Sometimes as you battle lupus you have to allow yourself to enjoy over sleeping. You have to indulge in lazy Sunday afternoons and procrastinate things that may demand your attention. You have to sing songs and sip an occasional adult beverage in bed while you forget the damage lupus has done. You have to remind yourself to enjoy the beauty of nothingness and replenish the energy that lupus and people drain. You need to get wrapped in cozy blankets and covered in oversized sweaters with the air condition on just in case you get hot. In the midst of this lupus life, we must remember to surrender to the solace of alone time where we can clear our head and replenish our soul for anything new that may arise from lupus. #LupusInColor
My mind is always racing with thoughts about my battle with Lupus. Most times I am trying to find tranquil thoughts to offset the raging war in my body. As one can imagine this is a constant struggle that is sometimes won with tranquility and other times submitted to the barrage of constant pain. Either way it always has my mind in constant thought. I find myself always trying to find a way to combat negative thoughts about this disease. In that process I have found my mind wandering from my own needs to the needs of those I love and share my life with day to day.
I know many will say Aww what a noble gesture to think of someone other than yourself. But, I believe it is sometimes a trick to bring back excessive negative thoughts about dealing with Lupus. The reason I say this is because at times I get into a mood and in thought about how painful it is for me to see my loved ones hurt and have to deal with me as I deal with this disease. I look at my friends and family and the hardest thing for me is to see my loved ones miss the old me I used to be. I mean really if that is not my mind playing tricks on me trying to allow the negative to slip back into my thought pattern I don’t know what is.
The irony of it all, thinking about the feelings of someone else while being thrusted into a plethora of negative feelings and emotions. It’s crazy how that negative can creep in and slowly try to poison your mind and soul.
Sometimes I have to just shake myself out of it and remind myself of the good things that come out of having a life altering disease. I have to shake the negatives off in order to truly begin a journey into a tranquil way of life.
I am on a quest to live in tranquility through thoughts that increase my mental health in order to generate a better physical body. There is power in positive thinking and there is healing in tranquility.
I have lupus, Lupus does NOT have ME! #LupusInColor
Monday Meditations 7/27
Monday Meditations controlling pain with breathing . #mondaymeditations #LupusInColor
Monday Meditations Mindful Moments 8/3 – Lupus In Color
The Inevitable of Lupus
You will lose some friends
You will think you’re going crazy
You will feel pain and fatigue
You will almost talk yourself out of cancelling appointments a hundred of times
You will lose money on unproven ‘cures’
You will cry almost daily
Your family and friends will discourage you
You will doubt yourself thousands of times
You will develop weird habits
People will give you grief for no reason
You will lose hope before gaining strength
You will lose many friends and family but will find others who understand you even better
You will overcome the hard days
You will be brave, courageous and strong
You will live well beyond lupus!
Midweek Refuel Message: During our lupus battle, we all can feel a little helpless at times. That helplessness makes us want to try to control everything. Don’t allow feeling helpless turn you into a warrior that makes being overwhelmed the norm.
You don’t have to try to control everything. You can say no and just let things be as they are and fend off flares by limiting your stress. Tonight, make a commitment to feel less helpless in those tough moments and more hopeful in the healing that manifests throughout your lupus journey.
Ten Steps to Protect your Vibe as you Battle Lupus
- Let go of things you can’t control.
- Avoid comparing your lupus battle to you when you did not have lupus and to others who have lupus.
- Keep your faith for healing bigger than your fears of the pain.
- Don’t do anything that you know will make you feel bad, doesn’t feel right or cause you a flare.
- Don’t be afraid of being alone with your pain to figure out how to handle it.
- Avoid bashing yourself because you have lupus. It isn’t your fault.
- Speak kindly to yourself you are fighting a hard battle.
- Take care of yourself before you take care of others.
- Stay away from people who drain you or who are bent on misunderstanding your lupus fight.
