Lupus In Color Monday Meditations

Ever wondered how to meditate? Ever wonder how meditation can help you in your lupus journey? Mindfulness meditation is not about fighting. It’s all about acceptance. And once you have achieved calm, it can help you regain a much needed sense of control when your disease brings you discomfort. Mindfulness meditation involves directing your attention to the present moment with an attitude of openness to accept without judgement.

Every Monday, Lupus In Color will present a short meditation to help empower you in your lupus journey. Part of our new Empowerment Series, we hope this will help you manage your chronic pain as well as keep your mental and emotional health strong in your fight.

#MondayMeditations #LupusInColor

MONDAY Meditations Season 1 Episode 1

Survive The Holidays

Seven Tips to Survive the Holidays With Lupus

The holidays can be fun, but they can also be stressful. While we all are getting so excited about seeing loved ones and hosting events, there can be real fears that can and will bubble up in side of us. There may be fears of missing out, getting sick, or not being able to reach expectations put on us by family members or friends. The anxiety can be high, the worry can be off the charts and the depression may increase.

It’s important as we battle lupus to take it one step at a time. To not become overwhelmed and to not overdo it. If you already find yourself in a crazed frenzy of the holidays, it’s time to take your life and holiday sanity back.
Below are some helpful tips that may help you in finding your calm in the midst of the holiday storm.

  1. Remember, you don’t have to look at the whole forest. You don’t even have to look at a whole tree. Focus on the branch, the leaf, the bark. Breaking things down into smaller, manageable tasks is a great way to get started.
  2. Make a realistic list. Divide it between URGENT tasks that must get done, stuff that can wait a few days, and things that you should do, but that can be done at any time.
  3. Setting a time limit with a built in reward can be a great motivator. For example, put the dishes away while the tea kettle boils. Do a small task, like writing a thank you note, as you can while you wait for food to finish cooking.
  4. Ask for help – Reach out. Ask others for help. It can be scary, but more often than not, people are grateful to help. People like to feel useful.
  5. Take a deep breath. Take another. Drink some water and open the blinds. Put on fun music. Making your environment welcoming will help get you moving and ready to start the day.
  6. Say NO. This one is so hard for so many people especially lupus warriors. If you feel yourself getting stretched thin, or there’s absolutely no way you can do one more thing, you can say NO. Remember you are not responsible for another person’s bad time management. You don’t have to be a “Yes” man or woman to try and please others.
  7. PACE YOURSELF AND REST. This is hard especially for lupus warriors that may be feeling better and have some energy. Warriors tend to overdo it and then have to pay for it later on. I know many are excited, but it’s important to pace yourself and rest before you overdo it and end up in a bad flare.

Having lupus is challenging and when the holidays roll around it can be overwhelming and difficult to handle. The main thing to stay holiday flare free is to make it a collaborative effort. Don’t think you have to do it all yourself or make an extravagant party that will take you months to recover from. Let your need for perfection go. Remember, your first priority needs to involve doing what you can to protect your health. Don’t stress out and overwork yourself and you will have a nice holiday season.

#LupusInColor

Lupus Survival

GUIDE TO SURVIVING LUPUS: Cry when you need to. Scream. Shout. Lay on the floor. Sob in the shower. Be still. Run. Walk. Create. Live in your truth. Share your victories without fear. Listen to your body. Release your pain. Read. Seek support. Be a support. Be a friend. Find friends. Be real. Be honest about what you need and what’s going on with your body. Be courageous. Be strong. Be compassionate. Be vulnerable. Don’t be hard on yourself. Breathe. Don’t fear the hard times. Always understand how amazing you are fighting day by day. #LupusInColor

LIVIN’ La Vida Lupie

April 27, 2019 • 2p-4:30p

Glen Allen Library Small Conference Room

Butterflies of Hope Lupus Support Group

LIVIN’ LA VIDA LUPIE

Practicing living a mindful Peaceful life beyond lupus.

Lupus Warriors: Attend a great encouraging support group in a warm, caring, fun environment for you, your family members, caregivers, and loved ones. Come out & share experiences & methods of coping with insights into living well with lupus. #LupusInColor

It’s okay

Too many times warriors beat themselves up and feel guilty for feeling good and walking in that power. They don’t want to get too excited for fear of the moment changing. As you beat lupus, you are allowed to be okay. Sometimes it might feel like you don’t deserve to feel okay, but you do! You deserve happiness beyond lupus. #LupusInColor

Walk Challenge App

Almost time to begin our challenge!
We will be using the MapMyWalk app to log in our workouts. You can download it for FREE at your app store on your phone. You do not need to pay extra for walkout logs.

