LIVIN’ La Vida Lupie

April 27, 2019 • 2p-4:30p

Glen Allen Library Small Conference Room

Butterflies of Hope Lupus Support Group

LIVIN’ LA VIDA LUPIE

Practicing living a mindful Peaceful life beyond lupus.

Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor

It’s okay

Too many times warriors beat themselves up and feel guilty for feeling good and walking in that power. They don’t want to get too excited for fear of the moment changing. As you beat lupus, you are allowed to be okay. Sometimes it might feel like you don’t deserve to feel okay, but you do! You deserve happiness beyond lupus. #LupusInColor

Walk Challenge App

Almost time to begin our challenge!
We will be using the MapMyWalk app to log in our workouts. You can download it for FREE at your app store on your phone. You do not need to pay extra for walkout logs.

Once you download the app please do a search for me RACQUEL DOZIER ask to be a friend and I will add you to the LUPUS IN COLOR 30 DAY WALK CHALLENGE. Here you will log your walks or activity that we all can see. #LupusInColor #WalkItOut #30DayWalkChallenge

LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

You Prove It

People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor

Butterfly Flight Sharima Singleton

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Sharima Singleton

On October 22, 2017 I woke up and my whole face was swollen and I didn’t know what it was from. So I went to urgent care and they did a test and they said it was a lot of protein in my urine. The doctor told me to go to the hospital.

By the time I got to the hospital my ankles were swollen. So at this point I didn’t know what the hell was going on with me.They did a lot more test and they admitted me because they didn’t know why it was protein coming out.

They did a lot of tests to figure out what was going on and 4 days later they found out that I had systemic lupus erythematosus(SLE), an autoimmune disease that attacks good tissues in your body.

I had class 3 lupus but they didn’t know what type of lupus I had. I was in the hospital about 2 weeks and they figure out that I had lupus nephritis when lupus attacked my kidneys. I had to do a kidney biopsy to see how damage was done to my kidneys.

Today my kidneys are not really damage. My kidneys are less then 50% damaged and my kidney function is working fine. I was in and out the hospital bout 6 times since October. From the medicine I had experience hair loss. I had to change my eating and drinking habits.

I still had my good days and bad days and I still have flare ups, but not a lot, but I’m still a fighter. I’m still learning more stuff about it because it is still new to me.

It was hard at first but I got through it with the help of my supporters.

#lupuswarrior #lupusawareness #lupusfighter #lupussucks

Lupus In Color is excited to present Sharima’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Sharima Singleton.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Sharima’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬

Stages of Lupus Mourning

Stages of Lupus Mourning

We all experience them, will go through them and will get stuck in one or more of them….

Stages of Lupus Diagnosis and Management

Denial
You know when you are first diagnosed you go through a denial period. I don’t have this life altering disease. I am healthy the 5 doctors I have gone to have no idea what they are talking about. I’m going for another opinion. I don’t have lupus. Hell I don’t even know what it is…..

Anger
This is some straight bull! How come I live a life that I do everything right and I get this disease? This is straight foolishness and I can’t stand the doctors for finding this shit in my body. I hate life, I hate my life I want to beat everyone just because afte 10 doctors I have this fucked up disease…..

Bargaining
God, I don’t know what I did to deserve this but I’m sorry. If you heal me I will live a life that is stellar. If you take this disease away from me I promise to never drink alcohol, eat read meat, overconsume sweets or cuss anymore…

Depression
OMG I can’t do this I’m never leaving my house. It hurts so bad it will never get better. Please just let me lay in this bed all day, all night and cry myself to sleep and wake up feeling worse because no one understands and I can’t take it….

Acceptance
WOW today is a good day. I feel like I am alive again. This lupus can be rough but I know I can do this if I take it one second at a time. “I have lupus, lupus does not have me!”

Stages of lupus diagnosis and management. You will go through them all, but your goal is to reach acceptance. Acceptance of having to live a new life in a new way with a new attitude.

You can do it!!!!! Never give up!!!!

#LupusInColor

Empowerment Summit

LUPUS WARRIORS: THIS WILL BE LIVE ON FACEBOOK @Lupus In Color FOR OUT OF TOWN GUESTS!

Saturday January 28, 2017 can’t wait to see everyone at the Lupus In Color Empowerment Summit. Living under Pressure Understanding Strength! #EmpowermentSummit #LupusInColor