my coworkers, my family, my husband, I have made it this far.

I have always been afraid of flying and last year I decided that life is very short and I needed to face my fear of flying so I decided to learn how to fly myself. I love it, it makes me feel alive, and very very happy.

Thank you for bringing all of us together and for putting together the Lupus collage. It really helps a lot to have that kind of support around me. I hope you have an amazing day.

Lupus In Color is excited to present Misty Jenkins’ story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so.

Lupus In Color Salutes you Stacy Compton!

YOU ARE BRAVE, COURAGEOUS, AMAZING and STRONG TO SHARE YOUR STORY.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Stacy Compton’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #Brave #Courageous #Strong #SpreadLupusAwareness

May 18 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 18 Lupus Fact

Lupus Fatigue is real and over 80% of those with lupus experience fatigue. Complete exhaustion, for those affected by Lupus becomes a permanent part of life. Flare-related fatigue is a most difficult exhaustion. An unpredictable state of increased fatigue during increased inflammation and pain can last for days or weeks. Fatigue is one of the things that is hardest to combat.

This is your eighteenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

May 17 Lupus Fact

Butterflies of Hope
Flight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!
May 17 Lupus Fact

“Lupus headache” refers to a specific type of headache that occurs with Lupus warriors where the disease is active and there is actual inflammation around the brain that causes discomfort and headaches.

This is your seventeenth butterfly of hope.

We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #ButterfliesofHope #FlightoftheButterflies #SpreadLupusAwareness

Faces of Lupus Episode 3

Lupus In Color 7th Annual Faces Of Lupus
Social Media Lupus Awareness Campaign

Every Tuesday and Friday in May we will show you the Faces of Lupus! Lupus affects individuals of virtually every age, race, ethnic background and socioeconomic status. Yet, some groups are notably affected with the disease. Lupus is three times more common in African-American women than in white women. It is also more frequent among women of Hispanic/Latina, Asian and Native American descent.

Often, you can look at a Lupus Warrior and never know they are fighting a bitter hard battle daily. It’s important to see the faces that can bear the pain within without showing it to everyone who they come in contact with without.

These are the Faces of Lupus from every walk of life fighting the same battle. Supporting one another in the battle for their lives.

These are the Faces of Lupus, they are brave, courageous and strong!

#LupusInColor #FacesOfLupus #FlightoftheButterflies #ButterfliesofHope #SpreadLupusAwareness

Spread Lupus Awareness

Tell someone about lupus today!

Lupus is like an allergic reaction by the body. The immune system essentially sees the body’s own healthy tissues and cells as foreign and attacks them.

Lupus is not contagious. You cannot “catch” lupus from someone or “give” lupus to someone. It is not like or related to AIDS or Cancer.

Lupus is unpredictable: It is a disease of flares (the symptoms worsen and you feel ill) and quiescence (the symptoms quiet and improve and you feel better).

Spread the word about Lupus. Someone you know has lupus!

Have a question? Ask me!

#WorldLupusDay #LupusInColor #Educate #Inspire #Encourage #Empower

May 8 Lupus Fact

Butterflies of HopeFlight of the Butterflies
Spreading Lupus Awareness One Butterfly at a time
Let this butterfly flutter all over cyberspace!

May 8 Lupus Fact

It took 50 years to create a drug that targets lupus specifically. The IV-administered drug belimumab, known as Benlysta, approved by Food and Drug Administration (FDA) in March 2011, is the newest lupus treatment. It works by suppressing overactive immune-system components known as B-cells.

This is your eighth butterfly of hope.
We need awareness and a cure!

Encourage everyone you know to let it FLY!

#LupusInColor #FlightoftheButterflies #SpreadLupusAwareness #LupusFacts