- Ignore any opinions about how you live beyond lupus if they don’t enhance your life. They aren’t walking in your shoes so don’t let them dictate your steps.
Lupus isn’t a simple disease with an easy answer. Fevers, aching swollen hands and knees, infections, hair loss, pleurisy and more..It’s time to fight back and take your life back from Lupus. Life is meant to be lived! When you feel good live life to the fullest. When you feel bad ride out the wave to the shore dust off the sand and hit the ground running. Remember you have lupus, lupus does NOT have YOU!
I have to recite this positive lupus affirmation to myself daily. Although lupus is a part of my life I have to constantly input the importance of living my life to the fullest even in times of pain. Not every day will be roses and butterflies with lovely songs of positiveness. Sometimes it will be hard and it is in those moments that I must pick up my cross and walk reciting ….” I have lupus lupus does NOT have Me…. I have lupus lupus does NOT have Me…. I have lupus lupus does NOT have Me…. I have lupus lupus does NOT have Me…. I have lupus lupus does NOT have Me….” I will say it sometimes over 1000 times a day. I know that sounds crazy right? No it really isn’t. There is so much POWER in my tongue that honestly the statement…”I have lupus lupus does NOT have Me….” allows me to move through every pain, every heartache from the pain. It allows me to mentally prepare myself for a journey I did not choose but am taking step by step with a mindset that I will NOT allow anything that comes with lupus to bring me down. I will not allow it to take me out of my character. I will not allow it to wear me to the ground and beat me up mentally, physically or spiritually.
Someone asked me, “oh you Got Lupus?????” First off, I looked at them like they had three eyes because who just busts out and ask you that? But, I answered and said, “uh yeah I have lupus, I’ve got it right by the balls. Right where I want it strangled in the middle of my hands.” They kind of looked at me crooked eye like huh.
I had to explain that my talk to myself and to lupus directly affect the way I go about my day. If I wallow in the pity like I really want to, I have allowed lupus to take control of me and become an inherent part of me. I won’t allow that to happen. So I change my way of talking in order to curse the demon of lupus out of my body. I believe in God and I know that He is not through with me yet. Since my God is not a God of fear, despair, sickness and sadness I choose to dwell in the spirit of faith and hope and I choose to speak in that manner. Never will I give in to the pity of what lupus can bring. Lupus can destroy your spirit but I refuse to be a part of that pity party and allow it to consume me. So I choose to positively speak it out of my life. I choose to react differently so my mind will convince my body to perceive lupus in a different way. When I feel good, I will do. When I feel bad, I will rest. Every day I WILL curse lupus so that it knows that it is not wanted in my body. I WILL curse lupus so it know I’m not the one to mess with.
Got Lupus????? Yeah, but lupus don’t got ME!
SPREAD THE WORD!
3 R’s of Lupus
Rest • Rest before you need it so you won’t be knocked down because you chose not to. Rest is very important in healing beyond lupus. It’s perfectly ok for you stop and take a break. REST!
Reflect • Reflect on how far you have come in your lupus journey. See your overcoming and be ecstatic that you’ve made it past some serious issues. Reflect on how you’ve survived 100% of the days you thought would kill you. REFLECT!
Reset • Reset your mind so you can deal with whatever comes at you. Find ways to train your mind to look at your luous journey differently. Reset your spirit by tuning into yourself and being stil and quiet. Finally, Reset your body by following the first two R’s of Rest and Reflect. RESET!
REST • REFLECT • RESET DAILY its the only way to get the most healing in your lupus walk. #LupusInColor
A large factor in coping with lupus is understanding what lupus is and the course of actions to take. As in most things, having a clear and sound mind is essential in grasping vital information about lupus. It can be very difficult to digest a lupus diagnosis and emotional strain can make understanding very difficult. That’s why it’s so important to work hard at keeping your mind, body and spirit strong as you battle lupus. Doing things that bring peace, love and healing to yourself is most important.