Once you download the app please do a search for me RACQUEL DOZIER ask to be a friend and I will add you to the LUPUS IN COLOR 30 DAY WALK CHALLENGE. Here you will log your walks or activity that we all can see. #LupusInColor #WalkItOut #30DayWalkChallenge

LIC Support Group

How exactly do you start a bullet journal?

Come out and find out how you can get organized and focused on your lupus journey,

Bullet Journaling 101 will assist you in lettng go of several planners, old notebooks and bulky vision boards. Keep your lupus goals right in front of you at all times with a bullet journal.

A new and different way to really get focused on your health and wellness as you battle lupus, while keeping you accountable to you!

A supportive and fun learning session that will leave you inspired, encouraged and empowered!

Light refreshments will be served.

Journals provided as a gift from Lupus In Color #LupusInColor

You Prove It

People love to believe they can save you from lupus that they have the cure. That they can somehow pray it away. They often tell you that you haven’t prayed enough, that you didn’t believe in miracles and that’s why you aren’t healed. They claim full healing that other people they know with lupus have had and say you need to follow what they did, even though they still have issues they have never told them about. They say you’re not eating right and if you just exercised more you would be better. They tell you to have faith and remember at least it’s not cancer. Every now and again they’ll ask you what did you do to create this lupus thing and that maybe the sins of your ancestors are inflicted on you like you deserve to bear it all. You’ll sit and nod and smile and act like it doesn’t bother you. Later you will retreat to a corner in your home, most likely the bathroom in the shower, and cry it all out until the tears run dry. The next day you’ll get up and move beyond the pain and start your living beyond lupus and it’s pain once again. What they said to you yesterday won’t matter because you know that you did not cause this yourself, it was not created in you because of the sins of your forefathers, it’s not because of how you eat, it’s something very complicated that you have to deal with daily without any breaks from the pain or mental struggle in your fight. What they say won’t matter because you know you are stronger than anything lupus can put you through and you prove it day in and day out. #LupusInColor

Butterfly Flight Sharima Singleton

Flight of the Butterflies is a lupus awareness campaign sharing stories of the brave lupus warriors. Many don’t understand lupus until they hear the walk of a warrior. Flight of the Butterflies is dedicated to sharing those stories in May for lupus awareness month.

Flight of the Butterflies Begins…..

Butterfly Flight Sharima Singleton

On October 22, 2017 I woke up and my whole face was swollen and I didn’t know what it was from. So I went to urgent care and they did a test and they said it was a lot of protein in my urine. The doctor told me to go to the hospital.

By the time I got to the hospital my ankles were swollen. So at this point I didn’t know what the hell was going on with me.They did a lot more test and they admitted me because they didn’t know why it was protein coming out.

They did a lot of tests to figure out what was going on and 4 days later they found out that I had systemic lupus erythematosus(SLE), an autoimmune disease that attacks good tissues in your body.

I had class 3 lupus but they didn’t know what type of lupus I had. I was in the hospital about 2 weeks and they figure out that I had lupus nephritis when lupus attacked my kidneys. I had to do a kidney biopsy to see how damage was done to my kidneys.

Today my kidneys are not really damage. My kidneys are less then 50% damaged and my kidney function is working fine. I was in and out the hospital bout 6 times since October. From the medicine I had experience hair loss. I had to change my eating and drinking habits.

I still had my good days and bad days and I still have flare ups, but not a lot, but I’m still a fighter. I’m still learning more stuff about it because it is still new to me.

It was hard at first but I got through it with the help of my supporters.

#lupuswarrior #lupusawareness #lupusfighter #lupussucks

Lupus In Color is excited to present Sharima’s story to the world. As a Lupus Warrior she is actively promoting lupus awareness and wearing the armor of strength in doing so. Lupus In Color Salutes you Sharima Singleton.

YOUR BUTTERFLY WINGS ARE FLUTTERING, YOUR CHIN IS UP, YOUR ARMS ARE EXTENDED AND YOUR CHEST IS OUT! FLY ON BUTTERFLY!

FLY ON!

PLEASE SHARE Sharima’s FLIGHT ON YOUR WALL AND START HER BUTTERFLY JOURNEY SPREADING LUPUS AWARENESS!

‪#‎LupusInColor‬ ‪#‎ButterfliesofHope‬ ‪#‎FlightoftheButterflies‬‪ #‎SpreadLupusAwareness‬