3 R’s of Lupus

3 R’s of Lupus

Rest • Rest before you need it so you won’t be knocked down because you chose not to. Rest is very important in healing beyond lupus. It’s perfectly ok for you stop and take a break. REST!

Reflect • Reflect on how far you have come in your lupus journey. See your overcoming and be ecstatic that you’ve made it past some serious issues. Reflect on how you’ve survived 100% of the days you thought would kill you. REFLECT!

Reset • Reset your mind so you can deal with whatever comes at you. Find ways to train your mind to look at your luous journey differently. Reset your spirit by tuning into yourself and being stil and quiet. Finally, Reset your body by following the first two R’s of Rest and Reflect. RESET!

REST • REFLECT • RESET DAILY its the only way to get the most healing in your lupus walk. #LupusInColor

Hydroxychloriquine Resource

Honeybee Health, an online pharmacy found at http://www.honeybeehealth.com, currently has hydroxychloroquine (Plaquenil) in stock for people with a lupus or rheumatoid arthritis diagnosis. They are approved by the FDA and order their inventory from FDA-approved wholesalers in the U.S. They are licensed by the California Board of Pharmacy. Lupus In Color is in no way affiliated with Honeybee Health, but we want to share this information to help those experiencing a challenge filling their hydroxychloroquine prescription due to a shortage at their pharmacy.

Honeybee Health services 40 states (view the list on their website). They do not take insurance, but work directly with wholesalers to keep their prices low. Plaquenil prices range from $45 for 30 pills to $90 for 90 pills (200mg). You can also use coupon code Lupus20 for a one-time savings of 20%.

Honeybee Health is dedicated to supporting people with lupus during this difficult time. In order to help as many patients as possible maintain access to this medication, they are only filling 30-day supplies at this time (this may be extended in future).

In order to fill your medication, please ask your doctor to:

Include your diagnosis code
Include your diagnosis date
Send your prescription electronically (Honeybee Health, Culver City, CA) or by fax to (310.559.5933) Info provided by Lupus Foundation of America


Stay Strong!

Stay Strong
It is so hard to deal with the harsh realities of lupus. When it hits you it hits like a ton of bricks and a couple of mack trucks. It can cause a panic and a flood of fear. It forces you to evaluate, reevaluate, think, and wonder. Then it pushes you to live stronger, more abundantly without fear or regrets, without anger and sadness mourning the life you once had.

The harsh realities of being a lupus warrior day in and day out can inundate you, but please don’t let it beat you. You are stronger than you think you are. You may stumble, you may fall but just keep getting up and fighting. You are worth it! Yes,it’s going to hurt. Yes, you will get angry and sad and have to cry it out or shout it out and maybe even cuss it out. But after you finish you will be in much better shape to fight another day.

Stay strong. It’s not just a catch phrase it’s your way of life. ‪


11 Steps

Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day will bring, it’s normal to experience feelings of unhappiness, frustration, anger, or sadness. It’s also normal to grieve for the loss of the life you had before lupus.

As you battle lupus, it’s normal to feel sad or down sometimes. After all, lupus will force you to make big adjustments in your life. Lupus can put a strain on your personal relationships, and make it hard to do some of the things you enjoy. All this can take a toll on you emotionally. But, feelings of sadness or depression that last more than a few weeks should be evaluated and treated.

Here are 11 steps you can take to somewhat alleviate the feelings if you have lupus and think you may have depression.

1. Talk With Your Doctor About Depression and Lupus
2. Aim for Acceptance of Your Lupus Diagnosis
3. Keep Self-Talk Positive, Avoid Negative Self-Talk
4. Surround Yourself With Supportive People
5. Take One Day at a Time
6. Watch Your Mood Closely
7. Keep a List of Ways to Feel Better
8. Connect With Your Spirituality
9. Be as Active as You Can With Lupus
10. Learn All You Can About Lupus
11. Keep Up Healthy Habits While Living With Lupus

People with a chronic illness such as lupus are at higher risk of depression. Studies show that as many as 60% of people with a chronic illness will have depression at some point in their lives.

It’s important to know the signs and take action to avoid depression spurts that can harm you emotionally and physically.



Butterflies of HOPE H.olding O.n P.urposely E.veryday

Holding • Holding on to the power of health and wellness beyond lupus. Believing that it is possible to be better, to be well, even when we are at our worst. Holding on to the possibility of a cure and complete total healing.

On • On top of advocacy for yourself. On top of education about your own lupus issues. On the ball with communication with your doctors, family and friends about all that goes on with you as you battle lupus. Being On top of being honest with yourself and others about how you really feel in order to not overdo it.

Purposely • Purposely living in spite of Lupus. Living in the purpose of getting better a nanosecond at a time. Being purposeful in reminding yourself of the importance of being well mentally and spiritually even when your body is not cooperating and you don’t want to be. Staying determined to stay purposeful in thinking right so that your body will respond with feeling right beyond lupus. Staying purposeful in your plan to defeat lupus at every turn. Living in purpose beyond lupus to lead a purposefully powerful life.

Everyday • Every day in every way making a conscious effort to get up, get dressed, get out and live beyond lupus. These everyday activities make a huge difference in your fight. Lupus can stifle your will to live. It can take your everyday and create a plethora of feelings that remove your spark to live. Every day you must make a concerted effort to change the way you think, act and react to living with lupus. Every day you must realize that live is amazing beyond lupus’ constraints and live with everyday activities that create a more positive tone in your fight. Every day you have to live like you mean it.

Holding On Purposely Everyday
Live in HOPE, Fight in HOPE